Search found 575 matches

by sou
Sat Oct 01, 2011 9:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Any PWMS would consider JUST having CCSVI and no RX?
Replies: 27
Views: 3722

Re: Any PWMS would consider JUST having CCSVI and no RX?

I used no drugs, I use no drugs. I am not against their use. They were just ineffective and not worth the money and interference to daily life. So, "CCSVI only", which is a real condition and has a practical circulatory effect, unlike DMDs which have a probable imaginary effect only.
by sou
Fri Sep 30, 2011 1:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: a CCSVI imaging study from Spain
Replies: 22
Views: 2941

Re: a CCSVI imaging study from Spain

Let's suppose that CCSVI is caused by MS. Neurologists claim that they can manage MS symptoms. So, why manage all other symptoms, but not this symptom? Are they so afraid of really curing something for the first time in their career? (Yes, CCSVI is curable in many cases)
by sou
Sun Sep 18, 2011 7:59 am
Forum: Site Support
Topic: Reported attack site?
Replies: 5
Views: 3988

Reported attack site?

Hi all. After searching using google.com's frontpage, I got a result from thisisms.com. Clicking on it resulted in this: http://img27.imageshack.us/img27/1990/attacksite.png I am pasting the search result link to make things easier: http://www.thisisms.com/forum/chronic-cerebrospinal-venous-insuffic...
by sou
Thu Sep 01, 2011 8:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: BBB leakage in EAE?
Replies: 3
Views: 1023

Dr Zlokovic gave a fantasic lecture in Bologna during the 1st ISNVD explaining how Alzheimer's, Parkinson's, ALS and MS are neurovascular disorders, characterized by vascular permeability, while explaining that vascular damage precedes that of the nervous system. Regarding EAE, this not bad news. It...
by sou
Sat Aug 27, 2011 2:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 'the wave of complications breaks'
Replies: 21
Views: 2956

What should be done? Self-censorship so that newcomers are not afraid of MS? Wouldn't that be unfair for the non-newcomers? This has already happened in other forums and, believe me, it was pretty bad. Or pretend that CCSVI does not exist and go back to the 2000s era? Why is mentioning a condition t...
by sou
Fri Aug 26, 2011 1:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 'the wave of complications breaks'
Replies: 21
Views: 2956

Why does a neurologist mess with conditions outside his field? I also think we have had enough of that immune b.sh.t. It reminds me of a joke about a woman buying a state-of-the-art washing machine in order to place the wash basin on top of it! No, no, no, let us not start a flame discussion. I want...
by sou
Thu Aug 04, 2011 9:52 pm
Forum: Site Support
Topic: Posting error
Replies: 4
Views: 4070

Same error here when posting to Dr Sclafani's thread only. Perhaps something to do with the size of the thread?

Algis, this solution is for the webmasters of the forum. I doubt that users can do anything about it.
by sou
Thu Aug 04, 2011 9:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1639530

This question crosses my head from time to time. I am not on any DMD's 6.5 years now and I hope I am going to have the procedure sometime in the near future. I am happy about my choice, back in 2005, not to take mitoxantrone without knowing whether MS were autoimmune or not and live with the risk of...
by sou
Wed Aug 03, 2011 3:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Internet considered harmful
Replies: 17
Views: 3371

+1 frodo Disregarding a theory, without even understanding it, is unscientific. I wouldn't want to be treated by a neurologist who thinks that the CCSVI treatment is balloon angioplasty of the veins of the eye during optic neuritis! The same guy has written an extensive article online with misinform...
by sou
Sun Jul 31, 2011 10:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1639530

One question (that may have already be answered, but missed): At the top of the sagital reconstruction, the vein looks completely anomalous. Is this because the probe as travelling inside the vein found turns in its way, but had no way of "knowing" they are turns, so it "thought" that it is an anoma...
by sou
Sat Jul 30, 2011 11:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: dental work and CCSVI
Replies: 12
Views: 2127

As soon as you are frozen you may notice you are also breathing hard, and other things. That is the epinephrine. AFAIK, epinephrine/adrenaline open wide the airways and are given as a first-aid to patients experiencing allergic shock that prevents them from breathing. Note: Epinephrine is a greek w...
by sou
Fri Jul 29, 2011 6:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I am becoming skeptical...
Replies: 20
Views: 2464

I thought that the Zivadinov study and Hubbard's observations prove it. Ok, the observations is an ultra-strong indication, not proof with the mathematical meaning of the word.
by sou
Fri Jul 29, 2011 2:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I am becoming skeptical...
Replies: 20
Views: 2464

they MAY find block veins. I am not talking bout veins. I am talking about perfusion/oxygenation . I rephrased it a bit so that I am more clear. who knows whats safe Is hypoxia safe? AFAIK, it is never safe for any tissue. theres usually collateral veins bypassing the block. after angioplasty blood...
by sou
Thu Jul 28, 2011 10:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I am becoming skeptical...
Replies: 20
Views: 2464

Lyon, everybody is free to take a cold, unbiased, without feelings MRI scanner and measure oxygenation throughout the CNS between controls and MS patients. Tell me, what have they found a few years before Dr Zamboni's publication? Is this difference safe? What happens after correcting the non-existi...
by sou
Sat Jul 09, 2011 6:30 pm
Forum: Diet
Topic: feta cheese----dairy or not?
Replies: 5
Views: 62067

Original feta cheese is made by a mixture of sheep's and goat's milk. It contains no cow milk at all. If it does, it is not "feta".