Search found 103 matches

by patrickm
Mon Mar 10, 2008 1:16 pm
Forum: Tcelna (Tovaxin)
Topic: Extension blood draw rescheduled!
Replies: 136
Views: 23739

In addition, I have no idea whether I'm on placebo or vaccine. That did come up in our meeting and my thoughts are that of course I want to be on placebo because then I can hope that I'll feel better when I'm on vaccine. Dr. Wynn's response was that the implication of every medication is that it wil...
by patrickm
Mon Mar 10, 2008 1:11 pm
Forum: Tcelna (Tovaxin)
Topic: Extension blood draw rescheduled!
Replies: 136
Views: 23739

Tim had mentioned this aspect many times in the past and had mentioned that people who had been on the real treatment could actually experience disease/symptom progression during treatment lapse but I guess I didn't think that would really happen. Tim also pointed out that even after dosing begins ...
by patrickm
Fri Feb 22, 2008 10:28 pm
Forum: Tcelna (Tovaxin)
Topic: MRTCs, Masking/Suppressing, and Some Thoughts
Replies: 24
Views: 9726

Lars wrote:Jane,
It's nice to occasionally focus on someone who is sicker than myself.
Lars

[Patrick high fives Lars]
by patrickm
Tue Jan 15, 2008 10:53 am
Forum: Tcelna (Tovaxin)
Topic: TOVAXIN ROLE CALL
Replies: 339
Views: 51263

There was one part of the conversation that sort of blindsided me, of course it makes sense it just never crossed my mind, one must product the required MRTC's just like the initial enrollment. It would really suck to have that part of the long wait missing. Lars Yikes! You're right! Maybe Tim can ...
by patrickm
Mon Jan 14, 2008 4:07 pm
Forum: Tcelna (Tovaxin)
Topic: TOVAXIN ROLE CALL
Replies: 339
Views: 51263

Lars wrote:I just got back from my trial site. The extension reps had just been there and unfortunately my coordinator was mistaken. The procurement and waiting period is what Loobie indicated.
Lars

Image
by patrickm
Wed Jan 09, 2008 8:58 am
Forum: Tcelna (Tovaxin)
Topic: Extension blood draw rescheduled!
Replies: 136
Views: 23739

Well, there's that old control issue, for sure, but I wish the protocol allowed for very active participation--such as providing us a forum like this with all the participants. Actively monitored by an Opexa rep to make sure panic and/or rumor didn't steal the show, it would have given so many more...
by patrickm
Wed Jan 09, 2008 8:34 am
Forum: Tcelna (Tovaxin)
Topic: TOVAXIN ROLE CALL
Replies: 339
Views: 51263

merlin26- last post at thisisms Mon May 21, 2007 11:48 pm ...I gave a pint of blood. Fast forward to 10 weeks later. The hospital gets a call from the lead study coordinator of Opexa to tell them that we're very sorry but "A technical error occured during the final processing of my blood". The hosp...
by patrickm
Tue Jan 08, 2008 5:35 am
Forum: Tcelna (Tovaxin)
Topic: Extension blood draw rescheduled!
Replies: 136
Views: 23739

The first couple of times that I got my injections the vaccine caused a painful feeling in my arms. It basically hurt when the vaccine was going in (NOT when the needle went in), it didn't exactly sting but it hurt. Sounds to me like they pushed the plunger too fast. Supposed to be slowly injected ...
by patrickm
Mon Jan 07, 2008 8:23 pm
Forum: Tcelna (Tovaxin)
Topic: Extension blood draw rescheduled!
Replies: 136
Views: 23739

I'll stay out of clear/not clear debate. I've seen my serum but I ain't saying as I, like others, don't want to crush the openness of my clinic or ruin the double blind for me or anybody else, though I'm fairly sure that protocol is followed to the letter where I go. I observe my name on the bottle....
by patrickm
Mon Jan 07, 2008 8:06 pm
Forum: Tcelna (Tovaxin)
Topic: Extension blood draw rescheduled!
Replies: 136
Views: 23739

Lars wrote:Now that I have been forced to acknowledge all of this, I am never talking to you again Bob.
THAT IS F'ING FUNNY. thank you. :lol:

had a bad day and needed that.
by patrickm
Mon Jan 07, 2008 8:01 pm
Forum: Tcelna (Tovaxin)
Topic: TOVAXIN ROLE CALL
Replies: 339
Views: 51263

Thanks for checking in Patrick and I'm glad to hear that you are doing well. I knew I had missed some people in my list. Sorry! Bob Hey man, no worries. I've posted only once or twice and I don't stand much on ceremony. Thanks for the good thoughts. I go for MRI and exam on Friday. Woo. patrick
by patrickm
Thu Jan 03, 2008 7:10 am
Forum: Tcelna (Tovaxin)
Topic: TOVAXIN ROLE CALL
Replies: 339
Views: 51263

Hi All. Just catching up after being away from here for a while. It's important for everybody to remember that the subset of people posting on here is very small compared to the number of people in the study, and that this small group could easily skew one way or the other. I think support and infor...
by patrickm
Sat Sep 15, 2007 11:05 pm
Forum: Tcelna (Tovaxin)
Topic: Tovaxin Users
Replies: 96
Views: 47932

Re: Tovaxin Users

Hi. Just found this joint and of course it's right when I should have been going to bed! Anyway... • When did you receive your first vaccination? June 29, 2007 • What dose did you receive? How many millions of cells? dunno • What was your overall experience? Was a little weird, but now it's normal. ...