Search found 176 matches

by MarkLavelle
Tue Aug 28, 2012 11:57 am
Forum: General Discussion
Topic: Sports with spinal lesion?
Replies: 10
Views: 1934

Re: Sports with spinal lesion?

I was curious if anyone has any experience with spinal lesions and sports. I currently play Ice hockey (non-checking so no hitting), and my neuro has told me to stay off skates until I start the meds. I can't get a clear answer as to why. Is a lesion the same as a spinal injury, where a fall can ma...
by MarkLavelle
Fri Aug 24, 2012 7:11 am
Forum: General Discussion
Topic: another ccsvi study finds no link
Replies: 10
Views: 1701

Re: another ccsvi study finds no link

Recently there has been focus on the grey matter where some researchers feel the real secret to MS hides. Fix the problem in the grey matter and possibly fix the MS. Yet the trials and studies continue to be about the white matter and the docs, trying to attack other docs work, continue to center o...
by MarkLavelle
Sun Aug 19, 2012 8:03 am
Forum: General Discussion
Topic: Lhermitte's sign. Is it a relapse?
Replies: 7
Views: 4727

Re: Lhermitte's sign. Is it a relapse?

euphoniaa has a very good point, even if she didn't put it this way: the radiologist's written report is what you should be looking at. The MRI itself is pretty much useless without the report or the training needed to properly interpret the pictures (thus, the specialty of radiology). Even the writ...
by MarkLavelle
Sat Aug 18, 2012 11:55 am
Forum: General Discussion
Topic: MS????
Replies: 5
Views: 1019

Re: MS????

I want all info I can get so I can bring this up to the Neuro. The only info you need to bring to the neuro is a detailed list of your symptoms (including when you first felt each symptom and any changes/events that trigger the symptoms) and copies of any MRI reports, blood tests, etc. that you've ...
by MarkLavelle
Thu Aug 16, 2012 2:56 pm
Forum: General Discussion
Topic: MS Specialist or Neurologist?
Replies: 3
Views: 1158

Re: MS Specialist or Neurologist?

Yep! That's the kind of place you want to check out: http://www.nationalmssociety.org/chapters/oke/programs--services/ms-center-of-oklahoma/index.aspx Maybe someone here already goes there? I've been in the SF Bay area since '84 (San Mateo since '93), and I consider myself very fortunate. Stanford i...
by MarkLavelle
Thu Aug 16, 2012 1:02 pm
Forum: General Discussion
Topic: MS Specialist or Neurologist?
Replies: 3
Views: 1158

Re: MS Specialist or Neurologist?

Welcome! I started with a general neuro who was OK, but after getting a 2nd opinion (twice! he was eager to dx me :roll:) from the Stanford U. MS clinic I switched to the neuro I saw there. I like that they're up on of the latest research and I can call, email or see the NP between appointments and ...
by MarkLavelle
Thu Aug 16, 2012 9:25 am
Forum: Copaxone
Topic: Why not butt area for injection?
Replies: 6
Views: 5039

Re: Why not butt area for injection?

I keep track of injection sites by writing dates on copies of the SS 'map', but I've also been using an Android app (phone or tablet) called MedNotesPlus. It's easy and quick, and you can also use it for med- and symptom-tracking notes. I'm probably going to quit the paper tracking soon.... https://...
by MarkLavelle
Tue Aug 14, 2012 10:43 am
Forum: Introductions
Topic: lesions
Replies: 3
Views: 1077

Re: lesions

I have a 9-11mm lesion in my C-spine (C2, I think) that is apparently responsible for my whole-skin paresthesia. I've never even imagined I could 'feel' the lesion in any way. The way you talk about it makes me think you ought to see a physiatrist to make sure you don't also have a musculoskeletal p...
by MarkLavelle
Sat Aug 11, 2012 6:53 am
Forum: Introductions
Topic: Brand New to MS
Replies: 5
Views: 2142

Re: Brand New to MS

Welcome, and sorry you've joined this club, Jen. It's not uncommon to be dazed by the diagnosis for quite a while. [...] She sent me to a neurologist. I wasn't expecting much.. I thought maybe he'd order more tests.. but they did a general exam and he reviewed my MRI, and soon enough he was telling ...
by MarkLavelle
Thu Aug 02, 2012 5:04 pm
Forum: General Discussion
Topic: First time posting, hope someone can help.
Replies: 9
Views: 1296

Re: First time posting, hope someone can help.

An MRI with contrast determines which lesions are "active" (or "new"), but all lesions that are large enough will show up on an MRI, with or without contrast. The only important parts about active lesions are whether steroids can still help (if the exacerbation is serious) and - for dx purposes - wh...
by MarkLavelle
Tue Jul 31, 2012 3:25 pm
Forum: General Discussion
Topic: Ho-hum...another Day, another Dr., another Dx (continued)
Replies: 14
Views: 1937

Re: Ho-hum...another Day, another Dr., another Diagnosis-Pt

euphoniaa,

I've known for years that my purpose in life is to keep doctors busy but obviously I've been slacking, compared to you!

Take a week off, already, will ya? :wink:

Stay as well as possible,
Mark
by MarkLavelle
Sun Jul 22, 2012 9:03 am
Forum: General Discussion
Topic: And this is why we keep suggesting Physiatrists
Replies: 4
Views: 1366

Re: And this is why we keep suggesting Physiatrists

euphoniaa wrote:So…like I always say, “It’s not always MS, it’s not always MS, it’s not always MS.” And, “Why don’t you try a Physiatrist?”
Geez! Talk about a broken record... :wink:

I'm convinced that some of us have been put on this earth just to give doctors something interesting to do. :roll:
by MarkLavelle
Thu Jul 19, 2012 11:27 am
Forum: General Discussion
Topic: Sodium buildup in brain linked to disability in multiple scl
Replies: 11
Views: 1641

Re: Sodium buildup in brain linked to disability in multiple

It doesn't say anything about the sodium building up at the site of the congestion...
by MarkLavelle
Wed Jul 18, 2012 3:40 pm
Forum: General Discussion
Topic: Sodium buildup in brain linked to disability in multiple scl
Replies: 11
Views: 1641

Re: Sodium buildup in brain linked to disability in multiple

HarryZ wrote:Would the sodium build up in the brain be caused by improper circulation...like that involved with CCSVI?
That doesn't make any sense at all. Why would sodium be more likely to build up than any other element dissolved in the blood?
by MarkLavelle
Wed Jul 18, 2012 3:35 pm
Forum: Undiagnosed
Topic: Think I may have MS
Replies: 6
Views: 1622

Re: Think I may have MS

I guess I'm just looking for some reassurance that at least (for the time being) I'm not being irrational that this could be MS. Some or all of your symptoms *could* be from MS (and I agree the pituitary guess sounds pretty unlikely), but MS isn't the only thing that messes with nerves and you shou...