Search found 270 matches

by Kronk
Thu Oct 23, 2014 1:01 pm
Forum: General Discussion
Topic: Study shows MS patients benefit from exercise
Replies: 10
Views: 1431

Re: Study shows MS patients benefit from exercise

Love any article about a lifestyle change we can make to positively impact our illness. I am a bit of a gym rat and try to focus on Compound movements when lifting, basically exercises that engage multiple muscle groups as one would think that would engage more of the CNS due to coordination. Exerci...
by Kronk
Thu Oct 23, 2014 12:53 pm
Forum: General Discussion
Topic: Ebola Concerns While on Immunosuppressants?
Replies: 5
Views: 858

Re: Ebola Concerns While on Immunosuppressants?

ElliotB wrote:" I guess the idea of suppressing my immune system freaks me out"
I felt the same way which is why I chose Copaxone which does not suppress the immune system.
Agreed!
by Kronk
Thu Oct 23, 2014 12:51 pm
Forum: General Discussion
Topic: Estimating typical MS disability progression speed.....
Replies: 10
Views: 1809

Re: Estimating typical MS disability progression speed.....

The goal of the study was to see if censoring-bias and analysts’ survival time assumptions affected the progression rates. It was not to determine what the progression rates are. I can only assume the data they are showing is not referring specifically to progression rates, but instead to the subgou...
by Kronk
Sun Oct 12, 2014 8:11 am
Forum: General Discussion
Topic: COULD M.S BEGIN IN THE GUT
Replies: 4
Views: 1160

Re: COULD M.S BEGIN IN THE GUT

Very interesting... there is definitely a connection with the gut in my mind. Apparently 60% of pwMS have low stomach acid. 80% of people with Rheumatoid Arthritis have low acid. And many other "auto-immune" disorders have this issue as well. Low stomach acid is called Hypochlorhydria and the sympto...
by Kronk
Mon Oct 06, 2014 9:20 pm
Forum: General Discussion
Topic: What POSITIVES has MS brought to you?
Replies: 5
Views: 1126

Re: What POSITIVES has MS brought to you?

Good for you Elliot. MS is a horrifying disease and has affected many peoples lives negatively. But to be able to find a silver lining in your life situation is very important. It is not the situation that is bad but your judgement of it. When originally diagnosed I was terrified. I had worked in co...
by Kronk
Wed Sep 10, 2014 6:30 pm
Forum: Regimens
Topic: My Regimen (ridiculous?)
Replies: 24
Views: 10425

Re: My Regimen (ridiculous?)

Im still surprised why more MSers arent taking Psorex. I get the flush a third of the time... o real gastro/intestinal issues. Well technically Psorex is a monoethyl where Tecfidera is a Dimethyl. I am not a chemist and cannot comment on the carbon atom arrangements and what that may mean for the e...
by Kronk
Tue Sep 09, 2014 8:53 pm
Forum: General Discussion
Topic: Body aches
Replies: 11
Views: 1523

Re: Body aches

Most days lately I've been sleeping for a good 12 hrs a day and after only being awake a couple of hours I feel the need to go back to sleep. I just feel awful every day, tired aching and kind of weak. I was very similar after my diagnosis I would come home from work and nap. My recommendation is t...
by Kronk
Sun Sep 07, 2014 7:15 pm
Forum: Introductions
Topic: Naglaa Attia
Replies: 6
Views: 1570

Re: Naglaa Attia

I did not say it was made of myelin proteins, but it is made of four amino acids (I thought 3) found in myelin basic protein, as you listed glutamic acid, lysine, alanine, and tyrosine. It is suspected this mimics myelin basic protein and may work as a decoy for the immune system. http://en.wikipedi...
by Kronk
Sun Sep 07, 2014 7:01 am
Forum: Introductions
Topic: Naglaa Attia
Replies: 6
Views: 1570

Re: Naglaa Attia

Very interesting, but the statement: "...However by synthesising proteins from the sheaths in a lab, and then injecting them into the blood stream at increasing doses, the body begins to learn that they are safe...." Sounds like Copaxone or glatiramer acetate? It injects the 3 main components of mye...
by Kronk
Sat Sep 06, 2014 7:37 am
Forum: General Discussion
Topic: Sex Headaches and MS. Related?
Replies: 11
Views: 2457

Re: Sex Headaches and MS. Related?

Agree as well. The other thing is that during intimacy blood flows change, increases to some areas and depletion in others. Maybe get your BP checked to see if its low or high.
by Kronk
Wed Sep 03, 2014 9:16 pm
Forum: General Discussion
Topic: Handling minor relapses
Replies: 4
Views: 787

Re: Handling minor relapses

I don't like to take steroids unless necessary, but what if the damage becomes permanent? My Neuro said a steroid does nothing to prevent damage it just speeds up your healing if any was to be had. He said there have been 100's of studies and none show any better results with steroids vs. nothing. ...
by Kronk
Mon Sep 01, 2014 7:21 am
Forum: Low Dose Naltrexone
Topic: MS patient quality of life may be improved with LDN
Replies: 5
Views: 3980

Re: MS patient quality of life may be improved with LDN

I haven't noticed anything good or bad. May as well be a vitamin. But i stick with it because of user reports like dlynn and the fact it is cheap.
by Kronk
Fri Aug 29, 2014 9:42 pm
Forum: General Discussion
Topic: Dx with breast cancer Now :(
Replies: 9
Views: 1372

Re: Dx with breast cancer Now :(

Curious what the issue is with Nitrous Oxide?
by Kronk
Thu Aug 28, 2014 8:17 pm
Forum: General Discussion
Topic: New study: blood flow, brain atrophy & MS
Replies: 11
Views: 1797

Re: New study: blood flow, brain atrophy & MS

Nice research as usual cheer. You have convinced me the vascular system is involved in the onset of MS. However I still cannot make the jump from stretching 2 veins in the neck to resolving blood flow to the entire CNS. I am anxiously awaiting the results from the UBC study.
by Kronk
Tue Aug 26, 2014 9:03 pm
Forum: General Discussion
Topic: Saturated fat vers Co. oil
Replies: 10
Views: 1012

Re: Saturated fat vers Co. oil

As I have mentioned previously, many diets are polar opposites of each other yet they all seem to work for some and not for others. Which diet is best? I guess the one that works best for you. I like that quote. Just like settling on a medication finding a diet that fits your lifestyle and betters ...