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Hi Stazmatic I am on estriol 8mg/progesterone 500mg (+Copaxone, diet, exercise, supplements). The progesterone dose was recommended after saliva hormone testing found I had none of that. Personally I wouldn't be without either the estriol or progesterone, primarily because of their neuroprotective p...

Hi all I've recently discovered that the FDA is hosting its "Inaugural Patient Network Meeting" , entitled, Patient Input into FDA Benefit-Risk Decision-Making: Opportunities and Challenges , Friday, May 18th from 9-4:30 pm in Maryland. This initial link has basic info about the meeting. Don't be pu...

Hi again There's a new open access (free) article on progesterone :smile: Progesterone Synthesis in the Nervous System: Implications for Myelination and Myelin Repair If you're at all interested in progesterone I think it's well worth the read; there is a small section on MS and progesterone in the ...

Hi all In the FYI FWIW category, here's a link to a free full text article: Incidental demyelinating inflammatory lesions in asymptomatic patients: a Brazilian cohort with radiologically isolated syndrome and a critical review of the literature Quoting from the intro to the article: The term radiolo...

I didn't see the doctors' roundtable, but in his presentation, Dr. Burk tried to convey why many neuros dismiss CCSVI and we've heard it many times, i.e., that they've seen many fads in MS come and go, i.e., snake venom, bee stings, etc. (he had a list of more on his slide) and many neurologists see...

I watched several segments of the ISNVD Patient Day webinar (which was excellent IMO) and I clearly understood that Dr. Burks was in fact quoting another prominent neurologist (unnamed) who recently asked "Should we fund a study to rid the world of flying saucers?" Dr. Burks reference to "flying sau...

Diagnosed with CCSVI via Doppler ultrasound screening by a wonderful technician at Buffalo (she's presenting at ISNVD). Not treated as one of my qualifying criteria was "intra-cranial venous reflux". This was discussed in a 2007 article by Dr. Zamboni--free download of entire article available. Intr...

Hi Fish Welcome to TIMS. You might want to check out "Copaxone Co-Pay Solutions"--they've had several huge advertisements in MS magazines stating that "most people with insurance will pay no more than $35 per month out of pocket"... You can call Shared Solutions at 1-800-887-8100 for more info. I do...

Hi Cure

I don't have a clue if the info you want is in these documents but this is a link to info
on the FDA website about Gilenya.

Take care

Sharon

Sou wrote: No, interferon has never been proven to prevent disability. It has been proven that it may decrease the number of relapses in some patients. Sou, your statement is in total agreement with a recent article on Pharmacological Treatments in MS, in Issue 18, 2011 of "MS in Focus", published b...

Thekla I wonder too if this may be a piece of the puzzle. Could it help explain why (given the info we have now) some people with CCSVI apparently do not develop MS? Neurosteroids have powerful neuroprotective properties (including against oxygen/glucose deprivation and ischemia). I think this is be...

Scorpion --Thanks for posting this. I don’t know whether or not I’d label it a breakthrough but I’m definitely pleased that they took a look at the level of neurosteroids in MS brains as I’ve been interested in hormones and their relationship to MS (or not) for a long time. Neurosteroids include wh...

Hi Dorsey

If you haven't already done so, you might want to check out The Virginia Home which is in Richmond.

Hopefully others will chime in, from Virginia or elsewhere.

All the best to you and your son

Sharon

ttucker I want to pick up on your comment: There has long been a link (albeit perhaps a weak one) associating genetics to MS I quite agree with you. I don’t post often anymore but I feel compelled to post my nonscientific perspective on the relative importance of genetics in determining who actually...

Hi folks Saw on Pub Med today a new review article on CCSVI that's also open access. :D Endovascular Therapy for CCSVI in MS My initial take is that it's fair and balanced, presenting both supportive and non-supportive information with lots of info on the anatomy. It definitely recommends clinical t...