Search found 623 matches

by Loriyas
Wed Feb 08, 2017 7:39 am
Forum: General Discussion
Topic: Fatigue
Replies: 14
Views: 1150

Re: Fatigue

Hi Jimmy 50,000 iu vit D/week per Vanderbilt neurologist B12 injection every 2 weeks/General Practioner. I have to go to his office to get it. I don't know dosage 3000 mcg sublingual B12 daily no feritan test that I know of Light bulb moment-it is D2 not D3. I have gone around w neuro about this. Do...
by Loriyas
Wed Feb 08, 2017 5:39 am
Forum: General Discussion
Topic: Fatigue
Replies: 14
Views: 1150

Fatigue

Hi all. Haven't been here for a while. Quick question:I am experiencing fatigue to a degree I never have before. I am wondering what anyone else who deals with it does to alleviate it? I have tried everything I know and am still having difficulty. Neurologist, of course, is no help. Provigil, B12, v...
by Loriyas
Wed Nov 16, 2016 5:07 pm
Forum: Introductions
Topic: Hello from East TN!!
Replies: 4
Views: 1446

Re: Hello from East TN!!

I go to the same clinic. You are in good hands there!
by Loriyas
Tue Jul 12, 2016 8:21 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: First day of my tecfidera therapy
Replies: 6
Views: 2733

Re: First day of my tecfidera therapy

Keep us updated!
by Loriyas
Thu Jun 09, 2016 7:43 pm
Forum: Drug Pipeline
Topic: Tremors
Replies: 3
Views: 2468

Re: Tremors

I take propranolol (small dose) for essential tremor that is believed to be related to my ms. Have taken it for years. It eliminates the tremor. Caffeine also increases the tremor so check the amount of caffeine you are consuming.
by Loriyas
Mon May 09, 2016 7:41 pm
Forum: General Discussion
Topic: Random pain coming and going
Replies: 3
Views: 930

Re: Random pain coming and going

I have found chiropractic care has helped a lot
by Loriyas
Mon Oct 26, 2015 4:12 pm
Forum: Antibiotics
Topic: Continue Rebif and Wheldon Protocol simultaneously?
Replies: 2
Views: 3055

Re: Continue Rebif and Wheldon Protocol simultaneously?

I continued Copaxone while doing full Vanderbilt protocol.
by Loriyas
Sun Oct 25, 2015 4:52 pm
Forum: Antibiotics
Topic: In Pursuit of ABX - May I have coffee with my milkshake?
Replies: 195
Views: 74452

Re: In Pursuit of ABX - May I have coffee with my milkshake?

Ken I am SO glad to see you back here! I have often wondered about Kim. I am glad to hear her good news. I wish you both the best with her appointment with Dr Sriram. I just saw him last week. Love that man!

Lori
by Loriyas
Fri Oct 23, 2015 7:36 pm
Forum: Antibiotics
Topic: Help finding dr in NC
Replies: 1
Views: 2865

Re: Help finding dr in NC

Make an appointment at Vanderbilt
by Loriyas
Mon Sep 14, 2015 9:46 am
Forum: Copaxone
Topic: Copaxone at 40 ml
Replies: 11
Views: 6548

Re: Copaxone at 40 ml

Ok it has been a year since I asked the question "how are people doing who switched to 40 ml dosing 3 times per week?" I am wondering now how those who did so within this past year are currently doing? Glad you switched? Or did you switch back to 20 ml? Side effects? Issues?
by Loriyas
Tue Jul 07, 2015 2:59 pm
Forum: General Discussion
Topic: Foundation forced to close over funding
Replies: 1
Views: 857

Re: Foundation forced to close over funding

This makes me really sad. It is so so difficult for these organizations to keep running due to lack of funding. And they are our best hope. The Accelerated Cure Project works tirelessly for a cure. But it is always battling for money. They should be spending all of their time on multiple sclerosis i...
by Loriyas
Tue Jun 02, 2015 9:37 pm
Forum: General Discussion
Topic: Allergic to copaxone after over a year of injections?
Replies: 37
Views: 4873

Re: Allergic to copaxone after over a year of injections?

I had hives for a period of time after I had been on Copaxone for a couple years. Never was determined if it was Copaxone or not. But I believe I ruled everything else out. My PCP gave me a prescription for an Epi Pen just in case I found my throat start to swell. It never did. Soon after the hives ...
by Loriyas
Sat Apr 04, 2015 3:36 pm
Forum: Copaxone
Topic: Copaxone and high blood pressure
Replies: 1
Views: 3952

Copaxone and high blood pressure

Has anyone found that Copaxone has increased their blood pressure over time? I don't mean just after the injection but rather over months or years. I have been on Copaxone for 12 years. I have seen a steady increase in my blood pressure over that time. I have tried to figure out its cause. I am on v...
by Loriyas
Wed Mar 18, 2015 11:29 am
Forum: General Discussion
Topic: Muscle spasms in back
Replies: 3
Views: 988

Re: Muscle spasms in back

Yes
I see a chiropractor regularly. When spasms are bad I use a TENS unit, which helps stop spasm.
Epsom salt baths help also
Massage as well.

Jimmylegs will probably be along shortly and may mention magnesium.