Search found 326 matches

by zap
Thu Apr 29, 2010 11:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Legal fears thwart doctor's bid for ‘liberation' from MS
Replies: 24
Views: 4407

blagh, a skepticism-inclined friend on Facebook just posted this: Restricting this procedure while trials are under way (which they are) is entirely appropriate. It isn't benign (there has been at least one death, so far), and there is no hard evidence yet of efficacy. As for the reported effects: T...
by zap
Tue Apr 27, 2010 9:21 am
Forum: General Discussion
Topic: In light of CCSVI, start Copax or not?
Replies: 9
Views: 2202

The bigger piece for me really was not the negatives, but the likelihood of positive effect. I think that it is pretty useless drug, hyped up with fear tactics more than supported by statistically significant evidence. I'm not gonna argue about it, but that's what I believe. No relapses in 3-4 years...
by zap
Mon Apr 26, 2010 7:17 pm
Forum: General Discussion
Topic: In light of CCSVI, start Copax or not?
Replies: 9
Views: 2202

Without CCSVI in the picture at all, I still decided to say 'no' to Copaxone. The likelihood of positive effect was outweighed by the likelihood of side effects, cost, and being reminded at needlepoint every day that I "had MS."

YMMV.
by zap
Mon Apr 26, 2010 7:14 pm
Forum: General Discussion
Topic: How scientific is modern medicine really?
Replies: 3
Views: 1490

interesting article, thanks ... not into homeopathy, love science, but sadly it's pretty right on for western modern medicine.
by zap
Fri Apr 23, 2010 8:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can heat sensitivity be explained from CCSVI point of view?
Replies: 15
Views: 4505

I think CCSVI explains the old "hot bath test" for MS and the heat fatigue much, much better than the autoimmune theory, which is explained this way: The destruction of myelin, the protective sheath which surrounds and protects nerve fibres causes the formation of plaques on the nerves which slow ne...
by zap
Tue Apr 20, 2010 12:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: the world against ccsvier's
Replies: 42
Views: 7242

Argument #1 - Neurologists don’t want CCSVI to be true, because then they’ll “lose business”. If MS was cured tomorrow, Neuros would still have plenty of work with Parkinsons, stroke, alzheimers etc. Even if venoplasty alleviates some of the symptoms of MS, it still remains a disease of the neurolo...
by zap
Sun Apr 18, 2010 6:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Brad Stewart
Replies: 36
Views: 6628

The current standard for what is considered a successful ms drug treatment is slowing down progression in 30% of the test subjects. The effectiveness bar is set very low. Correct me if I'm wrong, but as I recall it has not even been showed to slow down progression overall - just lengthen the amount...
by zap
Thu Apr 15, 2010 6:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: advice from ZAMBONI and Zivadinov
Replies: 31
Views: 6034

I watched this too and it was obvious that the statements made relating to safety would be the ones most reported. Zamboni and Zivadinov obviously could not say anything else in public but that whatever is done needs to be safe. But they both made a distinction between research and practice. They w...
by zap
Wed Apr 14, 2010 10:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NO blood flow in L Jug!
Replies: 22
Views: 5144

mshusband wrote:MS (demyelenization)
Don't forget that studies show that damage to axons and oligodendrocytes happens BEFORE the lesions / demyelenization that shows up on MRIs ...
by zap
Sun Apr 11, 2010 8:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jugular Vein Obstruction caused by turning of the head--
Replies: 38
Views: 9010

another thing that occurs to me is that I breathe very shallowly/quietly while sleep - I wonder if this might also contribute, by not "priming the vascular pump." (deep breathing promotes vascular return to the heart, although I'm not 100% sure if this is also true in the prone position). Not sure ...
by zap
Sat Apr 10, 2010 9:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Colin Rose about Kuwait
Replies: 30
Views: 7326

Asher wrote:"increasing venous pressure would affect the face".

At face value ...
:D
by zap
Sat Apr 10, 2010 9:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Q for those that had negative doppler/MRV
Replies: 2
Views: 1668

I dunno ... I had a doppler done @ Stanford and pretty sure that Dake didn't even really look at it, indicating that the standard doppler tests (not done to Zamboni's protocol] were of limited or no value ... he just focused on the MRV entirely.
by zap
Sat Apr 10, 2010 6:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jugular Vein Obstruction caused by turning of the head--
Replies: 38
Views: 9010

another thing that occurs to me is that I breathe very shallowly/quietly while sleep - I wonder if this might also contribute, by not "priming the vascular pump."

(deep breathing promotes vascular return to the heart, although I'm not 100% sure if this is also true in the prone position).
by zap
Thu Apr 08, 2010 12:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy
Replies: 832
Views: 210087

Re: question for andrew

Selmahope wrote:I am a side sleeper so my arms are to the side or above my head. I also sleep with covers over my head hand up
see http://www.thisisms.com/ftopict-11038.html
by zap
Thu Apr 08, 2010 9:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jugular Vein Obstruction caused by turning of the head--
Replies: 38
Views: 9010

aha! my intuition (on this, at least) seems to have been validated!! http://www.thisisms.com/ftopicp-71195.html http://www.thisisms.com/ftopicp-98820-sleeping.html#98820 But now that's it's more than a hunch of mine, I can hopefully muster the will to sleep on my back most or all of the time, rather...

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