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by 10yearsandstillkicken
Fri Nov 20, 2009 12:20 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: a positive spin
Replies: 38
Views: 6420

Harry, Definitely one better. I think CCVSI will be received better outside the traditional MS circle. Several have suggested that MS be left from the discussion since the correlation or causation is such an issue. I guess it comes down to, who cares if it causes MS at this point if it helps. If it ...
by 10yearsandstillkicken
Thu Nov 19, 2009 7:48 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: a positive spin
Replies: 38
Views: 6420

Harry I know you like to learn. There is so much CCSVI stuff on this board now that you probably hardly know which part of the elephant to eat first because it's so big, but I think you will be taken aback at some of the reasoning behind the theory; and it IS still in that category for sure. To quo...
by 10yearsandstillkicken
Thu Nov 19, 2009 12:43 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: a positive spin
Replies: 38
Views: 6420

I had an infusion Monday and the PML is really starting to weigh on me. There are no other options as I have had it with shots. Well, no other drug options. Maybe CCSVI http://www.thisisms.com/forum-40.html will pan out. Harry, you had a chnace to look into CCSVI? I am curious what you think. A test...
by 10yearsandstillkicken
Tue Nov 17, 2009 10:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How many veins are affected by CCSVI?
Replies: 14
Views: 3479

What I'm mainly interested in is whether we're looking at a venous disease, or at something that's caused by surrounding tissue/bones. E.g. lymph nodes becoming inflamed (by EBV during adolescence...) and the inflammation affecting the jugulars would be one hypothetical reason for stenosies (which ...
by 10yearsandstillkicken
Mon Nov 16, 2009 11:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How many veins are affected by CCSVI?
Replies: 14
Views: 3479

And to add to your thought radeck, is a similar issue at play in other auto immune diseases? Might reduced blood flow cause inflamation in other organs that the immume system responds? If one disease is caused by this, is there a reason that others that are similar (type I etc.) also could be as well?
by 10yearsandstillkicken
Thu Nov 12, 2009 8:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS Society eNews and CCSVI
Replies: 91
Views: 15776

this http://www.nationalmssociety.org/news/n ... x?nid=2206 is the link to the article. Have any researchers applied or asked NMSS for funding? I have read in several posts that funding has been an issue.
by 10yearsandstillkicken
Wed Oct 28, 2009 11:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Science Daily on CCSVI - word is spreading!
Replies: 10
Views: 2674

The savings though could come if people were dx'd with CCSVI BEFORE MS symptoms appeared, if it is corrected then perhaps med's wil never be needed for them. Seems like anyone who is having an MRI done as part of the diagnosis of MS, should also be tested for CCSVI. I have seen questions about the ...
by 10yearsandstillkicken
Mon Oct 26, 2009 5:47 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: PML 3 more cases
Replies: 52
Views: 11944

I can't help but think that their decision to stop the weekly update was because they knew what was coming. Having an easy way to monitor the number of PML cases is apparently bad for business in their opinion. Not sure I agree though. Being up front would keep speculation to a minimum. Or less anyw...
by 10yearsandstillkicken
Sun Oct 25, 2009 7:19 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: PML 3 more cases
Replies: 52
Views: 11944

Harry beats the Biogen drum and he is right on. I, like you, am becoming very apprehensive about my monthy vistit for infusion. Biogen has one thing in mind, profits. I expect they know damn well what this stuff will do and figure they will profit even if they end up in court...
by 10yearsandstillkicken
Sat Oct 24, 2009 8:20 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: PML 3 more cases
Replies: 52
Views: 11944

If the numbers of PML cases do grow exponentially, do you think that it will stay on the market?
by 10yearsandstillkicken
Fri Oct 23, 2009 2:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Missing links?
Replies: 6
Views: 2202

Wouldn’t it be ironic if MS isn’t a disease at all? Billions of dollars in R&D, drugs, doctors etc for something that might be prevented with a bit of surgery. Not sure if that makes me want to laugh or cry. I guess it is hurry up and get tested at this point.
by 10yearsandstillkicken
Fri Oct 23, 2009 2:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Missing links?
Replies: 6
Views: 2202

I think we are on the same page. There have been many studies that indicate an auto immune response. Taking a step back, how might those results fit in with CCSVI or complement the discussion. It seems that those studies fit in well with this and that there is an immune response at play. I guess the...
by 10yearsandstillkicken
Fri Oct 23, 2009 1:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Missing links?
Replies: 6
Views: 2202

I guess I meant to say that these drugs are not fda approved to say they reduce brain shrinkage. A quick peek at two sites. Tysabri: In a 2-year study, some people taking TYSABRI were considered to be free from MS disease activity, because they had no fewer flare-ups, no disease progression, and no ...
by 10yearsandstillkicken
Fri Oct 23, 2009 12:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Missing links?
Replies: 6
Views: 2202

Missing links?

I have been chewing on this for a bit and I guess this must be the obvious direction of CCSVI in relation to MS. MS is generally associated with a myriad of symptoms, lesions on the brain and spinal cord, and brain shrinkage. This is the obvious part - The elusive cause, or trigger, or reason, of MS...

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