Search found 3389 matches

by lyndacarol
Fri Apr 28, 2017 8:40 am
Forum: Undiagnosed
Topic: Beginning of DX journey....
Replies: 10
Views: 1302

Re: Beginning of DX journey....

Your vitamin D level (at 14 ng/mL) is dangerously deficient. Exactly what is the "high dose" your PCP prescribed? 50,000 units once a week. I suggest you examine the dose interval and dosage recommendations by GrassrootsHealth (http://www.grassrootshealth.net) to increase your blood level of vitami...
by lyndacarol
Thu Apr 27, 2017 4:25 pm
Forum: Undiagnosed
Topic: Beginning of DX journey....
Replies: 10
Views: 1302

Re: Beginning of DX journey....

I am in the early stages of waiting for a DX. My symptoms started about a year ago. I had tingling sensations from my rib cage to my foot - just on the left side. It lasted for maybe 10 mins. The exact same thing happened exactly one week later. I didn't have problems walking or talking or any othe...
by lyndacarol
Wed Apr 26, 2017 8:25 am
Forum: Undiagnosed
Topic: Wednesday Apt with GP- What Labs Should I have Done?
Replies: 10
Views: 2302

Re: Wednesday Apt with GP- What Labs Should I have Done?

Is it possible to submit my chronological chain of exacerbations to my medical record? If so, does the MD have to approve? I am thinking of going back and having them include it for the referals to the specialists. My issue is that these exacerbations are getting worse as time goes on and I would l...
by lyndacarol
Wed Apr 26, 2017 7:49 am
Forum: Undiagnosed
Topic: Wednesday Apt with GP- What Labs Should I have Done?
Replies: 10
Views: 2302

Re: Wednesday Apt with GP- What Labs Should I have Done?

Well, I did get a referral to neuro anf another cardiologist for the dysautonomia. The doc pretty much blew me off. I had a timeline of my symptomatic "flares" over the last year to be chronological, but he accused me of going off on a tangent and that he could only deal with so many problems in on...
by lyndacarol
Tue Apr 25, 2017 8:59 am
Forum: Undiagnosed
Topic: Wondering if its MS like my family members who have it
Replies: 2
Views: 893

Re: Wondering if its MS like my family members who have it

My Aunt has MS, and my dad (her brother). I am 32 although I started having symptoms several years ago, off and on. They always seem to come and go. I'll be fine for months and then what I call flare ups happen and can last for days-weeks. I know MS is hard to diagnose. My Aunt told me that her MRI...
by lyndacarol
Mon Apr 24, 2017 8:35 am
Forum: Undiagnosed
Topic: Wednesday Apt with GP- What Labs Should I have Done?
Replies: 10
Views: 2302

Re: Wednesday Apt with GP- What Labs Should I have Done?

My question is this, what labs or would you have your general practitioner look at -before- going to a neurologist for further workup? I would honestly like to rule out MS, but I want to hit the basics before spending a bunch of money. Welcome to ThisIsMS, LMH. It is my opinion that your GP should ...
by lyndacarol
Sat Apr 22, 2017 6:45 am
Forum: Undiagnosed
Topic: MS or another disease? Too many symptoms, 19 years old
Replies: 6
Views: 1491

Re: MS or another disease? Too many symptoms, 19 years old

My sister has a similar issue as the one mentioned. She has symptoms similar to MS such as numbness and weakness of limbs, paresthesia, optical neuritis but the MRI does not show lesssions and the oligoclonalbands are coming negative in the blood tests. The doctors suspect her of antiphospolilidic ...
by lyndacarol
Fri Apr 21, 2017 3:05 pm
Forum: Introductions
Topic: Hello
Replies: 294
Views: 32852

Re: Hello

During CIS I had 1 gram IV steroids daily (incredible healing) for 7 days. After that 64mg daily tablets, 8mg decrease every week. Walnut is for cholesterol reduction, omega 3. It is a nutrient bomb and easily available here. I eat cashews for magnesium and sometimes almonds. CLINICALLY ISOLATED SY...
by lyndacarol
Fri Apr 21, 2017 8:27 am
Forum: Introductions
Topic: Hello
Replies: 294
Views: 32852

Re: Hello

B12 increased 286 pg/mL to 540 pg/mL (maybe decrease supplement to 500mcg B12 or 1 day off) D3 increased 14.2 ng/mL to 38.1 ng/mL (very good increase without any megadose, 10000 IU single tablet on the way) There is no worldwide consensus on acceptable B12 levels. In Japan, the recommended minimum ...
by lyndacarol
Wed Apr 19, 2017 6:36 am
Forum: Introductions
Topic: Hello
Replies: 294
Views: 32852

Re: Hello

20 days ago test results: Folic Acid: 3,9 ng/mL (Started supplement) B12: 286 pg/mL (Started supplement) Magnesium: 2,24 mg/dL (Everyday I eat 10-15 grams of %99 cacao dark chocolate and very curious about this) Potassium: 3,7 mmol/L (Increased intake with foods, blueberries, avacados, bananas, veg...
by lyndacarol
Tue Apr 18, 2017 5:19 pm
Forum: Introductions
Topic: Hello
Replies: 294
Views: 32852

Re: Hello

Sorry for my English, not my mother tongue. I am a 33 years old man from Turkey. ................. 40+ blood and urine tests. Lots of out of limit things. Guess my D3 level? It was 14. Another visit to my neurologist and he said I might be an MS patient. 1 gram of IV steroids and calcium for 7 days...
by lyndacarol
Tue Apr 18, 2017 6:45 am
Forum: Gene Therapy
Topic: Study reveals more evidence that some forms of MS are...
Replies: 2
Views: 8269

Re: Study reveals more evidence that some forms of MS are...

I recently had my DNA tested, for ancestry reasons. To my surprise I have a higher than average Neanderthal percentage, I didn't even realize that this was included in the test. Anyways, after finding this out, I found information about this dna being linked to autoimmune disease. At my last visit ...
by lyndacarol
Tue Apr 18, 2017 6:31 am
Forum: Introductions
Topic: Welcome to ThisIsMS
Replies: 120
Views: 39873

Re: Welcome to ThisIsMS

Hello, I'm Lisette, I am new to this site. I have MS , diagnosed 2013, but guessing I've had much longer. I had Trigeminal Neuralgia in 2006, and has two Microvascular Decompressions in 2007 and 2008. So, as time is going on this disease is scaring the crap out of me. I thought maybe conferring wit...
by lyndacarol
Sun Apr 09, 2017 9:25 am
Forum: Undiagnosed
Topic: Crazy symptoms, scared to death
Replies: 26
Views: 3283

Re: Crazy symptoms, scared to death

I saw an RD not nutritionist. I misspoke above (thought they were the same but maybe not?) There is no certain timing of the supplements and they were "suggested" not actually prescribed. The report was sent to my doctor to make the actual decision what I should do. I was told that I needed 9000 Vi...
by lyndacarol
Sat Apr 08, 2017 7:02 am
Forum: Undiagnosed
Topic: They found a lesion :(
Replies: 5
Views: 1299

Re: They found a lesion :(

To germifer: Do not panic at the news that you have a lesion. Lesions are not unique to MS – they are found in many conditions; for example, migraine headaches, vitamin B 12 deficiency, etc. People with MS symptoms are often found to have NO symptoms when MRIs are done; by contrast, people with NO s...