This Is MS Multiple Sclerosis Knowledge & Support Community

Hi, my MRI post procedure showed no enhancing lesions, no new lesions and evidence of shrinkage or some. This is including two very active lesions, one a black hole. I have been having six monthly surveillance MRI because of very active disease. The only thing to change was return of decent flow to ...

Thanks Dr S :-D Love reading your posts and on facebook too. I'm wondering if the stent on the left is in another vessel other than LIJ. I say this because in my own case I have a massive collateral vessel that initially was catheterised as it was obstructing the view of my poor hypoplastic vein. It...

Hi Cece, They have seen thickened neck vein walls on ultrasound. It is hypothesised that this is due to inflammation. I know they had a small sample of patients treated - around 60 - before the hospital shut them down. I'm guessing that they saw a pattern in those that restenosed. They were routinel...

Hi, One of our Docs here in Oz is trying to mount a research study aimed at finding the cause and subsequently preventing vein collapse post angio. Will keep my ear to the ground. I believe his theory is that there is an inflammatory and/or infective process leading to CCSVI and ongoing problems. Ch...

Cece wrote:Any interesting cases lately?

I am sure you have more to say about the symposium as well?

Yes please. More input. Absolutely no pressure

Cheers,
Vicki

Ha Ha Made my day!

Cheers,
Vicki

Let's review the VUS near the valve http://farm4.static.flickr.com/3311/5811220437_f1bdf7b4af_z.jpg on the left is a fluoro picture of the IVUS with a blue arrow pointing to the IVUS device. In the middle are two images of the valve. See how the blue arrow corresponds to the IVUS probe.follow the b...

Hi Dr Sclafani, I had venoplasty five weeks ago. I had complete occlusion of my LIJV and moderate RIJV. The left side had multiple collaterals involving vertebral plexus and the EJV. It was stenosed at the mandible and distal end. It was eventually dilated to 10.1mm. The right was stenosed at the d...

Hi Dr Sclafani, I had venoplasty five weeks ago. I had complete occlusion of my LIJV and moderate RIJV. The left side had multiple collaterals involving vertebral plexus and the EJV. It was stenosed at the mandible and distal end. It was eventually dilated to 10.1mm. The right was stenosed at the di...

Dr Sclafani, I too want you to know how valuable your thread is. I don't post much but love soaking up everything there is to learn about this. I just had my first angio four weeks ago and it was reading your thread that convinced me to go for it. Knowledge is power, especially when this damn diseas...

This is one I found a while back from Dr Simka in Poland Summary This paper presents a hypothetical model of role for iron in the development of venous leg ulcers and multiple sclerosis. Elevated concentrations of iron were found in the skin affected by venous hypertension and also in the areas of b...

Hi, Just remembered. My sisters and children are all heterozygote as well and none of them have anything like the levels your family has. There are more genes being discovered and perhaps you have what they call a mixed profile with two different genes. There are several types of genetic hemochromat...

Hi Vicki, My sister and I both inherited just one C282Y gene, so are heterozygotes, my brother is also. HH runs in our family, my mother and a cousin had it. Both my sister and brother have higher iron levels than I ever had. You cannot donate blood once diagnosed with MS in NZ, so no luck there fo...

Hi, I've been lurking and absorbing this great thread while waiting for my lucky number to come up for liberation in Sydney. Unfortunately it came up but was cancelled two months out. My son who is 21 has had symptoms suggestive of MS but not on MRI for a little over six months. He has deteriorated...

Hi, I have haemochromatosis or iron overload disease. I also have MS. Looking back my MS symptoms started about the time the iron started to creep up. Unfortunately my MS didn't go away with normal iron but I think it may have slowed it down as it is only the last few years that it has really fired ...