Search found 81 matches

by TeresaL
Wed Feb 10, 2016 7:56 pm
Forum: Drug Pipeline
Topic: Has anyone here had BOTOX injections in the bladder ?
Replies: 27
Views: 17528

Re: Has anyone here had BOTOX injections in the bladder ?

I haven't tried Botox for the bladder but tried Botox for the face about 5 yrs ago. The buried made my legs weaker for about 3 days then went back to normal( my normal). Do other MSers experience the leg weakness after bladder bkrox shots? I have been wearing pads for yrs w detrol. Tried detrol rece...
by TeresaL
Wed Feb 10, 2016 7:23 pm
Forum: Daily Life
Topic: My wife has MS and libido is gone.
Replies: 19
Views: 12286

Re: My wife has MS and libido is gone.

Maybe ck hormones
by TeresaL
Wed Feb 10, 2016 7:05 pm
Forum: Daily Life
Topic: So, what is the most affordable treatment for MS?
Replies: 23
Views: 11874

Re: So, what is the most affordable treatment for MS?

Dr Ciscerio in Brazil, high dose Vitamin D protocol. No side effects
by TeresaL
Mon Feb 08, 2016 1:15 pm
Forum: Coimbra High-Dose Vitamin D Protocol
Topic: Coimbra Protocol Summary
Replies: 76
Views: 79567

Re: Coimbra’s Protocol Summary

I tried LDN yrs ago. Didn't help me. I also have insomnia problem which LDN made worse. So I choose to get off LDN, take oxy for pain and Lunesta for sleep. Love Lunesta! W oxy still not pain free
by TeresaL
Sun Feb 07, 2016 4:37 pm
Forum: Coimbra High-Dose Vitamin D Protocol
Topic: Coimbra Protocol Summary
Replies: 76
Views: 79567

Re: Coimbra’s Protocol Summary

I am following Dr Ciscero's C protocol. Started in 7-1-15. Stopped for 1 mo in 10-1-15 by another doctor....I felt worse so started back know high dose D. I get the blood work every 6 Wks by a local doc to ck my PTH levels. My body is VERY resistance to D. I had Ph consult w Dr Sanja on 9-1-15. It t...
by TeresaL
Mon Jan 25, 2016 7:38 pm
Forum: General Discussion
Topic: MS mimics and bartonella: more attention needed?
Replies: 2
Views: 1001

Re: MS mimics and bartonella: more attention needed?

Yes, Bart/Lyne triggered MS issues doe me. Beg igenex testing NOT lab Corp or quest!
by TeresaL
Mon Jan 25, 2016 7:11 pm
Forum: General Discussion
Topic: How do I buy HSCT treatment?
Replies: 11
Views: 1433

SCT

I went to StemGenex in CA. Used own fat cells. Didn't work for me. I also have Lyne. My friend went to mex for embryo SCT she is still in wheelchair. Didn't help her. If I do it again. Will go to celltex in Houston tx
by TeresaL
Mon Jan 25, 2016 7:06 pm
Forum: General Discussion
Topic: Disappointed
Replies: 8
Views: 826

Re: Disappointed...pain

My MS pain turned out to be Lyme/confection pain. Get ingenex lyme testing nit lab Corp or quest not sensitive enough
by TeresaL
Mon Jan 25, 2016 7:04 pm
Forum: General Discussion
Topic: Disappointed
Replies: 8
Views: 826

Re: Disappointed..pain

When j was dx w MS 26 yrs ago..had a lot of pain legs, etc. the neuro says..huh..normally there is ni pain when MS. Then 10 yrs after found out I had Lyme/co infections. When pain..look at Lyme
by TeresaL
Thu Jan 14, 2016 8:42 pm
Forum: General Discussion
Topic: Copaxone vs eating those 4 amino acids
Replies: 12
Views: 1568

Re: Copaxone vs eating those 4 amino acids

I think injecting the proteins triggers a different immune reaction. Ingesting would break down the proteins. I have been on copaxone for yrs. when I try to stop I get worse so it is helping I inject w/o the auto injector ..less painful for me
by TeresaL
Thu Dec 24, 2015 6:13 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: BG-12 and IC
Replies: 2
Views: 3251

Re: BG-12 and IC

I have taken BG 12 on/off for a couple of yrs. seems like every time I try it I get more bladder infections and more bladder pain/issues. I wasn't dx w IC but have overactive bladder. Does anyone else have more bladder problems w tec/BG 12?
by TeresaL
Tue Dec 22, 2015 8:29 pm
Forum: Coimbra High-Dose Vitamin D Protocol
Topic: My experience with high doses vitamin D
Replies: 24
Views: 24226

Re: My experience with high doses vitamin D

I am trying the high dose D. I had low D levels even though a doc put me in D2 3 yrs ago w/o knowing better! I have tried Lyme treament, SCT, LDI, EAP,tecfidera, Prokarin, BV shots, copaxone. I started D this past July..it took a couple of months to learn that my PTH levels weren't low enough ..then...
by TeresaL
Tue Dec 22, 2015 7:32 pm
Forum: Aimspro
Topic: AIMSPRO THE MIRACLE DRUG I WAS ON
Replies: 3
Views: 11736

Re: AIMSPRO

I am in USA and working w my local doc to try Aimspro. Anyone else in US using this?
by TeresaL
Tue Dec 22, 2015 7:29 pm
Forum: Aimspro
Topic: Coming to America... ?
Replies: 1
Views: 5681

aimsoro

I am working w my local doc wanting to try Aimspro. I live in TX. Anyone in USA trying this?
by TeresaL
Tue Oct 20, 2015 2:11 pm
Forum: Drug Pipeline
Topic: 4-aminopyridine-3-methyl hydroxide
Replies: 22
Views: 14390

Re: 4-aminopyridine-3-methyl hydroxide

I take the 4-AP from a compounding pharmacy, they get ins to pay for it. I take it 2X per day. It helps w walking