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I am sorry to hear that, SandyK. Have you talked to the doctor who did your procedure? I'd hope he'd get you back in for a follow-up ultrasound to see if there were any changes in the flow for the worse that could be causing the problems. You might also talk to your neurologist, if there's anything...

Thank you everyone for your posts. To answer Cece the second procedure was done a little over two months since the first one. I do not have any issues with clots and take a baby aspirin daily. Have also been on .3mg LDN since October. Will try and be patient about seeing results from this procedure....

Thanks to everyone for responding. To answer Cece it was slightly over two months from when I had first procedure done. I do no have any clotting and I take a baby aspirin daily. The only other medication I take is .3 mg of LDN since last October. I will try and be patient to see if the Azagos openi...

Thank you Cece, Well I had the second procedure done this past week. My RJV which was originally 60 -70% blocked is now unable to be opened. My LJV was still normal and they were able to open and get more blood flow In the Azagos. No immediate relief. I feel as though I continue to get worse. I am t...

Pklittle, Thank you for your response. It sounds like we have a very similar situation. Scince I have been going downhill for less than a year I keep hoping that things will improve. I too rely on a walker and would like to get back to not needing it. My worst current symptom is the weakness through...

Hi John

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pklittle, I am sorry you have had no positive results from the CCSVI procedure. I had it done on 3 January only my left jugular was ballooned. Felt a little better a day or two afterwords but since then have gone downhill. I was walking with a cane the day I had the procedure now I can barely walk w...

Hi, My name is Jo and I joined today. I was diagnosed with MS in 1989 and had one bad relapse the following Summer. Took decreasing doses of prednisone and the symptoms of a numb non functioning right arm were gone by September never to return. Until last year. I began having new symptoms in March 2...