Search found 309 matches
- Thu Apr 07, 2011 2:12 pm
- Forum: General Discussion
- Topic: For those who are PPMS/SPMS (poll)
- Replies: 11
- Views: 3144
Hi I agree with Sandra, the last 5 years have been a slow and steady decline in ability. Walking is more difficult, writing, cutting food, reading, etc. My first realization of MS can be traced back to 1993 and I would have considered myself to have had benign MS at that point, or if I had been diag...
- Thu Apr 07, 2011 7:17 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Completely Blocked RIJV
- Replies: 48
- Views: 10756
My IR has just gotten back to me and he says to stay the course, he doesn't believe it is thrombus (sp?) The plan is to continue with the aspirin, but I am also going to see a Naturopath to help me sort out the vitamin/enzyme regime I should be following. As I read about the side effects of some of ...
- Mon Apr 04, 2011 6:57 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Completely Blocked RIJV
- Replies: 48
- Views: 10756
Thank you Cheerleader I had read one of your posts prior to having the U/S and ordered Dr.Cooke's book, I am just waiting for it to be delivered. The last couple of months have been one eye opener after another about diet and how it can impact veins. Staying hydrated has been fairly easy, I think fo...
- Mon Apr 04, 2011 5:27 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Completely Blocked RIJV
- Replies: 48
- Views: 10756
Hi Dr.Sclafni Your comments are very much appreciated. I was on aspirin and plavix for 30 days, the balloon was 16mm x 40 mm and there were several prolonged dilations with the waist resolving at 22 atmospheres. There was a very loud pop heard by many in the room and my IR did go back to look to mak...
- Sun Apr 03, 2011 12:09 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Completely Blocked RIJV
- Replies: 48
- Views: 10756
Vivavie, you are so right, when it works it's like being the pre-MS person and when it doesn't it's a bitch. Although, I would probably use much worse words right about now. I have read some of your comments (you have had a few procedures I think?) and I am sorry that you have gone through this more...
- Sun Apr 03, 2011 9:50 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Completely Blocked RIJV
- Replies: 48
- Views: 10756
- Sun Apr 03, 2011 5:50 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Completely Blocked RIJV
- Replies: 48
- Views: 10756
Hi Wpggirl and everyone I should apologize, I kind of barged in on your question. Thank you for going in this direction. Your ability to share your fears and concerns makes it that much easier to deal with them. MS has forced me to face some issues that most other people never have to think about. F...
- Sat Apr 02, 2011 8:17 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Completely Blocked RIJV
- Replies: 48
- Views: 10756
Hi I had the procedure done in Minneapolis, my IR used a 16mm balloon. But it took several prolonged dilations and then the restriction popped. And it really popped, almost everyone in the room heard it. Apparently the RIJV has great flow. In a moment of panic I thought the RIJV might close from the...
- Sat Apr 02, 2011 1:31 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Completely Blocked RIJV
- Replies: 48
- Views: 10756
Hi I am new to posting (I have been a lurker) and want to say thank you to all of the posters, so much information has been provided. To all who have not had ideal results I am sorry that any of us has to go through this process. I just went for a one month follow-up U/S so I would be on top of any ...