Search found 28 matches

by sara-sama
Wed Mar 23, 2011 4:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371796

Dr Sclafani, My sister had amyotrophic lateral sclerosis, she had conducted a catheter and dealt aspirin for eight months, but she died a month ago .. I found this research about the impact of aspirin on Als patients .. Do you think that aspirin harmed my sister ? Abstract We sought to examine the i...
by sara-sama
Tue Mar 15, 2011 6:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: valvulotomy vs ballooning?
Replies: 15
Views: 5215

IHateMS wrote:sara-sama

sorry for your loss.

our neighbor/friend died in january bfrom als. horrible disease.

Thanks (IHateMS)

yes , it is horrible disease.
by sara-sama
Mon Mar 14, 2011 10:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: valvulotomy vs ballooning?
Replies: 15
Views: 5215

Liberation wrote:
Condolences for your loss.
Do you know anything about dr Sinan's technique? Does he use the valvulotomy or the cutting ballon?
Thanks Liberation
I do not know waht his technique exactly ..
I understood that he cut the valve to keep the vein open ..
by sara-sama
Sun Mar 13, 2011 6:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: valvulotomy vs ballooning?
Replies: 15
Views: 5215

Cece wrote:Sara-sama, condolences for your loss. I am sorry to hear of it.
Trish317 wrote:
I'm so sorry for your loss. My thoughts and prayers are with you and your family.

Thanks Cece & Trish
by sara-sama
Sat Mar 12, 2011 8:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: valvulotomy vs ballooning?
Replies: 15
Views: 5215

Dr. Sinan told us that he uses this way,

my sister had (Als) .. she tried to travel for re-catheter and Make (valvulotomy) vs ballooning, but unfortunately .. she could not travel because of the deterioration of her health .
she died two weeks ago ..
by sara-sama
Sun Mar 06, 2011 7:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 762708

Spinal Cord Herniation

Spinal Cord Herniation: A Missing Piece in the Pathogenesis of Amyotrophic Lateral Sclerosis and Multiple Sclerosis? Abstract Background: Idiopathic spinal cord herniation (SCH) is a rare and often misdiagnosed condition characterized by displacement of the spinal cord through an anterior defect of ...
by sara-sama
Sun Feb 13, 2011 8:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371796

Dr. Sclafani: You previously posted some images of what a stenosis actually looks like (from a cadaver). However these images are no longer available. Would you please re-post them as I wish to have something to show others? Thanks! Donnchadh http://www.freeimagehosting.net/uploads/ff6d207b47.jpg
by sara-sama
Sun Feb 13, 2011 8:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371796

Dr. Sclafani: You previously posted some images of what a stenosis actually looks like (from a cadaver). However these images are no longer available. Would you please re-post them as I wish to have something to show others? Thanks! Donnchadh http://www.freeimagehosting.net/uploads/ff6d207b47.jpg
by sara-sama
Sat Feb 12, 2011 3:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 160943

Thanks , Dr. Sclafani. Congratulations Cece .
by sara-sama
Sun Feb 06, 2011 11:32 am
Forum: General Discussion
Topic: Sleep Apnea
Replies: 14
Views: 3787

MS can cause sleep apnea, this is worth getting checked out, and you are absolutely right about the oxygen levels, especially if CCSVI is worse when we are lying down because that is when the jugulars are most needed. Here a study on the causes of Als (Hazards of Hypoxia - the cause is the cure) ht...
by sara-sama
Thu Feb 03, 2011 4:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: why Als lack of interest with that they have ccsvi ..!!
Replies: 31
Views: 8686

Yesterday ,Patient with Als (Member in another forum) told me that she opened jugular veins, two months ago, now felt improvement in swallowing and movement . Also, i found this topic about the experiences of other with ccsvi http://www.alsforums.com/forum/general-discussion-about-pls/13126-ccsvi.html
by sara-sama
Wed Jan 19, 2011 4:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: making it to safety
Replies: 8
Views: 2890

My hopes were great .. But it seems that the road is very difficult and full of brambles, I do not know if 'll get to safety or not ...
by sara-sama
Tue Jan 18, 2011 9:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 762708

scorpion wrote:

The beginning of MS?

http://mommy23monkeys.com/wp-content/up ... 140_L4.jpg


Thanks scorpion for a wonderful discovery ....

Unfortunately , it does not benefit me, because my sister has Als .
by sara-sama
Mon Jan 17, 2011 12:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Anyone has boils after angioplasty ?
Replies: 3
Views: 1583

Thanks NotFound
by sara-sama
Sat Jan 15, 2011 1:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Anyone has boils after angioplasty ?
Replies: 3
Views: 1583

Anyone has boils after angioplasty ?

Hi,

Sister has alot of boils , now has a large one in her leg.
when we asked the doctor about the reason did not say anything .

she is taking aspirin Since six months (after angioplasty)
I wonder whether there is a link with boils .. ?

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