Search found 790 matches
- Fri Feb 12, 2016 10:59 am
- Forum: General Discussion
- Topic: Multiple Sclerosis Survey
- Replies: 1
- Views: 886
Re: Multiple Sclerosis Survey
Researchers at Trinity College Dublin are developing online resources for people affected by multiple sclerosis. Everything they develop will be made freely available to the general public. They are looking for people living with MS, people who work with them, and their relatives, friends and loved...
- Wed Feb 03, 2016 10:04 am
- Forum: General Discussion
- Topic: MRI scheduled for possible MS
- Replies: 8
- Views: 1547
Re: MRI scheduled for possible MS
P.S. FYI - Linda, I deleted your duplicate thread in another forum since I had already replied to it here.
- Wed Feb 03, 2016 9:54 am
- Forum: General Discussion
- Topic: MRI scheduled for possible MS
- Replies: 8
- Views: 1547
Re: MRI scheduled for possible MS
Sorry this is long! I was just very surprised when I got a call for a full spine and brain MRI. I have no balance issues it seems. Have any of you been diagnosed with few symptoms? Hi Linda, and welcome! In my case, after a lifetime of weird little episodes that didn't seem to connect, I finally de...
- Wed Feb 03, 2016 9:27 am
- Forum: Introductions
- Topic: Are new posts moderated?
- Replies: 1
- Views: 1527
Re: Are new posts moderated?
I'm new here and wrote a longish introduction post but don't see it ... ? Hi thisiswater. I can find all your short posts, but not a long "introduction post." I also don't see a record where it was "moderated" by any of us -- edited or deleted. You may not have hit the "Sub...
- Tue Feb 02, 2016 1:08 pm
- Forum: General Discussion
- Topic: Is a lumbar Puncture *really* necessary for dx?
- Replies: 8
- Views: 1871
Re: Is a lumbar Puncture *really* necessary for dx?
I think he may want to do it because my lesions don't present in the typical MS pattern. Would that make sense? Hi and welcome! Yes, it's likely that he wants to add the LP to the evidence, but a positive LP result can indicate many other things besides MS. My own doctors (13 yrs ago) seemed to thi...
- Sat Jan 23, 2016 6:01 am
- Forum: Undiagnosed
- Topic: unconfirmed diagnosis - is it psychosomatic
- Replies: 11
- Views: 2057
Re: unconfirmed diagnosis - is it psychosomatic
Hi, Hoping someone can advise?? I have a 33 year old male partner with an ambiguous diagnosis. He has seen four different Neuro's and have varied opinions: 2 said MS was likely, 2 were undecided. MRI frequency was recommended at 3 months by one and 12 months by another. He has about 5 lesions on th...
- Sat Jan 23, 2016 5:02 am
- Forum: General Discussion
- Topic: Brain Health Resources - Trinity College Dublin Research
- Replies: 3
- Views: 1321
Re: Brain Health Resources - Trinity College Dublin Research
I have to say that it's the best MS survey I've ever taken, with room for individual/personal experience. Most MS surveys use mainly the standard questions we've answered a hundred times -- which make generic assumptions and DO NOT apply to my MS experience at all.
So thank you.
So thank you.
- Sat Jan 23, 2016 4:58 am
- Forum: Stem Cells
- Topic: BBC PANARAMA DOCUMENTRY 2016 CAN YOU STOP MY MS
- Replies: 1
- Views: 1877
Re: BBC PANARAMA DOCUMENTRY 2016 CAN YOU STOP MY MS
FYI - There's a discussion about this in the General forum here: http://www.thisisms.com/forum/general-d ... 27271.htmlseeva wrote:HI Fiends please watch
regards
seeva
- Thu Jan 21, 2016 6:06 am
- Forum: Gilenya
- Topic: ponesimod (or gillenia) effects
- Replies: 1
- Views: 4583
Re: ponesimod (or gillenia) effects
Does it worth it? Is gilenia really effective drug? What is the estimated rate of disability slowing? What side effects have to be aware of? Hi zorro, Here's a link to the entire Gilenya "Full Prescribing Information" : http://www.pharma.us.novartis.com/product/pi/pdf/gilenya.pdf It gives...
- Tue Jan 12, 2016 5:55 am
- Forum: Diet
- Topic: RE RISE IN M.S AND AUTOIMMUNE DISEASE LINKED TO PROCESSED FO
- Replies: 1
- Views: 2083
Re: RE RISE IN M.S AND AUTOIMMUNE DISEASE LINKED TO PROCESSE
HI FIENDS Please read the attached http://multiplesclerosisnewstoday.com/2016/01/08/rise-ms-autoimmune-disease-linked-processed-foods/?utm_source=Multiple+Sclerosis&utm_campaign=41d7b5e370-RSS_WEEKLY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_b5fb7a3dae-41d7b5e370-71285713 regards seeva...
- Sat Dec 19, 2015 5:50 am
- Forum: General Discussion
- Topic: HELP PLEASE. HOW TO TREAT THIS DECEASE
- Replies: 18
- Views: 3128
Re: HELP PLEASE. HOW TO TREAT THIS DECEASE
thank you . it s the only hope for me - to get any advice from you and people who have the same decease as me ( There is a lot of information and ideas here in the many forums, so be sure to explore them and read. Keep in mind that there is not one single treatment that helps everyone -- and there ...
- Sat Dec 19, 2015 5:06 am
- Forum: General Discussion
- Topic: HELP PLEASE. HOW TO TREAT THIS DECEASE
- Replies: 18
- Views: 3128
Re: HELP PLEASE. HOW TO TREAT THIS DECEASE
i have MS/ was diagnosed in february 2015/ had three serious relapses in 10 months. i live in Ukraine. the country does NOT provide us with special treatment. no copaxon no rebif etc. to buy such a medicine is completely impossible for me. i cant work because of my decease, and my income is about 1...
- Fri Dec 18, 2015 9:00 am
- Forum: Coimbra High-Dose Vitamin D Protocol
- Topic: Dr.Coimbra Treatment 95% Efficacy
- Replies: 51
- Views: 19060
Re: Dr.Coimbra Treatment 95% Efficacy
For an interesting insight into MS lesions, you should check out Harvard's "The Whole Brain Atlas" here: http://www.med.harvard.edu/AANLIB/home.html If you scroll down to Multiple Sclerosis, you can actually take a Tour of an MS brain and watch lesions come and go in a very short time thro...
- Mon Dec 14, 2015 11:54 am
- Forum: General Discussion
- Topic: Anyone on here wih multiple medical problems?
- Replies: 3
- Views: 1112
Re: Anyone on here wih multiple medical problems?
Hi my name is Sarah. I am 28 y/o and I have had MS for 8 years and Diabetes type 1 for 14 years. I work fulltime and I go to the gym regularly. i have been on tysabri for 6 years and I feel great. The main symptoms I struggle with are fatigue and loss of balance at times. Is anyone else going throu...
- Mon Dec 14, 2015 7:40 am
- Forum: Undiagnosed
- Topic: Question About My Somatosensory Evoked Potential Result
- Replies: 2
- Views: 1239
Re: Question About My Somatosensory Evoked Potential Result
I recently had an evoked potential test done where they attached electrodes to my scalp and put the sensors on my legs and ran the electrical shocks through me in different spots. The lady conducting the test said that my right leg read higher than my left and so she wanted to know if I felt a diff...