Search found 623 matches

by Loriyas
Wed May 14, 2014 12:00 pm
Forum: General Discussion
Topic: msdiscovery.org
Replies: 0
Views: 821

msdiscovery.org

This is a joint project of the Accelerated Cure Project. Lots of good, up-to-date information here:

http://www.msdiscovery.org/
by Loriyas
Mon May 12, 2014 1:59 pm
Forum: Copaxone
Topic: Copaxone at 40 ml
Replies: 11
Views: 6271

Re: Copaxone at 40 mg

Thank you questor. That is the kind of information I am looking for. I have been on Copaxone for 11 years and have a lot of lipoatrophy. I suspected that the doubling of the dose may increase that. I also have heard that compliance is an issue with the every other day dosing schedule.
by Loriyas
Tue Apr 29, 2014 10:01 am
Forum: Copaxone
Topic: Copaxone at 40 ml
Replies: 11
Views: 6271

Copaxone at 40 ml

For those who have already switched to the new dosing would you mind sharing any thoughts on it? I am specifically interested in hearing about side effects. I know this is a very new dosing change but would like to hear from anyone who has done it. Thank you.
by Loriyas
Wed Apr 23, 2014 11:46 am
Forum: Introductions
Topic: Bowel Incontinence
Replies: 13
Views: 2297

Re: Bowel Incontinence

I think you should tell people that they shouldn't make comments about things they don't understand. And then just walk away.
by Loriyas
Fri Apr 11, 2014 1:58 pm
Forum: General Discussion
Topic: Copaxone for 10+ years?
Replies: 6
Views: 1272

Re: Copaxone for 10+ years?

Been on Copaxone for 11 years. My biggest side effect complaint is lipoatrophy. It is pretty back on my thighs.
by Loriyas
Thu Mar 20, 2014 3:11 pm
Forum: Medical Marijuana
Topic: CBD Marijuana Capsules
Replies: 54
Views: 13045

Re: CBD Marijuana Capsules

This is good to hear! Keep us updated! Thank you!
by Loriyas
Mon Jan 27, 2014 10:01 am
Forum: Antibiotics
Topic: Pulses
Replies: 36
Views: 11112

Re: Pulses

Roy, A sense of well-being is key! If you can tell that things seem to be improving that provides you the incentive to continue! I think it is the first sense that you are no longer feeling that you are worsening. As Mac said keep a log of your changes, with dates included. Seeing it on paper will r...
by Loriyas
Tue Nov 19, 2013 10:07 am
Forum: General Discussion
Topic: Is moving south to a warmer climate always a bad idea?
Replies: 2
Views: 1193

Re: Is moving south to a warmer climate always a bad idea?

Just my experience: moved from Ohio to Florida in 2003. Best thing we ever did for my health! I swear by the vitamin D component of sun exposure as well as general well being from sunshine (mental). I couldn't do it without A/C but with it, no problem!
by Loriyas
Fri Oct 25, 2013 10:10 am
Forum: General Discussion
Topic: Light as medicine?
Replies: 4
Views: 1333

Re: Light as medicine?

I find this very interesting. Kinda like Star Trek !
by Loriyas
Tue Oct 22, 2013 9:39 am
Forum: General Discussion
Topic: How Long Does It Take
Replies: 3
Views: 948

Re: How Long Does It Take

I think you should be a pest and insist they get you in sooner. Remember, when you call you typically are talking to the appointment taker and they usually don't understand the urgency. I find this to be one of the most annoying things about a neurology practice. If you don't get results in a timely...
by Loriyas
Sat Oct 19, 2013 11:48 am
Forum: Introductions
Topic: Help with Medical Insurance Approval
Replies: 3
Views: 1137

Re: Help with Medical Insurance Approval

Contact Biogen Idec for help with providing Tecfidera for your daughter. They have programs for those whose insurance will not cover it.
by Loriyas
Sat Oct 19, 2013 11:41 am
Forum: Introductions
Topic: Finally an answer to my symptoms. Wasn't expecting MS
Replies: 3
Views: 1074

Re: Finally an answer to my symptoms. Wasn't expecting MS

Sensible, take a deep breath and try to calm your mind. It is all very overwhelming at the beginning and it is best if you just take a step back for a minute to re-group. Then in time you can start to research and learn all you can. The more you know the less fearful you will be. You will be in cont...
by Loriyas
Mon Oct 14, 2013 9:38 am
Forum: Medical Marijuana
Topic: Marijuana compound may stop MS inflammation
Replies: 9
Views: 3088

Re: Marijuana compound may stop MS inflammation

Tif, what benefits have you seen using mmj?
by Loriyas
Thu Oct 10, 2013 10:43 am
Forum: Introductions
Topic: My spider senses tell me...
Replies: 2
Views: 1011

Re: My spider senses tell me...

Did you also receive a written report from the radiologist? (sorry if I missed this)