Search found 39 matches

by packo
Thu Mar 14, 2013 9:55 am
Forum: Stem Cells
Topic: My CtrlAltDel - Status
Replies: 292
Views: 69245

Re: My CtrlAltDel - Status

Good luck, Asher!!
by packo
Mon Jan 28, 2013 2:35 pm
Forum: Stem Cells
Topic: Got it done - Dr. Slavin's Protocol
Replies: 56
Views: 23520

Re: Got it done - Dr. Slavin's Protocol

@Gogo I wrote this once, prior to my arrival in Jerusalem I was on mitoxantrone so Prof. Slavin and Dr. Karussis together with my neurologist (she went with me) concluded that the absence of lesions might be the result of mitoxantrone treatment. As for MSC, back then such a treatment was developed, ...
by packo
Sun Jan 27, 2013 11:15 am
Forum: Stem Cells
Topic: Got it done - Dr. Slavin's Protocol
Replies: 56
Views: 23520

Re: Got it done - Dr. Slavin's Protocol

hey ariehs, good to see you posting again, but sorry to hear that the MSC's didn't work for longer... I think that pretty much everyone who frequents the stem cell threads here are looking into HSCT as a way to permanently stop their ms. It's a bummer to hear that Slavin has acted like that, as I w...
by packo
Tue Oct 09, 2012 1:58 pm
Forum: Stem Cells
Topic: My CtrlAltDel - Status
Replies: 292
Views: 69245

Re: My CtrlAltDel - Status

Come on HUD, if somebody deserves respect, than it is you! You went through something very nasty twice, big big RESPECT! Regarding allo HSCT, first time I met Prof. Slavin (March 2006) he spoke about a person (I think boy) who went through that and apparently was fine back then. Maybe I misunderstoo...
by packo
Sat Sep 29, 2012 9:26 am
Forum: Stem Cells
Topic: My CtrlAltDel - Status
Replies: 292
Views: 69245

Re: My CtrlAltDel - Status

Craig Garisson http://www.mult-sclerosis.org/craigsstory.html one of my inspirations for the HSCT, went through the myeloablative HSCT + TBI (total body irradiation!), and apparently he is doing fine. Our current understanding of the MS does not allow us to answer the question: Why the HSCT works fo...
by packo
Sat Sep 29, 2012 5:18 am
Forum: Stem Cells
Topic: My CtrlAltDel - Status
Replies: 292
Views: 69245

Re: My CtrlAltDel - Status

Hello to all off you, For those who do not know (it has been a while since my last post), I am the guy that did the non-myeloablative HSCT at Hadassah, Jerusalem, in late 2006-early 2007. Back then, Prof. Slavin was still at Hadassah, and CTCI was still in construction. Before the HSCT I was SPMS wi...
by packo
Sun Mar 04, 2012 5:08 am
Forum: Stem Cells
Topic: 2 Years Post HSCT And MS Still Stopped
Replies: 167
Views: 52097

Re: 2 Years Post HSCT And MS Still Stopped

Congratulations!!
by packo
Wed Feb 22, 2012 9:15 am
Forum: Stem Cells
Topic: 2 Years Post HSCT And MS Still Stopped
Replies: 167
Views: 52097

Re: 2 Years Post HSCT And MS Still Stopped

For the non-myeoblative procedure, what is the recovery like? I know that with the myeoblative it is very critical to maintain sanitary conditions since you basically have no immune system after the procedure. It did not take long before I regained my strength, as for immune system, well it took so...
by packo
Wed Feb 22, 2012 8:09 am
Forum: Stem Cells
Topic: 2 Years Post HSCT And MS Still Stopped
Replies: 167
Views: 52097

Re: 2 Years Post HSCT And MS Still Stopped

I am not an expert, but if I would have to apply both myeloablative and non-myeloablative protocols on a various group of individuals, I would go with the myeloablative on those patients with a) RRMS, especially those with very active (inflammatory) disease and low EDSS score and b) those individua...
by packo
Tue Feb 21, 2012 2:59 pm
Forum: Stem Cells
Topic: 2 Years Post HSCT And MS Still Stopped
Replies: 167
Views: 52097

Re: 2 Years Post HSCT And MS Still Stopped

I am not an expert, but if I would have to apply both myeloablative and non-myeloablative protocols on a various group of individuals, I would go with the myeloablative on those patients with a) RRMS, especially those with very active (inflammatory) disease and low EDSS score and b) those individual...
by packo
Sun Feb 12, 2012 9:32 am
Forum: Stem Cells
Topic: Autologous mesenchymal stem cells for secondary prog. MS
Replies: 33
Views: 12137

Re: Autologous mesenchymal stem cells for secondary prog. MS

I do not know all the details, except that this person received one infusion in Greece, there is a topic on this forum describing similar experiences:

http://www.thisisms.com/forum/stem-cell ... c9388.html
by packo
Sun Feb 12, 2012 6:13 am
Forum: Stem Cells
Topic: Autologous mesenchymal stem cells for secondary prog. MS
Replies: 33
Views: 12137

Re: Autologous mesenchymal stem cells for secondary prog. MS

I posted this before, apparently it worked for some people: http://www.chron.com/news/houston-texas/article/MS-patients-going-abroad-to-find-help-from-1688266.php#page-2 http://www.ctv.ca/CTVNews/Health/20081116/ms_treatment_081116/ However, I also spoke with a person who received MSC infusion few y...
by packo
Sat Feb 11, 2012 12:25 pm
Forum: Stem Cells
Topic: Autologous mesenchymal stem cells for secondary prog. MS
Replies: 33
Views: 12137

Re: Autologous mesenchymal stem cells for secondary prog. MS

Few weeks ago I contacted Prof. Slavin, he let me know that the CTCI team is now able to (in the laboratory) trans-differentiate bone marrow and adipose tissue derived mesenchymal stromal stem cells (MSC) to neural stem cells, motor neurons, dopaminergic neurons, astrocytes and oligodendrocytes that...
by packo
Sat Jan 21, 2012 5:42 am
Forum: Stem Cells
Topic: HSCT in Belgium?
Replies: 2
Views: 3429

HSCT in Belgium?

Ten days ago I found this: http://www.msmusings.com/archive40/41/Real,%20NewestWriter.htm http://www.msmusings.com/archive2/52/Real,%20stem%20cell%20transplant.htm It appears that this guy (upon trying everything) did the myeloablative HSCT in 2004 in Brugge Belgium on a private basis, and was also ...

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