Search found 40 matches

by LymeNurse
Wed May 04, 2011 3:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 24 Hours Post CCSVI, I feel Horrible ! Please Comment
Replies: 26
Views: 6177

Still feel like Crap today.. Anxiety has been topped out and emotions are all over the place. . I hope this is just a healing crisis. It is not a true Flu. Lyme patients treat and kill Lyme. If you have CCSVI and Lyme, then Toxins can get trapped in the brain. Should be no different then Dr. Z's fin...
by LymeNurse
Tue May 03, 2011 5:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 24 Hours Post CCSVI, I feel Horrible ! Please Comment
Replies: 26
Views: 6177

Suppose to have 24 hr. f/u with Dr. Today, where he will US the neck. Will report back. There is no question, that this is a Herxheimer reaction. I've ridden it before, and it is God awful terrible. It will take days to get better, but it will, that, I am sure of... For now, it's alot of feeling sic...
by LymeNurse
Tue May 03, 2011 4:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 24 Hours Post CCSVI, I feel Horrible ! Please Comment
Replies: 26
Views: 6177

24 Hours Post CCSVI, I feel Horrible ! Please Comment

I was 90% Stenosed in the Left I J and 60% in the Rigth. Azygos was also Angioplastied. No stents. I know some of what I feel is normal i.e. pain at the groin site, soreness in the Azygos area, soreness in my neck. But let me tell you guys, what I'm feeling today is very similar to what I feel when ...
by LymeNurse
Tue Apr 26, 2011 6:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I have Lyme, not MS, yet I have CCSVI. My Video pics Inside
Replies: 33
Views: 7400

@Daytrader, Your the perfect person to ask about blood thinners. Are you on any. Have you looked into Boluoke ? I won't repost what I wrote in the other thread I started about Antifibrinolytics, but I'd be working real close with a Dr. to address this issue. I use to place PICC lines for a living. I...
by LymeNurse
Tue Apr 26, 2011 11:59 am
Forum: General Discussion
Topic: Who has Vitiligo with their MS ? I have it with my Lyme
Replies: 7
Views: 5693

Who has Vitiligo with their MS ? I have it with my Lyme

Interesting as I was doing some research today and found many links that link MS and Vitiligo together as both being Autoimmune. I've been trying to make this connection between chronic illness and Lyme for the longest time as the symptoms overlap so much. So, in my case, the Vitiligo is cause by ei...
by LymeNurse
Tue Apr 26, 2011 11:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Could existing Hemolytic conditions be the Missing Link ?
Replies: 1
Views: 1936

A little more info as this pertains to Hypercoagulation and Chronic Illnes so not to be Lyme biased: Hypercoagulation means thickened blood. Research from the late 1990s reveals that many patients with chronic disease may have an underlying coagulation defect contributing to their symptoms. While fe...
by LymeNurse
Tue Apr 26, 2011 10:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Could existing Hemolytic conditions be the Missing Link ?
Replies: 1
Views: 1936

Could existing Hemolytic conditions be the Missing Link ?

Here is food for thought folks: ok, so I always premise my posts that I have Neuro Lyme disease, am an RN, and have CCSVI, scheduled for Liberation on 5/2/11. I'm researching my behind off to see what I can do for myself Post-op to avoid Restenosis, Hemolysis, etc. Hemolysis is found in 90% or more ...
by LymeNurse
Tue Apr 26, 2011 4:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I have Lyme, not MS, yet I have CCSVI. My Video pics Inside
Replies: 33
Views: 7400

@Liberation, With Re: to Lyme, people will suffer so long as there is no research for Lyme. The Infectious Disease Society of Americas position is that there is no such thing as Chronic Lyme. Therefore, there will be no research until this position changes. I interviewed Dr. Willy Burgdorfer not lon...
by LymeNurse
Mon Apr 25, 2011 2:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I have Lyme, not MS, yet I have CCSVI. My Video pics Inside
Replies: 33
Views: 7400

I assume your having Therapeutic Phlebotomy in your home every so often to treat this. The brown marks can be the iron coming to the skin surface. I'm sure you know this already. < shortened url > The above article mentions New Zealand for Lyme. I found that on a quick google search. I assure you it...
by LymeNurse
Mon Apr 25, 2011 9:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I have Lyme, not MS, yet I have CCSVI. My Video pics Inside
Replies: 33
Views: 7400

The problem is that is doesn't matter whether it is Lyme or not b/c it is so difficult to eradicate. Until science does their job, much of this will just be theory. I can't prove anything. I only know that I have severe Herxheimer reactions when I try and treat my case. The Herxheimer reaction was f...
by LymeNurse
Mon Apr 25, 2011 9:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I have Lyme, not MS, yet I have CCSVI. My Video pics Inside
Replies: 33
Views: 7400

Re: Lyme , MS related to Pre-existing Major Stress in Life

I put the poll up in the thread to confirm what I already knew. It is well accepted that Stress can bring on both disease and illness. I have ran this poll on several Lyme sites and I always get over 90% for the Stress preceding the Lyme diagnosis. Lyme is everywhere. Perhaps if you lived on the moo...
by LymeNurse
Mon Apr 25, 2011 8:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I will be using Anti Fibrinogin Agent Post Procedure,Boluoke
Replies: 6
Views: 2858

Every patient with Lyme does Herx, however when it is a consistent Herx with no let up, then there is something wrong. My Lyme Dr. has called them Brain Herx's. If my right arm fell off, he would call it a Herx. I love the guy, but he tends to throw words and theories around. I however, being the pa...
by LymeNurse
Mon Apr 25, 2011 7:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I will have my Valves Crushed, anyone ever have this ?
Replies: 14
Views: 2358

DrCumming,

So what is the answer. When you use IVUS, then what ? How would you recommend the procedure be performed ?

I want this done the best it can be done.

Thank you from my heart for your input.

Best,

Gary
by LymeNurse
Mon Apr 25, 2011 7:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I will be using Anti Fibrinogin Agent Post Procedure,Boluoke
Replies: 6
Views: 2858

@Selmahope , do you have CCSVI. What you call Autoimmune attacks appear to be Toxins being killed off from these Abx tx's you have done. When you have Lyme and CCSVI, those Toxins just can't get out and I think that is why I personally have felt worse and forced to hold treatment until Liberation on...
by LymeNurse
Sun Apr 24, 2011 4:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I started a Live Chat Room for CCSVI .Link Inside
Replies: 1
Views: 1591

I started a Live Chat Room for CCSVI .Link Inside

Please note, I am not in any type of competition with this site and I will continue to post here. I created a live chat room today for anyone who wants to just chat Re: CCSVI .It's great software and you can share files with one another, etc. This Forum is awesome, but I just thought this would be a...

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