Search found 96 matches

by Azaeleaprawn
Wed Sep 12, 2012 12:25 pm
Forum: General Discussion
Topic: Today I celebrate 1 yr anniversary of SPMS Dx w vertigo
Replies: 0
Views: 664

Today I celebrate 1 yr anniversary of SPMS Dx w vertigo

Any help suggestions on what to do for vertigo? I have no primary care provider but when I did have one and asked what to do for vertigo many years ago I was told to sit on my bed and lie back hard onto the mattress several times to dislodge crytals in my ears. Not sure if it worked but it made me f...
by Azaeleaprawn
Tue Sep 11, 2012 9:52 pm
Forum: MS in the Golden Years
Topic: Sept 12 - my one year anniversary of SPMS diagnosis
Replies: 0
Views: 4679

Sept 12 - my one year anniversary of SPMS diagnosis

:sad: Tomorrow is one year to the date that I was diagnosed with SPMS - I'm still without a primary care provider so it's been a year of hell going to walk in clinics and not knowing where to go or what to do for advice other than online forums. Where I live in Canada primary care physicians are sca...
by Azaeleaprawn
Tue Aug 21, 2012 6:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 'How Does Your Neurologist Talk About CCSVI?'
Replies: 4
Views: 1530

Re: 'How Does Your Neurologist Talk About CCSVI?'

I howled when I saw this post as it took me back to when I asked my neuro (one of the top MS neuros in BC) about CCSVI.
He said quite simply "CCSVI is a cash grab"
I decided then and there that I wouldn't be asking him any other questions as he also told me marijuana will just rot my brain.
by Azaeleaprawn
Fri May 25, 2012 2:24 pm
Forum: Sativex
Topic: Progress on new cannabis based treatment for MS patients
Replies: 11
Views: 3669

Re: Progress on new cannabis based treatment for MS patients

MS clinic neuros are among the most conservative neuros on earth. They often wear very larg blindfolds which inhibits their thinking. What you have to find is a neuro who is involved with a pain clinic like we did in London, Canada. This guy actually researched MJ and pain and prescribed Sativex fo...
by Azaeleaprawn
Fri May 25, 2012 2:07 pm
Forum: Medical Marijuana
Topic: Cannabis relieves some Multiple Sclerosis symptoms - study
Replies: 15
Views: 5628

Re: Cannabis relieves some Multiple Sclerosis symptoms - stu

I'm with "shaight" Just legalize it already! It's available here in Canada with a doctor's prescription (but there's the fun of finging a GP who is willing) and then a lengthy dance with Health Canada and the RCMP . It takes eight to ten weeks someties more for the paperwork to be filed and screened...
by Azaeleaprawn
Tue May 01, 2012 3:47 pm
Forum: General Discussion
Topic: Changing diet - Beneficial or Not??
Replies: 7
Views: 1784

Re: Changing diet - Beneficial or Not??

I was diagnosed last September at age 61 with secondary progressive and have tried maintain a healthy diet since but not anything paticularly exclusionary like a Best Bet diet as well as taking supplements. In the past 8 months I haven't noticed my condition to be any worse than when I was diagnosed...
by Azaeleaprawn
Wed Mar 21, 2012 6:17 pm
Forum: Gilenya
Topic: Scottish MS Society will challenge Gilenya decision
Replies: 1
Views: 1843

Re: Scottish MS Society will challenge Gilenya decision

Good on them - this drug kills.
by Azaeleaprawn
Wed Mar 21, 2012 6:15 pm
Forum: Copaxone
Topic: Copaxone slapped by FDA
Replies: 5
Views: 4370

Re: Copanone slapped by FDA

claims misleadingly broaden the indication and overstate the efficacy of Copaxone by implying that Copaxone reverses patients’ disability and enables them to lead an active lifestyle, return to work, accomplish great athletic feats, and “live the life they’ve dreamed. This type of claim is purely e...
by Azaeleaprawn
Wed Mar 21, 2012 6:06 pm
Forum: Medical Marijuana
Topic: Using Medical Marijuana
Replies: 28
Views: 12389

Re: Using Medical Marijuana

I'm about half way there to being allowed to legally possess MM in Canada.
The big hurdle was finding a GP willing to fill out the health canada forms and with that done the rest appears tp be relativley straight forward.
All this spells relief for me and reliable from pain, insomnia and spasticity.
by Azaeleaprawn
Wed Mar 21, 2012 6:01 pm
Forum: Sativex
Topic: My Doctor's Opinion
Replies: 19
Views: 13461

Re: My Doctor's Opinion

Got it!
CHMM forms filled out & signed by GP now all to do is get DG to fill out their part, submit the whole thing & I'm good to go.
So it is doable - just requires persistence.
by Azaeleaprawn
Tue Mar 20, 2012 2:58 pm
Forum: General Discussion
Topic: New Online Resource Helps MS Patients Manage Mobility
Replies: 0
Views: 1133

New Online Resource Helps MS Patients Manage Mobility

MobilityMattersinMS.ca is the First Canadian Website Dedicated to Mobility Impairment in MS

It's all very nice, fine & helpful but they're acting & talking like this is all new stuff...I don't get it!
by Azaeleaprawn
Tue Mar 20, 2012 1:38 pm
Forum: General Discussion
Topic: just curious--how many of you get or used to get cold sores?
Replies: 31
Views: 3169

Re: just curious--how many of you get or used to get cold so

Did anyone's parents have cold sores too?
Yes my mom got cold sores and shingles as well and I wonder about MS as she had some rather curious symptoms that appeared late in life but these were really overlooked as she was battling breast cancer then and that was really front & centre.
by Azaeleaprawn
Tue Mar 20, 2012 5:18 am
Forum: General Discussion
Topic: just curious--how many of you get or used to get cold sores?
Replies: 31
Views: 3169

Re: just curious--how many of you get or used to get cold so

Oh yes I used to get cold sores (massive ones)for about 30 years and just in the past few years they've stopped and I had chicken pox and I've also gotten shingles......Hmmm the herpes plot thickens.
by Azaeleaprawn
Tue Mar 20, 2012 5:10 am
Forum: Sativex
Topic: My Doctor's Opinion
Replies: 19
Views: 13461

Re: My Doctor's Opinion

Cannabis4MSinBC I wonder what that neuro would say if a patient suggested they were going to drink poppy head tea as a method of pain management, sipping those steamy opiates rather than popping a condensed pill. Exactly! Similar thoughts occurred to me as that neuro ranted on about brain rot but I ...
by Azaeleaprawn
Tue Mar 20, 2012 4:50 am
Forum: Sativex
Topic: My Doctor's Opinion
Replies: 19
Views: 13461

Re: My Doctor's Opinion

Cannabis4MSinBC Most likely that they're just afraid to alienate the pharmaceutical companies that pay them off so well. What else would have intelligent people burying their heads in the sand? Have you looked into this referral service at these sites: (http://www.medicalmarijuana.ca/for-patients/ap...

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