Search found 785 matches

by Shayk
Mon Nov 18, 2013 5:38 pm
Forum: General Discussion
Topic: Ottawa doctors behind breakthrough multiple sclerosis study
Replies: 11
Views: 2980

Re: Ottawa doctors behind breakthrough multiple sclerosis st

Taurus Any comments I've two comments: 1. I can't understand why someone would release the same press release in November that was first released in April. I wonder if the recent reported lawsuit has anything to do with it and if this second release of the same info is an attempt to influence the ou...
by Shayk
Wed Sep 04, 2013 6:58 pm
Forum: Exercise and Physical Therapy
Topic: Rehabilitation
Replies: 16
Views: 7871

Re: Rehabilitation

Brent Sorry you haven't had more responses. I am not aware of a specific MS rehab program in my area, but there is a Neurofit program that coordinates, if appropriate, with an iWalk Recovery Center . The link profiles the types of equipment they use. I don't know anyone with MS who has utilized eith...
by Shayk
Wed Aug 14, 2013 12:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Could be traffic accidents the reason for MS increase?
Replies: 16
Views: 2047

Re: Could be traffic accidents the reason for MS increase?

This document (although dated) is one of the best "summaries" I've come across re: trauma and MS. Thought it may be of interest to some.

Analysis of research into the role of trauma and stress in the etiology of multiple sclerosis 2007

All the best

Sharon
by Shayk
Thu Jul 11, 2013 9:01 am
Forum: General Discussion
Topic: Is perimenopause making my ms symptoms worse?
Replies: 46
Views: 7657

Re: Is perimenopause making my ms symptoms worse?

Lynn62 Hi! I was wondering if any ladies out there noticed their ms symptoms worsening during perimenopause/menopause? I was diagnosed at the age of 57 after they took me off HRT so I naturally associated menopause and no HRT with worsening MS symptoms. Simultaneously the initial research on estriol...
by Shayk
Sun Jun 30, 2013 3:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A New Review About Diagnosing CCSVI
Replies: 4
Views: 1337

A New Review About Diagnosing CCSVI

Hi all I've been away but don't think this has been posted yet-- The role of noninvasive and invasive diagnostic imaging techniques for detection of extra-cranial venous system anomalies and developmental variants that was published by Buffalo (BNAC group). The full article is open access complete w...
by Shayk
Thu Apr 18, 2013 12:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Embry: Actual data from PREMiSe suggests CCSVI is of value
Replies: 92
Views: 8929

Re: Embry: Actual data from PREMiSe suggests CCSVI is of val

Cheer wrote: Phase 2 patients did not have their CCSVI corrected any better than the placebo patients. The Venous Insufficiency Severity Scores were the same for treated and untreated patients!! Agreed and I think by virtue of the title of the poster from the AAN site I think some people at BNAC kno...
by Shayk
Wed Apr 03, 2013 12:01 pm
Forum: Friends and Family
Topic: My mum was diagnosed with MS today... advice please?
Replies: 2
Views: 4599

Re: My mum was diagnosed with MS today... advice please?

Hi Lisa I'm sorry about your dear Mom's diagnosis of MS and as you know, no one can tell you how likely it is if or when she may experience disease progression. I was diagnosed at the age of 57 (about 10 years ago) and so far am doing "relatively" ok--EDSS 1 or less (altho it's never been officially...
by Shayk
Mon Mar 25, 2013 9:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Vein-opening for multiple sclerosis investigations continue
Replies: 1
Views: 1093

Re: Vein-opening for multiple sclerosis investigations conti

Thanks Erin

Despite the title, I found this video/article to be fairly negative. If you're interested, the opportunity to comment on it ends tonight at 11:59 pm ET.

Take care all

Sharon
by Shayk
Sun Mar 17, 2013 1:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: PREMiSe study results
Replies: 77
Views: 9215

Re: PREMiSe study results

No mention of brain atrophy or iron deposition measurements. Thanks Cece. I find it difficult to believe that Buffalo didn't measure either one or both of those since they are well published in brain atrophy and iron deposition. Maybe that info will be forthcoming at the poster presentation, schedu...
by Shayk
Sun Mar 17, 2013 11:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: PREMiSe study results
Replies: 77
Views: 9215

Re: PREMiSe study results

While I think the Buffalo results as far as we know them at this point are a serious blow and very discouraging, I think we all probably want to know more. I was interested in knowing more about the so-called “disease activity” that suggested angioplasty “may” make people worse and wondered if the “...
by Shayk
Fri Mar 01, 2013 8:30 am
Forum: Natural Approach
Topic: Another benefit of green tea
Replies: 8
Views: 2309

Re: Another benefit of green tea

Hi all Recently came across an open access review article about green tea that I thought may be of interest to some. Epigallocatechin-3-gallate: a useful, effective and safe clinical approach for targeted prevention and individualised treatment of neurological diseases ? It's fairly technical but th...
by Shayk
Tue Feb 19, 2013 6:29 pm
Forum: General Discussion
Topic: Brain Atrophy and MRI
Replies: 5
Views: 1539

Re: Brain Atrophy and MRI

Hi Scotto Can one have MS and very few plaques? I think one can have MS and very few plaques. One of the better articles I've read about MRIs is from the MS Discovery Forum entitled: More Than Meets the Eye: the promises and pitfalls of MRI imaging in multiple sclerosis It's rather lengthy but quite...
by Shayk
Mon Jan 28, 2013 12:01 pm
Forum: Introductions
Topic: New, old member Loobie!
Replies: 3
Views: 923

Re: New, old member Loobie!

Hi Loobie

Welcome back, for whatever reason. :-)) I remember you well and have often wondered how you fared. I'll read your blog to check that out....

All the best

Sharon
by Shayk
Thu Dec 13, 2012 6:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cochrane Review-Well-designed/robust studies are warranted
Replies: 16
Views: 2377

Re: Cochrane Review-Well-designed/robust studies are warrant

I am definitely of the opinion that we need this Cochrane Review and that it’s quite important and very valuable in our efforts to try to move research and clinical trials forward. Given the influence of the NMSS, my read of the “tea leaves” is that the NMSS is definitely opposed to CCSVI (no surpri...
by Shayk
Tue Oct 30, 2012 6:48 am
Forum: Regimens
Topic: Gibbledygook's stents
Replies: 125
Views: 36317

Re: Gibbledygook's stents

I'm sorry you're having such a rough go of it. Hopefully your discussions with the neuros included info that interferons may worsen spasticity. Here's a link to dated (2006) info about MS from the Cleveland Clinic which notes: All interferon preparations can worsen spasticity, depression, and headac...