Search found 785 matches

by Shayk
Tue Jul 31, 2012 4:32 pm
Forum: Drug Pipeline
Topic: Estriol
Replies: 1
Views: 1916

Re: Estriol

Hi Stazmatic I am on estriol 8mg/progesterone 500mg (+Copaxone, diet, exercise, supplements). The progesterone dose was recommended after saliva hormone testing found I had none of that. Personally I wouldn't be without either the estriol or progesterone, primarily because of their neuroprotective p...
by Shayk
Sun May 13, 2012 11:55 am
Forum: General Discussion
Topic: FDA Webinar May 18th--Seeking Patient Input
Replies: 0
Views: 854

FDA Webinar May 18th--Seeking Patient Input

Hi all I've recently discovered that the FDA is hosting its "Inaugural Patient Network Meeting" , entitled, Patient Input into FDA Benefit-Risk Decision-Making: Opportunities and Challenges , Friday, May 18th from 9-4:30 pm in Maryland. This initial link has basic info about the meeting. Don't be pu...
by Shayk
Mon Feb 27, 2012 11:59 am
Forum: General Discussion
Topic: progesterone and MS
Replies: 33
Views: 14150

Re: progesterone and MS

Hi again There's a new open access (free) article on progesterone :smile: Progesterone Synthesis in the Nervous System: Implications for Myelination and Myelin Repair If you're at all interested in progesterone I think it's well worth the read; there is a small section on MS and progesterone in the ...
by Shayk
Mon Feb 27, 2012 11:16 am
Forum: General Discussion
Topic: Radiologically Isolated Syndrome
Replies: 6
Views: 2135

Radiologically Isolated Syndrome

Hi all In the FYI FWIW category, here's a link to a free full text article: Incidental demyelinating inflammatory lesions in asymptomatic patients: a Brazilian cohort with radiologically isolated syndrome and a critical review of the literature Quoting from the intro to the article: The term radiolo...
by Shayk
Sun Feb 19, 2012 9:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Burks at ISNVD
Replies: 33
Views: 4133

Re: Dr. Burks at ISNVD

I didn't see the doctors' roundtable, but in his presentation, Dr. Burk tried to convey why many neuros dismiss CCSVI and we've heard it many times, i.e., that they've seen many fads in MS come and go, i.e., snake venom, bee stings, etc. (he had a list of more on his slide) and many neurologists see...
by Shayk
Sun Feb 19, 2012 8:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Burks at ISNVD
Replies: 33
Views: 4133

Re: Dr. Burks at ISNVD

I watched several segments of the ISNVD Patient Day webinar (which was excellent IMO) and I clearly understood that Dr. Burks was in fact quoting another prominent neurologist (unnamed) who recently asked "Should we fund a study to rid the world of flying saucers?" Dr. Burks reference to "flying sau...
by Shayk
Sun Jan 29, 2012 10:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Who has been tested?
Replies: 10
Views: 1553

Re: Who has been tested?

Diagnosed with CCSVI via Doppler ultrasound screening by a wonderful technician at Buffalo (she's presenting at ISNVD). Not treated as one of my qualifying criteria was "intra-cranial venous reflux". This was discussed in a 2007 article by Dr. Zamboni--free download of entire article available. Intr...
by Shayk
Sun Jan 01, 2012 7:37 am
Forum: Copaxone
Topic: Cost of Copaxone
Replies: 34
Views: 32376

Re: Cost of Copaxone

Hi Fish Welcome to TIMS. You might want to check out "Copaxone Co-Pay Solutions"--they've had several huge advertisements in MS magazines stating that "most people with insurance will pay no more than $35 per month out of pocket"... You can call Shared Solutions at 1-800-887-8100 for more info. I do...
by Shayk
Sun Dec 04, 2011 6:52 pm
Forum: Gilenya
Topic: Actual details on reduced Lymphocytes count?
Replies: 3
Views: 2102

Re: Actual details on reduced Lymphocytes count?

Hi Cure

I don't have a clue if the info you want is in these documents but this is a link to info
on the FDA website about Gilenya.

Take care

Sharon
by Shayk
Tue Nov 08, 2011 9:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Neutral or Critical Perspectives
Replies: 185
Views: 47461

Re: CCSVI Neutral or Critical Perspectives

Sou wrote: No, interferon has never been proven to prevent disability. It has been proven that it may decrease the number of relapses in some patients. Sou, your statement is in total agreement with a recent article on Pharmacological Treatments in MS, in Issue 18, 2011 of "MS in Focus", published b...
by Shayk
Fri Sep 23, 2011 6:51 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NEUROSTEROIDS
Replies: 7
Views: 1521

Re: NEUROSTEROIDS

Thekla I wonder too if this may be a piece of the puzzle. Could it help explain why (given the info we have now) some people with CCSVI apparently do not develop MS? Neurosteroids have powerful neuroprotective properties (including against oxygen/glucose deprivation and ischemia). I think this is be...
by Shayk
Fri Sep 23, 2011 6:29 pm
Forum: General Discussion
Topic: breakthrough?
Replies: 12
Views: 3482

Re: breakthrough?

Scorpion --Thanks for posting this. I don’t know whether or not I’d label it a breakthrough but I’m definitely pleased that they took a look at the level of neurosteroids in MS brains as I’ve been interested in hormones and their relationship to MS (or not) for a long time. Neurosteroids include wh...
by Shayk
Tue Aug 23, 2011 8:21 am
Forum: General Discussion
Topic: Assisted Living
Replies: 3
Views: 1693

Assd Living for MS in Virginia

Hi Dorsey

If you haven't already done so, you might want to check out The Virginia Home which is in Richmond.

Hopefully others will chime in, from Virginia or elsewhere.

All the best to you and your son

Sharon
by Shayk
Sat Aug 13, 2011 6:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CTV NEWS MS genetic discovery casts doubt on vein theory
Replies: 6
Views: 2990

Genetic Contribution to Risk of MS

ttucker I want to pick up on your comment: There has long been a link (albeit perhaps a weak one) associating genetics to MS I quite agree with you. I don’t post often anymore but I feel compelled to post my nonscientific perspective on the relative importance of genetics in determining who actually...
by Shayk
Wed Aug 03, 2011 6:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Endovascular Therapy for CCSVI Open Access Review Article
Replies: 8
Views: 1723

Endovascular Therapy for CCSVI Open Access Review Article

Hi folks Saw on Pub Med today a new review article on CCSVI that's also open access. :D Endovascular Therapy for CCSVI in MS My initial take is that it's fair and balanced, presenting both supportive and non-supportive information with lots of info on the anatomy. It definitely recommends clinical t...