Search found 40 matches

by LymeNurse
Sun Apr 24, 2011 10:13 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I have Lyme, not MS, yet I have CCSVI. My Video pics Inside
Replies: 33
Views: 7400

Re: Lyme disease is Pandemic

Just Google it and you will see..... http://www.google.com/search?q=lyme+disease+pandemic&ie=utf-8&oe=utf-8&aq=t&rls=org.mozilla:en-US:official&client=firefox-a The above link will show you links to how this is Pandemic http://www.google.com/search?q=lyme+disease+new+zealand&ie=utf-8&oe=utf-8&aq=t&r...
by LymeNurse
Sun Apr 24, 2011 7:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I will have my Valves Crushed, anyone ever have this ?
Replies: 14
Views: 2358

How sick am I ? What am I looking for ?

My symptoms have been progressive over the last 4 years, but I never felt sick until about 2 years ago. I wake up every morning shaking in my sleep. Feels like my brain is shaking. Even with coffee, I can't seem to wake up. I ache all over from the head down. Pain I can take, but when it's in the he...
by LymeNurse
Sun Apr 24, 2011 7:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I have Lyme, not MS, yet I have CCSVI. My Video pics Inside
Replies: 33
Views: 7400

@Cece I don't understand your response. What I propose to everyone here that these Neurological diseases, call them what you want, are nothing more then Lyme disease presenting a bit different in each patient. No one truly understands right now as to the why it is making us all so sick. The testing ...
by LymeNurse
Sat Apr 23, 2011 10:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I will be using Anti Fibrinogin Agent Post Procedure,Boluoke
Replies: 6
Views: 2858

I will be using Anti Fibrinogin Agent Post Procedure,Boluoke

http://www.drcharlescrist.com/hypercoagulation.htm If you have MS, read on as you might want to look into this ! The above article Studied 900 Patients. Results showed 90% of Lyme patients have Hypercoagulation compared to 5% of the General Population. FYI, there are many more articles like the abo...
by LymeNurse
Sat Apr 23, 2011 9:51 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I will have my Valves Crushed, anyone ever have this ?
Replies: 14
Views: 2358

I will have my Valves Crushed, anyone ever have this ?

Had extensive talk with my IR. As I reported earlier, I was first MRV patient at imaging center and they screwed up on my Azygos pics., so we won't see those problems until 5/2, procedure day. However, when I asked about Cutting Valves vs. Ballooning, my IR says he can "Crush" them and he can actual...
by LymeNurse
Sat Apr 23, 2011 1:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I have Lyme, not MS, yet I have CCSVI. My Video pics Inside
Replies: 33
Views: 7400

I have Lyme, not MS, yet I have CCSVI. My Video pics Inside

Please spread the word on this folks... This is not just MS. I now know 5 Lyme patients with this and have all underwent successful CCSVI treatment. A few have restenosed, but they did not go after the Valves from what I hear. Test anyone with Acquired Neuro Problems labels with whatever the Neuro Q...
by LymeNurse
Sun Apr 17, 2011 1:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I have more then CCSVI .Just got MRV Report, Pretty Scared
Replies: 9
Views: 2472

Spoke with my IR

He agrees with drsclafani and a few others who posted similar. He says try not to be too concerned and let him do the angioplasty and go from there. He said if it is a clot, then perhaps a Thrombectomy or Coumadin... I didn't ask the question whether or not TPA was an option if they do find it. To B...
by LymeNurse
Sat Apr 16, 2011 4:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I have more then CCSVI .Just got MRV Report, Pretty Scared
Replies: 9
Views: 2472

Here is a picture and Thanks for your Replies

Doesn't look like I'm in immanent danger and I saw an MS patient on that Forum post that she too had this...

I guess I have to wait for Liberation day and see what happens.

Image
http://img88.imageshack.us/i/88873070.jpg/
by LymeNurse
Sat Apr 16, 2011 3:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I have more then CCSVI .Just got MRV Report, Pretty Scared
Replies: 9
Views: 2472

I have more then CCSVI .Just got MRV Report, Pretty Scared

The report notes Moderate Stenosis on the Left Internal Jugular. The tech messed up and the Azygos can't be seen. The Right IJ is Normal. However, Above the IJ on that right hand side, there is a blood clot in my entire Left Transverse Sinus and almost 2cm into the Right Transverse Sinus. These Sinu...
by LymeNurse
Sat Apr 16, 2011 9:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can I get some Layman comments on my MRV Photos Inside ?
Replies: 2
Views: 1288

Can I get some Layman comments on my MRV Photos Inside ?

Hey everyone.. I don't have MS, but Chronic Neuro Lyme disease or so I've been treating for over 2 years. My symptoms are all in the head. Off balance like I'm on a boat without vertigo, head pain, head pressure, brain fog, word retrieval problems, Postural Tachycardia, Plugged in sensation like an ...

Go to advanced search