Search found 623 matches

by Loriyas
Mon Jun 03, 2013 8:54 am
Forum: General Discussion
Topic: Tecfidera
Replies: 13
Views: 14283

Re: Tecfidera

I have a follow up with my neurologist in July. I think he may suggest Tecfidera also. I, too, am currently on Copaxone. I also have been doing the antibiotic protocol for 4-5 years. I am doing very well. At this point I have decided to wait on Tecfidera if in fact he suggests it. I don't want to "r...
by Loriyas
Fri May 31, 2013 1:28 pm
Forum: General Discussion
Topic: ***CAN DOCTOR MAKE ME SWITCH MEDICATIONS???***
Replies: 5
Views: 1095

Re: ***CAN DOCTOR MAKE ME SWITCH MEDICATIONS???***

I say find a new neurologist. If you had 4 new lesions and they did not notify you they are not serving your best interest. Find a new neuro, perhaps get a new MRI and go from there. If it were me I would not feel confident in recommendations based on two year old information.
by Loriyas
Thu May 23, 2013 1:39 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: update on Tysabri--August 2013
Replies: 13
Views: 3807

Re: update on Tysabri--May 2013

Thank you Cheer
by Loriyas
Thu May 23, 2013 12:56 pm
Forum: Antibiotics
Topic: In Pursuit of ABX - May I have coffee with my milkshake?
Replies: 195
Views: 74451

Re: In Pursuit of ABX - May I have coffee with my milkshake?

Ken it is so nice to hear from you. I have been thinking a lot about you and Kim. Please give her a big hug from me. Lori
by Loriyas
Tue May 14, 2013 8:59 am
Forum: Antibiotics
Topic: why do antibiotics and immonsupressing both work?
Replies: 54
Views: 15776

Re: why do antibiotics and immonsupressing both work?

Geeze Gogo, what do you want? This continuous bashing of the antibiotic therapy (and of Sarah) is growing tiresome. Not every therapy works for every patient. But a patient should have the opportunity to try whatever therapy they deem appropriate. There is a ton of research available for someone to ...
by Loriyas
Thu May 09, 2013 2:14 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Side effects
Replies: 184
Views: 87395

Re: Side effects

I'm sorry I can't help you with any information. I have been told the gastrointestinal side effects are transient and usually subside within the first month. Would you keep us updated on your experience with this drug? It would be so appreciated.
by Loriyas
Sat May 04, 2013 10:55 am
Forum: Drug Pipeline
Topic: Tecfidera
Replies: 46
Views: 13026

Re: Tecfidera

Biogen Idec will work with you to get Tecfidera to you. Contact them if you are interested.
by Loriyas
Sun Apr 28, 2013 12:59 pm
Forum: Medical Marijuana
Topic: MARIJAUNA BEING ILLEGAL IS PURE "BS"-PLAIN AND SIMPLE
Replies: 88
Views: 18019

Re: MARIJAUNA BEING ILLEGAL IS PURE "BS"-PLAIN AND SIMPLE

I just attended a debate on legalization of marijuana yesterday. The leading proponent was Jeff Miron, professor at Harvard and a senior fellow at the CATO Institute . He has a strong argument for legalization coming from an economic standpoint. I found this recent YouTube interview with Dr. Miron a...
by Loriyas
Sun Apr 28, 2013 12:47 pm
Forum: Antibiotics
Topic: Insights to Bacterial MS and other de-generative diseases
Replies: 64
Views: 12244

Re: Insights to Bacterial MS and other de-generative disease

Gogo I have kept a log on both this site and on CPn Help.org. It is entitled loriyas antibiotic log. You can read about my experience with antibiotic therapy there. I will be going to Vanderbilt for a yearly appointment in July. I will update then.
by Loriyas
Sun Apr 28, 2013 12:44 pm
Forum: Antibiotics
Topic: loriyas antibiotic log
Replies: 136
Views: 41254

Re: loriyas antibiotic log

I realized I have not updated this in almost a year. I have continued to deal with back pain but not convinced it is MS related. MRI showed no new lesions and the one that is there is not active. Regarding abx therapy I restarted the rifampin and azithromycin as instructed by Dr. S at Vanderbilt. I ...
by Loriyas
Fri Apr 26, 2013 9:36 am
Forum: Antibiotics
Topic: Insights to Bacterial MS and other de-generative diseases
Replies: 64
Views: 12244

Re: Insights to Bacterial MS and other de-generative disease

Gogo, you seem to have continued interest in antibiotic therapy but want to have proof that it works. I have been going to Vanderbilt for over 4 years. The bottom line is the therapy works for some people and not for others. For those whom it has worked they continue on as they see the therapy as ho...
by Loriyas
Wed Mar 13, 2013 8:39 am
Forum: Antibiotics
Topic: Insights to Bacterial MS and other de-generative diseases
Replies: 64
Views: 12244

Re: Insights to Bacterial MS and other de-generative disease

I am another person who has benefitted from the antibiotic protocol. I followed the Vanderbilt protocol prescribed for me by a neurologist at Vanderbilt. I have had great success. I used to blog about it on both This Is MS and CPn Help.org. I rarely do anymore, mostly because of posters like Gogo. S...
by Loriyas
Mon Mar 04, 2013 10:47 am
Forum: General Discussion
Topic: Update on Accelerated Cure Project
Replies: 0
Views: 1077

Update on Accelerated Cure Project

This is great news! The various organizations will be collaborating their data!


http://www.marketwatch.com/story/accele ... 2013-03-04
by Loriyas
Sat Jan 19, 2013 12:16 pm
Forum: General Discussion
Topic: Spine feels weird .....
Replies: 4
Views: 1360

Re: Spine feels weird .....

You know that saying "it's just like riding a bike"? Well not so much with MS! It took me a long time to get my balance back when riding my bike. And you are right, turns were almost impossible and really scary! So initially I made sure I rode mostly in a straight line and would actually get off my ...