Search found 790 matches

by euphoniaa
Fri Feb 12, 2016 10:59 am
Forum: General Discussion
Topic: Multiple Sclerosis Survey
Replies: 1
Views: 605

Re: Multiple Sclerosis Survey

Researchers at Trinity College Dublin are developing online resources for people affected by multiple sclerosis. Everything they develop will be made freely available to the general public. They are looking for people living with MS, people who work with them, and their relatives, friends and loved...
by euphoniaa
Wed Feb 03, 2016 10:04 am
Forum: General Discussion
Topic: MRI scheduled for possible MS
Replies: 8
Views: 830

Re: MRI scheduled for possible MS

P.S. FYI - Linda, I deleted your duplicate thread in another forum since I had already replied to it here.
by euphoniaa
Wed Feb 03, 2016 9:54 am
Forum: General Discussion
Topic: MRI scheduled for possible MS
Replies: 8
Views: 830

Re: MRI scheduled for possible MS

Sorry this is long! I was just very surprised when I got a call for a full spine and brain MRI. I have no balance issues it seems. Have any of you been diagnosed with few symptoms? Hi Linda, and welcome! In my case, after a lifetime of weird little episodes that didn't seem to connect, I finally de...
by euphoniaa
Wed Feb 03, 2016 9:27 am
Forum: Introductions
Topic: Are new posts moderated?
Replies: 1
Views: 1032

Re: Are new posts moderated?

I'm new here and wrote a longish introduction post but don't see it ... ? Hi thisiswater. I can find all your short posts, but not a long "introduction post." I also don't see a record where it was "moderated" by any of us -- edited or deleted. You may not have hit the "Submit" button, or there may...
by euphoniaa
Tue Feb 02, 2016 1:08 pm
Forum: General Discussion
Topic: Is a lumbar Puncture *really* necessary for dx?
Replies: 8
Views: 1167

Re: Is a lumbar Puncture *really* necessary for dx?

I think he may want to do it because my lesions don't present in the typical MS pattern. Would that make sense? Hi and welcome! Yes, it's likely that he wants to add the LP to the evidence, but a positive LP result can indicate many other things besides MS. My own doctors (13 yrs ago) seemed to thi...
by euphoniaa
Sat Jan 23, 2016 6:01 am
Forum: Undiagnosed
Topic: unconfirmed diagnosis - is it psychosomatic
Replies: 11
Views: 1383

Re: unconfirmed diagnosis - is it psychosomatic

Hi, Hoping someone can advise?? I have a 33 year old male partner with an ambiguous diagnosis. He has seen four different Neuro's and have varied opinions: 2 said MS was likely, 2 were undecided. MRI frequency was recommended at 3 months by one and 12 months by another. He has about 5 lesions on th...
by euphoniaa
Sat Jan 23, 2016 5:02 am
Forum: General Discussion
Topic: Brain Health Resources - Trinity College Dublin Research
Replies: 3
Views: 880

Re: Brain Health Resources - Trinity College Dublin Research

I have to say that it's the best MS survey I've ever taken, with room for individual/personal experience. Most MS surveys use mainly the standard questions we've answered a hundred times -- which make generic assumptions and DO NOT apply to my MS experience at all.

So thank you. :smile:
by euphoniaa
Sat Jan 23, 2016 4:58 am
Forum: Stem Cells
Topic: BBC PANARAMA DOCUMENTRY 2016 CAN YOU STOP MY MS
Replies: 1
Views: 1356

Re: BBC PANARAMA DOCUMENTRY 2016 CAN YOU STOP MY MS

seeva wrote:HI Fiends please watch

regards
seeva
FYI - There's a discussion about this in the General forum here: http://www.thisisms.com/forum/general-d ... 27271.html
by euphoniaa
Thu Jan 21, 2016 6:06 am
Forum: Gilenya
Topic: ponesimod (or gillenia) effects
Replies: 1
Views: 3100

Re: ponesimod (or gillenia) effects

Does it worth it? Is gilenia really effective drug? What is the estimated rate of disability slowing? What side effects have to be aware of? Hi zorro, Here's a link to the entire Gilenya "Full Prescribing Information" : http://www.pharma.us.novartis.com/product/pi/pdf/gilenya.pdf It gives an overal...
by euphoniaa
Tue Jan 12, 2016 5:55 am
Forum: Diet
Topic: RE RISE IN M.S AND AUTOIMMUNE DISEASE LINKED TO PROCESSED FO
Replies: 1
Views: 1428

Re: RE RISE IN M.S AND AUTOIMMUNE DISEASE LINKED TO PROCESSE

HI FIENDS Please read the attached http://multiplesclerosisnewstoday.com/2016/01/08/rise-ms-autoimmune-disease-linked-processed-foods/?utm_source=Multiple+Sclerosis&utm_campaign=41d7b5e370-RSS_WEEKLY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_b5fb7a3dae-41d7b5e370-71285713 regards seeva FYI - There...
by euphoniaa
Sat Dec 19, 2015 5:50 am
Forum: General Discussion
Topic: HELP PLEASE. HOW TO TREAT THIS DECEASE
Replies: 18
Views: 1720

Re: HELP PLEASE. HOW TO TREAT THIS DECEASE

thank you . it s the only hope for me - to get any advice from you and people who have the same decease as me ( There is a lot of information and ideas here in the many forums, so be sure to explore them and read. Keep in mind that there is not one single treatment that helps everyone -- and there ...
by euphoniaa
Sat Dec 19, 2015 5:06 am
Forum: General Discussion
Topic: HELP PLEASE. HOW TO TREAT THIS DECEASE
Replies: 18
Views: 1720

Re: HELP PLEASE. HOW TO TREAT THIS DECEASE

i have MS/ was diagnosed in february 2015/ had three serious relapses in 10 months. i live in Ukraine. the country does NOT provide us with special treatment. no copaxon no rebif etc. to buy such a medicine is completely impossible for me. i cant work because of my decease, and my income is about 1...
by euphoniaa
Fri Dec 18, 2015 9:00 am
Forum: Coimbra High-Dose Vitamin D Protocol
Topic: Dr.Coimbra Treatment 95% Efficacy
Replies: 51
Views: 12604

Re: Dr.Coimbra Treatment 95% Efficacy

For an interesting insight into MS lesions, you should check out Harvard's "The Whole Brain Atlas" here: http://www.med.harvard.edu/AANLIB/home.html If you scroll down to Multiple Sclerosis, you can actually take a Tour of an MS brain and watch lesions come and go in a very short time through a "Cin...
by euphoniaa
Mon Dec 14, 2015 11:54 am
Forum: General Discussion
Topic: Anyone on here wih multiple medical problems?
Replies: 3
Views: 784

Re: Anyone on here wih multiple medical problems?

Hi my name is Sarah. I am 28 y/o and I have had MS for 8 years and Diabetes type 1 for 14 years. I work fulltime and I go to the gym regularly. i have been on tysabri for 6 years and I feel great. The main symptoms I struggle with are fatigue and loss of balance at times. Is anyone else going throu...
by euphoniaa
Mon Dec 14, 2015 7:40 am
Forum: Undiagnosed
Topic: Question About My Somatosensory Evoked Potential Result
Replies: 2
Views: 954

Re: Question About My Somatosensory Evoked Potential Result

I recently had an evoked potential test done where they attached electrodes to my scalp and put the sensors on my legs and ran the electrical shocks through me in different spots. The lady conducting the test said that my right leg read higher than my left and so she wanted to know if I felt a diff...