Search found 24 matches

by zanne10000
Fri Sep 27, 2013 1:29 pm
Forum: General Discussion
Topic: SSDI
Replies: 12
Views: 2338

Re: SSDI

I'm so frustrated. I just got my denial letter for the Reconsideration phase. I was looking through a packet I got at an SSDI seminar I went to and it said that if you appeal again and use a lawyer, the approval rate is 61.5% nationwide. I just feel like I've been doing this for a year already and I...
by zanne10000
Fri Apr 06, 2012 1:48 pm
Forum: Natural Approach
Topic: Want to find out if anyone is taking a supplement
Replies: 1
Views: 1432

Want to find out if anyone is taking a supplement

Sorry for the repeat post, but I have repeatedly tried to use the support@thisisms.com email address to ask why my message was deleted and then my account was deactivated. I find this disturbing as I thought this was supposed to be a place where we could ask genuine questions and receive genuine ans...
by zanne10000
Thu Apr 05, 2012 3:21 pm
Forum: Chiropractic Treatment
Topic: NUCCA and CCSVI
Replies: 19
Views: 13543

Re: NUCCA and CCSVI

I've been seeing a NUCCA chiropractor for about a year and did so before I was treated for CCSVI. I first heard about them from the Upright Doc's blog. Dr. Flanagan has great info on his site regarding the connection between MS (and other neurological disorders) and misalignments in the axis/atlas a...
by zanne10000
Wed Apr 04, 2012 7:52 pm
Forum: Introductions
Topic: Prob not the right place to post, but need an Admin's help!
Replies: 0
Views: 815

Prob not the right place to post, but need an Admin's help!

Hello:

The address support@thisisms.com is bouncing back and says unknown user. How can I reach an Administrator?

Thank you
by zanne10000
Mon May 02, 2011 7:53 pm
Forum: Natural Approach
Topic: all things vitamin D
Replies: 1073
Views: 152122

Thanks, jimmylegs! I'm wondering if this might be the study to which she was referring: http://www.webmd.com/multiple-sclerosis/news/20090428/high-doses-vitamin-d-cut-ms-relapses It's several years old, though... but it does mention the 40,000 IUs for six months and then tapering, which is what she ...
by zanne10000
Mon May 02, 2011 5:30 pm
Forum: Natural Approach
Topic: all things vitamin D
Replies: 1073
Views: 152122

Anyone have a link for this article about Vitamin D?

I just saw my naturopath today and she said she went to an infectious disease conference recently and someone presented a study about Vitamin D, MS and a triggering infection (often EBV). I think the following info from the April 19th issue of Neurology is the article to which she's referring, but i...
by zanne10000
Sun Apr 24, 2011 7:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: restenosis...
Replies: 26
Views: 4144

Hi Blossom: Yes, sorry I forgot to add that I'm a seeing a NUCCA doc too. I'm trying to be gluten-free as well, so I thought I'd try a more natural approach for a while and get off Tysabri. We'll see how things go in September at my next MRI. Does Dr. Flanagan have his own forum here? I see him post...
by zanne10000
Sun Apr 24, 2011 6:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: restenosis...
Replies: 26
Views: 4144

Hi Blossom: I went to the Hubbard Foundation and they did the brain and functional MRIs (this is where Dr. Haacke comes in- his team analyzes all the data to determine the flow rates, etc.). I don't think I've ever had a scan of my neck. One doc said I would have it done the next time I came in (but...
by zanne10000
Sun Apr 24, 2011 2:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: restenosis...
Replies: 26
Views: 4144

Blossom, I love that someone finally mentioned hemochromatosis! I had never heard of it until I had to come off of Avonex after only 3 months. My liver enzymes were 10x normal and I was sent to a GI specialist. He tested me for everything, including this. Finally, after about 6 weeks had passed sinc...
by zanne10000
Sun Feb 27, 2011 6:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Denied CCSVI table at MS Walks
Replies: 39
Views: 6350

Mr. Success: You stated, "maybe it's a good idea not to post email's that were intended to be personal . If you must ..... leave out the names of those involved." I'm not sure what you're getting at-- if you go back and look at my post, I said I deleted the person's name and I even deleted the perso...
by zanne10000
Sun Feb 27, 2011 12:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Denied CCSVI table at MS Walks
Replies: 39
Views: 6350

Hey all! Thanks for the great ideas-- we ARE planning something, don't worry and a lot of your ideas are already planning to be incorporated. I'm still waiting to get the okay from the person who received the response from the National office. I'd love to post it so you can see their reasoning. Basi...
by zanne10000
Sat Feb 26, 2011 5:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Denied CCSVI table at MS Walks
Replies: 39
Views: 6350

Sorry for the formatting issues! I deleted the NMSS person's name (don't know why I feel like I need to protect them!) You'll need to start reading at the bottom of my post and work your way up! _____________________ Suzanne, Thank you so much for participating in both our Walk MS and Bike MS events...
by zanne10000
Sat Feb 26, 2011 4:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Denied CCSVI table at MS Walks
Replies: 39
Views: 6350

Denied CCSVI table at MS Walks

Hi all: I wanted to share a disturbing development from our corner of the country. I contacted our local chapter office at the beginning of the month to inquire about having a CCSVI table at the MS Walk. I was told it would be okay, but like any MS drug company, it would cost $3000 (laughing hard no...
by zanne10000
Thu Feb 24, 2011 3:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Please vote for my video for The Hubbard Foundation!
Replies: 20
Views: 3221

Rokkit, that made me laugh!

Thank you everyone, for your support! Our community of MiSfits is awesome! :lol:
by zanne10000
Wed Feb 23, 2011 11:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Please vote for my video for The Hubbard Foundation!
Replies: 20
Views: 3221

Thanks, everyone, and Marc, I got goosebumps when I saw you responded! Your blog is THE BOMB! (is that passe'-- can't figure out how to do accents on here!). I'm doing great-- feeling good, although I guess like everyone, I keep waiting for the other shoe to drop and every little thing has me thinki...

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