This Is MS Multiple Sclerosis Knowledge & Support Community

The protocol was 5 days of steroid infusions with 3 days of Campath infusions beginning on the third day. I can't remember the dose but I'm fairly sure I've mentioned it in previous posts if you wish to look. This was repeated a year later. As far as efficacy goes, I have no reason to dispute the qu...

I'm doing well thanks Cure, all work and no play but that's life. Physically I've been absolutely stable, no hint of relapses. Hi Lyon, nice to hear from you. I don't come here often these days. MS isn't a defining factor in my life anymore and this site isn't what it used to be. Proponents of one p...

You feel qualified to advise others on medical treatment, do you have a medical qualification? No, didn't think so. I went from 3-4 relapses a year to none in 7 years as a result of this 'poison' (Which unlike CCSVI has gone through rigorous testing). If you feel CCSVI has helped you I'm happy. If C...

Good for you!

However, I advise you to give up (let me say more plainly, MS you can F*ck off) and move on as I have no intention of giving up any time soon.

The lines from the Dylan Thomas poem that I use for my signature say it all for me.

Keep fighting and do not go gentle.

Robin

Shucks,

I was treated with Campath 1H as part of the CAMMS223 clinical trial. You can find all of my posts about my treatment in the Campath forum.

Good luck with your search.

Robin

There's something I've been meaning to say for a while but never got around to. I am very happy to talk about my experience with MS, my treatment and subsequent outcome. However there is a huge caveat that sits alongside that. I have always made clear that my experience is purely anecdotal, I am per...

Hey Lyon, Count me in for your merry band ( Heck I thought a Zamboni was something you flattened an ice rink with :wink: ) I think there's some confusion between HSCT and stem cell treatment. HSCT is an extreme reboot of the immune system. Stem cell treatments as far as they go appear to be aiming t...

Hi looking,

I've been stable for 6 years (first treatment April 2005) The earliest that I know of is David Stuart who posts his story here: http://www.mult-sclerosis.org/DavidsStory.html . He is approaching the 10 year mark.

Regards
Robin

I'm good, thanks. Trying to balance an extremely demanding job with a home life which in a way is testament in itself to the treatment. I'm glad you got in early, It was 5 years after diagnosis before my first treatment and I still have residual defects which perhaps, had I been treated earlier, may...

The most successful Campath recipients appear to be those with early stage aggressive RRMS it appears to be less or, non-effective for SPMS / PPMS.

HTH

Robin

Cure, I must admit I haven't been practising. It's strange but MS has been relegated to history for me. I still have deficits, which I can deal with day to day, they do not stop me living a full life and working way too hard than is probably good for me. I'm sorry to all those asking for updates fro...

Hi Leetz I'm an old Campath lab rat (nearly 4 years in) I don't visit this site as often as I should. I'm too busy holding down a stressful job which I am sure that without Campath I would not have been able to do. As others have said it is all about stopping progression, any improvement is a happy ...

Rich Sorry, I am aware of HSCT and the advances in stem cell treatments. I was not referring to those. There was a scam running in the UK where people went to Amsterdam to be injected with stem cells on a wholly unsupervised basis. A couple in South Africa got very rich whilst desperate people lost ...

I usually don't get involved in discussions like this. If you feel that a particular treatment is working for you then who is anyone to say whether you are right or wrong. However there is a huge difference between saying "this has worked for me" and saying "this will work for you&quo...

Hi Queenie I'm glad you feel well after the treatment. As far as re-treatment goes I believe after the second infusion they will respond based upon need. If you show no signs of disease activity there is no need to retreat with what is let's face it, a pretty serious drug. I gues us old timers don't...