Search found 80 matches

by kareng7
Thu Feb 02, 2006 4:19 pm
Forum: General Discussion
Topic: Hospital stays vs. steroids--equal in effectiveness
Replies: 2
Views: 1949

Hospital stays vs. steroids--equal in effectiveness

Got to talking with my neuro at yesterday's appointment about how I'm sure there's a correlation between stress and MS exacerbations, and she agreed. Then she told me something very interesting. She said, in the 1970s, when docs were just at the beginning of studying steroid use and other means to a...
by kareng7
Thu Feb 02, 2006 4:05 pm
Forum: General Discussion
Topic: My Neurologist Sucks, how about yours?
Replies: 15
Views: 4891

Dr. Marilyn Robertson in San Francisco is excellent. She has her own private practice at 2100 Webster Street. Dr. Emmanuelle Waubant in the MS Center at UCSF is also very good. A little edgy, but knowledgeable. Also, hard to get to see--expect a three-month wait for appointments. Both gave me good r...
by kareng7
Mon Jan 30, 2006 6:22 pm
Forum: Avonex
Topic: pregnancy and Avonex
Replies: 0
Views: 3189

pregnancy and Avonex

Plenty of info warning women to get off Avonex if they become pregnant. Also a handy registry to register yourself if you're pregnant and on Avonex at http://www.criver.com/clinical_services/phase_iv/registries.html#Avonex. That's all well and good. But where's the research? Where are the outcomes? ...
by kareng7
Tue Jan 03, 2006 3:33 pm
Forum: General Discussion
Topic: California insurance cost--need advice
Replies: 1
Views: 1774

California insurance cost--need advice

For anyone who lives in California and can offer advice, please contact me. We are a small business group of two. Both my husband and I need injectables for different diseases (mine is Avonex for MS; his is Enbrel for Psoriatic Arthritis). The out-of-pocket costs between the insurance plan itself an...
by kareng7
Mon Dec 12, 2005 5:34 pm
Forum: General Discussion
Topic: Richard Pryor RIP
Replies: 15
Views: 4615

I've never done an illegal drug in my life and I have MS. Are you telling me that if I had, my MS would be much worse than it is today? Albeit clearly unhealthy, I've never seen any study linking drug abuse to MS progression. Freebased coke is not just any illegal drug. Freebased coke is crack coca...
by kareng7
Sun Dec 11, 2005 1:06 pm
Forum: Avonex
Topic: My first Avenox injection--Whole lotta shakin going on
Replies: 19
Views: 17512

Leave the Avonex OUT of the refrig for 24 hours before taking. Yeah, I know, it may sound wierd, but my side effects (flu, shakes, freezing) went away. So I've taken five shots now and happy to say, side effects have been minimal. I have no idea why, but here's my routine: * three Ibuprofen every f...
by kareng7
Sun Dec 11, 2005 9:15 am
Forum: General Discussion
Topic: Richard Pryor RIP
Replies: 15
Views: 4615

Not to sully Pryor's memory but let's not forget, he did A LOT of heavy drugs. For those who don't know, freebasing cocaine means cooking cocaine with a solvent like ether before you smoke it. Not exactly the breakfast of champions. And this is not something Pryor did once or twice, my friends. He h...
by kareng7
Mon Nov 28, 2005 11:42 am
Forum: General Discussion
Topic: Influence of pharma companies
Replies: 2
Views: 1627

From today's New York Times--maybe we just need to make MS more sexy (sigh...): November 28, 2005 Gimme an Rx! Cheerleaders Pep Up Drug Sales By STEPHANIE SAUL As an ambitious college student, Cassie Napier had all the right moves - flips, tumbles, an ever-flashing America's sweetheart smile - to pr...
by kareng7
Fri Nov 25, 2005 10:57 am
Forum: General Discussion
Topic: overwhelming
Replies: 8
Views: 2647

Re: depression

worst is not being able to drive to get places. had asked a friend to take me and my cat to vet, but she cancelled. feel so needy and weak. Hopefully, your friend had a good reason. In any event, here are some ideas for you. Can you afford to take a taxi every now and again? Are there any ride prog...
by kareng7
Mon Nov 21, 2005 2:59 pm
Forum: General Discussion
Topic: EBV and HHV6B in MS patients
Replies: 13
Views: 3269

I have a theory about the virus/bacteria connection as well. No proof, just a hunch. My hunch goes something like this. You get infected with EBV and/or HPV and/or HHV6 and/or some other herpes related virus, and/or viruses in general--could also apply to bacteria. Once the virus(es) and/or bacteria...
by kareng7
Sat Nov 19, 2005 6:13 pm
Forum: Drug Pipeline
Topic: Summary of the pipeline
Replies: 432
Views: 176841

Re: Hopeful on FTY720

If the Japanese can build a car that gets 60+ mpg then I'm hopeful they are on the right track with FTY720. Plus, knowing that Elan or Biogen aren't involved makes me even happier :D I was recently in Cambridge MA for a few weeks working for a client, and the route I took on foot to the train every...
by kareng7
Sat Nov 19, 2005 5:25 pm
Forum: General Discussion
Topic: overwhelming
Replies: 8
Views: 2647

It is very overwhelming. It makes you redefine who you are, even if you don't want to. It's like being told you're already in the process of dying--and maybe you are. But we all are. No one gets out of this life alive. I don't say this to be a bummer. In a way, even though it's scary, it can be kind...
by kareng7
Sat Nov 19, 2005 5:03 pm
Forum: General Discussion
Topic: Who do you tell?
Replies: 15
Views: 3968

My favorite MS reaction story has to be the faces on the people at the amusement park. I of course was in a wheelchair to get around the park. My husband and I followed all the rules of entry to the rollercoasters...which usually allow for no wait in line and pick of your seat. When the folks who h...
by kareng7
Fri Nov 18, 2005 12:28 am
Forum: General Discussion
Topic: Who do you tell?
Replies: 15
Views: 3968

Re: What a great discussion.......

Karen G, you are a great writer, and a great thinker. Why, thanks! :oops: In the meantime, for those few that I have told, it's been a mixed bag. Some have been great, some have turned and "run away" and mostly, I end up wishing I had "Just kept my heart out of sight". I can totally understand how ...
by kareng7
Sun Nov 13, 2005 10:49 pm
Forum: General Discussion
Topic: Who has the most accurate numbers?
Replies: 2
Views: 1414

Who has the most accurate numbers?

I keep hearing the numbers 300,000 to 500,000 people in the U.S. have MS, and about 2.5 million worldwide, is the estimate. Seems terribly low, and I know others on this board have mentioned under-reporting in those figures. I also understand that Montel Williams, the host of a national talk show wh...

Go to advanced search