This Is MS Multiple Sclerosis Knowledge & Support Community

tilt, did you have heat intolerance prior to your procedure?
do you have it now?

I am not in agreement in any way shape or form with the FDA but drs doing angios and not collecting data for follow up is irresponsible and is a big part of the turf war as best ad speaks. Patient reported results is a joke and is not furthering our fight. Without actual substantiated procedural fol...

dont try to figure it out. this disease (ms) is a mind fu#$%^!

its like the size of a hockey puck in my skin near the abdomen, with a catheter that drips into the lumbar area....medtronic mfg...

No offense but r u in politics? That was about as vague and hypothetical as my senator

Have u treated or can u see a problem with treating a pwms who has a baclofen pump?

You basically asked people with higher EDSS scores only to answer 2 questions, one of which doesnt relate to EDSS, and those who could answer specifically to the issue of heat intolerance, to not answer unless they had a high enough score, regardless of their improvements, even though the score and...

id like my neuro to get in my body for one day....

just keep poisoning us...dont try to figure out whats going on...just keep the poison train coming...

You basically asked people with higher EDSS scores only to answer 2 questions, one of which doesnt relate to EDSS, and those who could answer specifically to the issue of heat intolerance, to not answer unless they had a high enough score, regardless of their improvements, even though the score and...

thanks one eye. glad for you. discouraged that the post isnt flashing with multiple improvement reports..

All, battling ms 4 years. Not walking. Horrible spasticity and horrendous heat intoleance. Lots of finger and feet numbness. Has anyone that has had the procedure found lasting improvemnts in these areas? Please those of you with 0 and 1 etc on the edss need not reply...i want to hear from some peop...

No offense but wheres the tradeoff? Watching yourself deteriorate or taking a drug that may kill you. Same diff

Spasticity is my nemesis. Its controlling me. Baclofen seems to be doing nothing. Has anyone been in this boat and then improved once starting Tysabri? I am considereing the medication. Tried the injection but keep progressing. Currently PPMS.

glad you caught it 1eye!!!!!

waive/wāv/Verb
1. Refrain from insisting on or using (a right or claim): "waive all rights to the money".