Search found 20 matches

by Crystwo
Fri Mar 18, 2011 8:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Unexpected change!
Replies: 3
Views: 1637

Fantastic Beth, hope both of our improvements keep improving!!
Crys
by Crystwo
Fri Mar 18, 2011 8:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI or Tysabri??
Replies: 27
Views: 5118

I quit ty in June of 2010 on my own without my neuros ok,( I couldn't make it to the hospital on my own easily enough). I noticed nothing on it or off of it. Ty did nothing for me. Had CCSI procedure done 4 months ago and many things are much better. I'm not reccomending you don't talk with your neu...
by Crystwo
Fri Mar 18, 2011 8:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Unexpected change!
Replies: 3
Views: 1637

Unexpected change!

It's been 4 months since my CCSVI procedure. Just yesterday I noticed that my periphial neuropathy in both legs (mid-thigh down to toes) receded on right leg to about 2 inches above knee and on left to four inches BELOW knee!! YAY. Anyone else have unexpected later changes?
by Crystwo
Wed Jan 19, 2011 7:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: PI still did not supply me with codes for insurance!
Replies: 11
Views: 2807

Glad you finally got the regular codes. I too went to PI but had no stents so can't help you, maybe someone here can give you that code. I would suggest, if you're already not, calling them EVERYDAY and reminding them that you still have not received anything, that your insurance runs out by the end...
by Crystwo
Tue Jan 18, 2011 9:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: (An idiot's guide to) VALVES...?
Replies: 26
Views: 4236

I'm much less knowledgable then many of you however Cece's pictures of malformed valves functioning is pretty much what Dr. Arata (Pac Int) told us about. When he did my procedure the balloon was blown up enough so that I actually HEARD the crunch crunch crumch sound of the valve breaking up (or wha...
by Crystwo
Tue Jan 18, 2011 8:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Physical therapy after ccsvi treatment?
Replies: 10
Views: 2218

Yes, everyone do pt if you are finacially able!! Today, just one day after my 1st session, I am more aware of the muscles used to really balance (not just my toes!). I was able to stand in the shower, wash my hair and tip my head back (!) and not lose my balance because I knew to focus on gluts, ham...
by Crystwo
Mon Jan 17, 2011 10:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Physical therapy after ccsvi treatment?
Replies: 10
Views: 2218

I had the angioplasty 18 days ago. Dr. Arata said to start PT right away though. I just got back from the first session. Interesting excersises. Lay on floor; legs bent and tighten butt and lift off of ground; do 10 times. 2. Lay on ground; legs bent; tighten butt and tummy; pull legs to chest; do 1...
by Crystwo
Mon Jan 17, 2011 8:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Physical therapy after ccsvi treatment?
Replies: 10
Views: 2218

Physical therapy after ccsvi treatment?

I start physical therapy today...anyone else had PT after their procedure? I go 4 days a week, 2 in the pool and 2 in their facility. Doc said that balance is very much a weight bearing and a brain activity, so those of us pretty confined to a wheelchair, our brains forget quickly (with so much iron...
by Crystwo
Mon Jan 17, 2011 7:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My procedure at Pacific Interventionalists with Dr. Harris
Replies: 15
Views: 4340

They charge $8000 no matter what (and it's well worth it!!). Dr. Arata was able to tell that I had CCSVI simply based on the list of symptoms I gave him. A venogram is the most acturate however.
Crys
by Crystwo
Tue Jan 11, 2011 4:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: "whining about neurologists"
Replies: 65
Views: 10194

Maybe they are all afraid of seeing THEIR $ going out the window as each of us takes our business and insurance money to the IR's. I know mine gives idiot answers, responses and threats also. I have tried 4 neuros in my area...they all seem to be about the same. A good one seems awfully hard to find.
by Crystwo
Tue Jan 11, 2011 4:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: insurance question
Replies: 5
Views: 1403

thanks!
by Crystwo
Tue Jan 11, 2011 10:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Anybody had surgery with Dr. Arata--California???
Replies: 84
Views: 21527

Dr. Arata did my CCSVI procedure 12 days ago. I took in a list of all 51 of my symptoms and after reading through the list he said that a preliminary venogram was not necessary...I definately had CSVI. All three veins were 80% messed up. Feeling great since right after procedure til now. Many little...
by Crystwo
Tue Jan 11, 2011 9:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My procedure at Pacific Interventionalists with Dr. Harris
Replies: 15
Views: 4340

I too went to PI and they were great. Mine was 11 days ago and am also seeing some significant (to me) changes. Loved the nurse I had, sorry you drew the crappy one! Physical therapy starts tomorrow for me, maybe that'll help you too. Best wishes for all of us!!
Crys
by Crystwo
Tue Jan 11, 2011 9:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: insurance question
Replies: 5
Views: 1403

insurance question

BCBS wants to know if my treatment was "illness" or "injury"...I know it's not maternity :wink: What do you call a condition?
by Crystwo
Tue Jan 04, 2011 12:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Has insurance paid for anyone?
Replies: 11
Views: 2239

Thanks everyone...Soapdiva, keep trying. Our insurance has been great so far so anticipate them paying. I have heard the the words "MS" should not be mentioned anywhere. We are just having a procedure to clear up malforming valves and restore proper circulation.