Search found 16 matches

by Stoli
Mon Jan 17, 2005 7:41 pm
Forum: Introductions
Topic: Tysabri Bound!
Replies: 4
Views: 2996

when you've read the book let me know what you think. :D
by Stoli
Thu Jan 06, 2005 9:34 pm
Forum: General Discussion
Topic: did you tell everyone?
Replies: 11
Views: 4024

Majority of my friends know. Also my family including 5th cousins twice removed, thanks to my mother. Once my mother found out she used it for her own sympathy ( I had to ask her to stop telling everyone), probably her way of coping. :roll: Anyway my mother's big mouth helped it spread and I still g...
by Stoli
Thu Jan 06, 2005 9:10 pm
Forum: General Discussion
Topic: When is your Birthday
Replies: 25
Views: 7398

June 13 :D

Happy Birthday Xenova
Happy Brthday to you....
Hippray Hippray Hippray :lol:
by Stoli
Thu Jan 06, 2005 9:07 pm
Forum: General Discussion
Topic: Fish oil?
Replies: 21
Views: 6524

they are anti inflammatory and assist with swelling.. It is also a polyunstaurated oil (?) and therefore not hard at room temperature like saturated fats such as butter. :evil: It was once exlained to me that because it isn't hard at room temerature it is very flexble (myelin is made up of fats). Th...
by Stoli
Thu Jan 06, 2005 8:54 pm
Forum: Introductions
Topic: Tysabri Bound!
Replies: 4
Views: 2996

Right leg foot drop ??? - ME TOO 8O I tripped over a couple of times whilst trekking in Nepal in 2000- it steadily got worse and I was dxd in 02. :? I've been on copaxone since. :? On a bad day I can trip over a flat piece of paper! Left leg is just fine - go figure. Tysabri isn't available here yet...
by Stoli
Thu Jan 06, 2005 5:20 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: A LITTLE HELP
Replies: 10
Views: 4151

not sure if this is the correct place to post this :?: went to my neuro yesterday, whilst Tysabri is not available here yet (about 12-18 months away) my neuro told me that whereas the CRABs reduce relapse by 30% Tysabri is 50%, sounds too good to be true ? :roll: You guys will be the guinea pigs bef...
by Stoli
Wed Jan 05, 2005 2:04 pm
Forum: Regimens
Topic: Copax+
Replies: 7
Views: 5232

:mrgreen: Well hello there Karen I am so glad to hear that you are feeling much better, I hope your positive karma rubs off on the rest of us ! After 18months on copax. I seem to be only OK. At first I felt a lot better-but I was also very good with the Swank diet. Now my will power has slipped, my ...
by Stoli
Thu Oct 28, 2004 11:02 pm
Forum: General Discussion
Topic: What make you feel better/worse (short terms)
Replies: 12
Views: 4743

Worse - heat, humidity, alcohol :(
Better - cool and if I knew of anything else I'd be doing it ! :wink:

Take Care
Stoli
by Stoli
Thu Oct 21, 2004 5:10 pm
Forum: Aimspro
Topic: New Aimspro Page
Replies: 3
Views: 9080

Thanks for the update. Lookin' good
Stoli
by Stoli
Thu Oct 21, 2004 5:03 pm
Forum: Exercise and Physical Therapy
Topic: Are You Able To Exercise?
Replies: 39
Views: 28009

I really wish I had the energy to exercise more effectively :oops: I was very keen on Yoga, but my balance isn't much and I find it more frustrating than relaxing and useful. Swimming is about the only exercise I get any use out of. The pool is 30 minute drive away and by the time I get home from wo...
by Stoli
Thu Oct 21, 2004 4:52 pm
Forum: Regimens
Topic: Copax+
Replies: 7
Views: 5232

It took about 2 months for me to notice an improvement; that was abpout 18 months ago and all had been good up to about 3 weeks ago. Feeling like a great big sloth - very fatigued ! Hopefully it will pass quickly !
Good Luck
Stoli
by Stoli
Thu Oct 21, 2004 4:49 pm
Forum: Introductions
Topic: I am a new one...
Replies: 10
Views: 3762

Hi DaisyH

I've been on copaxone for 2 years. Tolerate it OK. Some side effects, such as lipoatrophy, injection site hardness, but nothing too drastic.
I also try and follow the Swank diet, which really seems to help...when I am good at following it !

Stoli
by Stoli
Thu Oct 21, 2004 4:44 pm
Forum: Copaxone
Topic: Cost of Copaxone
Replies: 34
Views: 35413

Cost of Copaxone

A friend of mine in the USA told me she pays about $100 for her copaxone, is this per week or month ? Either way OUCH ! 8O
In Australia we a fortunate for it to be government subsidised and it costs about $17US a month. :D
I was curious to know what we are all paying for this med ? :?:

Stoli
by Stoli
Thu Sep 30, 2004 10:21 pm
Forum: Introductions
Topic: Glad to be 'e'board
Replies: 3
Views: 2745

Glad to be 'e'board

Hi all

Just a little introduction, :D .dxd 02/02, Copaxone with reasonable ability to stick to Swank diet. Fatigue and gait problems among other charming symptoms which I won't go into here.

Glad to be eboard the MS forum !

Cheers
Stoli :roll:
by Stoli
Thu Sep 30, 2004 10:09 pm
Forum: Copaxone
Topic: Copaxone and Lipoatrophy (skin indentations)
Replies: 30
Views: 42703

I also suffer from this problem and I am relieved and disturbed to know that I am not alone. :?: I only have it on my right leg in an area where I haven't injected too often; so I don't think it is from injecting in the same area a lot. I now also get hives, but not in injection areas, generally nea...

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