Search found 30 matches

by ribeye
Wed Jun 11, 2014 2:55 pm
Forum: Copaxone
Topic: Generics, 40 mg. Copaxone and Teva
Replies: 27
Views: 13737

Re: Generics, 40 mg. Copaxone and Teva

Well, looks like I can't get any form of Copaxone. Insurance seems to be waiting for the generic. Gilenya is my only option now since Tecfidera made me very sick. Maybe this will be a good thing. Or maybe I will just go to LDN. What a great freekin day.
by ribeye
Sat May 31, 2014 6:36 pm
Forum: Copaxone
Topic: Generics, 40 mg. Copaxone and Teva
Replies: 27
Views: 13737

Re: Generics, 40 mg. Copaxone and Teva

I have been waiting for the 40 mg dose but nothing from insurance company yet. Oh, well. I guess 20 mg is the only way to get Copaxone at the moment. I bet the generic is still gonna be thousands of dollars per year. Hurts my head thinking about the cost to patients and even the insurance companies.
by ribeye
Wed May 21, 2014 6:51 am
Forum: General Discussion
Topic: hoping to get function back
Replies: 16
Views: 2180

Re: hoping to get function back

Started the full spectrum vitamin E this week. Surprising energy but hand has no change. Too early I would think.

How long do b12 injection benefits last? Shots are no problem since I have done copaxone.

Also, is the cost very high?

Thanks for all.

Ribeye
by ribeye
Sun May 18, 2014 5:49 pm
Forum: General Discussion
Topic: hoping to get function back
Replies: 16
Views: 2180

Re: hoping to get function back

I have a vitamin E complex that has all of the various essential parts of E. I never took it, and just found it in the cupboard today. Will give it a go for sure. In 2002, my left leg was pretty much normal except for tingling. My neuro at the time did conductivity tests but found no reason to diagn...
by ribeye
Sun May 18, 2014 8:28 am
Forum: General Discussion
Topic: hoping to get function back
Replies: 16
Views: 2180

Re: hoping to get function back

LDN is something I am considering, but I do enjoy going out for beer about once a month. Would this be a really a bad idea with ldn? Hate to lose one more thing I enjoy. I should mention that I do smoke and have actually gained about 40 pounds since my diagnosis. Thanks for helping. I appreciate it ...
by ribeye
Sun May 18, 2014 7:53 am
Forum: General Discussion
Topic: hoping to get function back
Replies: 16
Views: 2180

Re: hoping to get function back

Well, I did not do a thing from my first (undiagnosed) attack in 2001 to the next attack in late 2008. Diagnosed in Feb 2009. I took coq10 and vit d3. Have tried r-ala, nac (migraine auras made me cut back to 250 from 600). Vitamin b complexes just make me feel odd and edgy. Doing inosine and now ma...
by ribeye
Sat May 17, 2014 8:16 pm
Forum: General Discussion
Topic: hoping to get function back
Replies: 16
Views: 2180

hoping to get function back

I hope to get my function back but I was told numbness lasting more than 2 years will not resolve. It has been 5 years since my left hand took the hit. Is there any way this wretched numbness can be helped? Thanks to you all.
by ribeye
Sat May 17, 2014 12:10 pm
Forum: General Discussion
Topic: MS Mice Walk Again – U of Utah
Replies: 12
Views: 1499

Re: MS Mice Walk Again – U of Utah

Wondering if the opposite would be true. Mouse or any mammal stem cells being used in humans. Kinda freeky. But I would sure try about anything.
by ribeye
Sat May 17, 2014 12:03 pm
Forum: General Discussion
Topic: At what age?
Replies: 9
Views: 1056

Re: At what age?

Male, age 37, numbness and loss of coordination in left hand. Some loss of feeling in right hand fingertips. Lesions in brain. One in cervical spine. Left leg went numb with loss of bladder and bowel feeling eight years prior but no diagnosis then. Left hand still numb. Cannot play guitar anymore or...
by ribeye
Tue May 06, 2014 5:46 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Weight gain, new flares from Tec
Replies: 18
Views: 14954

Re: Weight gain, new flares from Tec

My experience with tec was just plain awful. Projectile vomiting was the worst but crushing fatigue came in a close second on the awful list. After only one month on tec my arm and hand numbness came back with a vengance so I had to do a course of predisone. After stopping tec, it took four months t...
by ribeye
Sun Apr 27, 2014 5:20 pm
Forum: Natural Approach
Topic: uric acid
Replies: 159
Views: 60716

Re: uric acid

I take inosine for UA and for the possible neuroprotection. Cost is low so just another way to keep what I have. No gout, but do watch for it.
by ribeye
Fri Mar 21, 2014 2:43 pm
Forum: Regimens
Topic: You don't need to look anymore
Replies: 60
Views: 18107

Re: You don't need to look anymore

Do people have thinner skin if they have ms? Please post a link as I have never heard of this.
by ribeye
Fri Dec 13, 2013 12:40 pm
Forum: General Discussion
Topic: Single Calcitriol Dose Beats Back EAE in Mice
Replies: 17
Views: 2828

Re: Single Calcitriol Dose Beats Back EAE in Mice

Any word on trials? I certainly am up for it. Apparently, I am not deficient in anything by the results of my bloodwork for tecfidera and more bloodwork for a recent bought of terrible food poisoning. It would be so cool to be free of this rotten disease. Good luck to all.
by ribeye
Sat Nov 16, 2013 10:41 am
Forum: Natural Approach
Topic: all things vitamin D
Replies: 1073
Views: 154281

Re: all things vitamin D

Has anyone tried a megadose of calcitriol yet? If I am able to get the go ahead, I will do it. A controlled study would be great but none on my radar so far. Also, what can someone expect to feel when dosed so highly. Is the MTD the absolute limit? Thanks for all of the great info.
by ribeye
Thu Nov 07, 2013 12:34 pm
Forum: Natural Approach
Topic: all things vitamin D
Replies: 1073
Views: 154281

Re: all things vitamin D

Hello, Wondering how the human male dose for calcitriol and d3 regimen can be calculated. 400ng for a mouse would be how much for 100kg man. My GP is interested in this study and is willing to let me try it. He just wants a figure before dosing me. Having a bit of a flare now and not a huge fan of p...

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