Search found 792 matches

by AndrewKFletcher
Wed Feb 08, 2012 7:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy (IBT) Feedback Request
Replies: 37
Views: 9067

Re: Inclined Bed Therapy (IBT) Feedback Request

Tore, thanks for clarifying the fine motor improvements. Glad you find the reduced angle has helped. IBT was shown to be effective for people with ms long before CCSVI became mainstream. IBT improves circulation and I suspect helps to restore damaged nerves-- given that it also works with spinal cor...
by AndrewKFletcher
Tue Jan 31, 2012 1:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy (IBT) Feedback Request
Replies: 37
Views: 9067

Re: Inclined Bed Therapy (IBT) Feedback Request

Amir Here is a template for your patients to report changes and to help to identify changes they might not notice otherwise. Only a suggestion but you might find it useful: http://www.inclinedbedtherapy.com/index ... emid=30#p2
by AndrewKFletcher
Tue Jan 31, 2012 1:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy (IBT) Feedback Request
Replies: 37
Views: 9067

Re: Inclined Bed Therapy (IBT) Feedback Request

Danegirl

Thanks for the update. Have you noted any more improvements or relapases during this time that you can share with us?

Andrew
by AndrewKFletcher
Tue Jan 31, 2012 1:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy (IBT) Feedback Request
Replies: 37
Views: 9067

Re: Inclined Bed Therapy (IBT) Feedback Request

Wow that's some slope your sleeping on, try 6 degrees or less, not surprised sliding down the bed, though a friend sleeps at this angle and loves it. Can you elaborate more on your fine motor and foot drop improvements these are very interesting developments and I'm sure the forum would like to know...
by AndrewKFletcher
Wed Jan 25, 2012 12:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy (IBT) Feedback Request
Replies: 37
Views: 9067

Re: Inclined Bed Therapy (IBT) Feedback Request

Doctor Amir Thank you for recommending IBT. My GP also recommends IBT for his patients, he adds, the majority of my patients using IBT do not visit me any where near as often as they had previously and for me this is good news. If you decide to advise IBT for Varicose veins, could you ask for photog...
by AndrewKFletcher
Tue Jan 24, 2012 12:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: J.K. Rowling
Replies: 28
Views: 3481

Re: J.K. Rowling

EJC and Amir I agree wholeheartedly with your posts on subdivision
by AndrewKFletcher
Tue Jan 24, 2012 11:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: J.K. Rowling
Replies: 28
Views: 3481

Re: J.K. Rowling

Mr Simkins retired a few years ago The trial would involve people using IBT at home and monitoring their own progress with regular check ups that would coincide with routine appointments. A good point about the quality of mattresses, something that would require some consideration, and possibly a tr...
by AndrewKFletcher
Sun Jan 22, 2012 1:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: J.K. Rowling
Replies: 28
Views: 3481

Re: J.K. Rowling

Randomised controlled studies for Inclined Bed therapy can easily be achieved using the Crossover – over time, each participant receives (or does not receive) an intervention in a random sequence. John Simkins Former (MSRC) Manager suggested a double crossover by adding a reverting back to flat bedr...
by AndrewKFletcher
Sat Jan 21, 2012 10:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: J.K. Rowling
Replies: 28
Views: 3481

Re: J.K. Rowling

I wish it where that simple, the majority of people will not try anything unless is has a medical stamp of approval and a quantifiable acknowledged study. How many people have read about IBT and not bothered to try it?
by AndrewKFletcher
Sat Jan 21, 2012 2:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: J.K. Rowling
Replies: 28
Views: 3481

Re: J.K. Rowling

IBT is not an idea that don't work, it is a well thought out and proven therapy that has been shown to work for pwms!
by AndrewKFletcher
Sat Jan 21, 2012 1:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: J.K. Rowling
Replies: 28
Views: 3481

Re: J.K. Rowling

IBT is more of a medical management technique (to manage the problem without treating) and IRs have the skills to actually treat. I am not sure who would take on researching the use of inclined beds in MS patients. There is logic to the idea of inclining beds. If it were something that could be sol...
by AndrewKFletcher
Fri Jan 20, 2012 1:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: J.K. Rowling
Replies: 28
Views: 3481

Re: J.K. Rowling

He is suggesting it's self fullfilling. CCSVI creates interest, therefore the forum subcategory is created to discuss the subject, which appears in google searches, which attracts more people, which creates more discussion with more people. This generates more interest and on and on. Could we have ...
by AndrewKFletcher
Thu Jan 19, 2012 4:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: J.K. Rowling
Replies: 28
Views: 3481

Re: J.K. Rowling

Cure Trying to understand your response, so you are saying is if there was no published paper then this forum would not have become interested in CCSVI? This backs up my request for assistance to establish a controlled study and to publish papers based on that controlled study. Nevertheless the huge...
by AndrewKFletcher
Tue Jan 17, 2012 2:19 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: J.K. Rowling
Replies: 28
Views: 3481

Re: J.K. Rowling

Cece TIMS is a very powerful community that attracts the researchers you mention. Given the fact that the results from people trying IBT have reflected the results from the first and second pilot studies, we should at least try to establish a controlled study and I feel pretty confident that this co...