Search found 1125 matches

by ErikaSlovakia
Sun Dec 04, 2011 6:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy (IBT) Feedback Request
Replies: 37
Views: 9623

Re: Inclined Bed Therapy (IBT) Feedback Request

Dear Andrew, I have decided to go flat after more than 2 years. Pain in my neck was so bad. I have been having problems also with my C and Th spine from my childhood. A chiropractor fixed it last week. I do not know when and if I tilt my bed again as the neckpain is almost gone with flat bad. I am s...
by ErikaSlovakia
Sun Dec 04, 2011 6:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 558511

Re: CCSVI and CCVBP

Dear Dr. Flanagan, I had these misalignments: C1, C3, C4, C5, C6, Th1 and couple of more Th and 2 lumbar last week. It was in January the same or very similar. I have had these problems since my childhood. I was born with abnormal rotation of my head. I also have spina bifida occulta. Are there any ...
by ErikaSlovakia
Wed Nov 23, 2011 3:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Erika`s procedure in Poland
Replies: 493
Views: 102495

Re: Erika`s procedure in Poland

what do you think about waiting 3 months now, and then getting another set of tests for d3, cal, and mag. after that, depending on results, you could likely push it up to 6 months before next testing. what has your doc had to say about these improvements? i hope she is happy! OK. Regarding my docto...
by ErikaSlovakia
Wed Nov 23, 2011 3:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Erika`s procedure in Poland
Replies: 493
Views: 102495

Re: Erika`s procedure in Poland

CindyCB wrote:Erika,

Just wondering what type of anticoagulation therapy you had after your procedure and you do you still take anything?
I had my procedure in November 2009. I was injecting Clexane (low moleculare heparin) for 60 days.
I still take 100 mg of Aspirin (life long).
Erika
by ErikaSlovakia
Tue Nov 22, 2011 5:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Erika`s procedure in Poland
Replies: 493
Views: 102495

Re: Erika`s procedure in Poland

that's great erika!! i would say continue with d3, calcium, magnesium and zinc for sure. see if you can get the d3 up to 60 ng/ml. also, i think the units for magnesium are mmol/L yes? ..you still need to get up above 0.90 mmol/L. Yes, it is nmol/L. When you talk about magnesium. I think I never to...
by ErikaSlovakia
Mon Nov 21, 2011 2:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy (IBT) Feedback Request
Replies: 37
Views: 9623

Re: Inclined Bed Therapy (IBT) Feedback Request

AndrewKFletcher wrote:Hello Erika, sorry to hear about your current health problems.

May I ask why you opted for 11cm incline as opposed to 15 cm?
My spina bifida was killing me. I almost couldn´t start to walk in the morning because of pain in my legs. Since I went to 11 cm the strong pain is gone.
Erika
by ErikaSlovakia
Sun Nov 20, 2011 8:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My wife's turn next week in Poland - am I dreaming or not?
Replies: 73
Views: 14049

Re: My wife's turn next week in Poland - am I dreaming or no

What to say? Just amazing! I am happy for you. I admire her a lot!
Erika :smile:
by ErikaSlovakia
Sun Nov 20, 2011 5:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy (IBT) Feedback Request
Replies: 37
Views: 9623

Re: Inclined Bed Therapy (IBT) Feedback Request

Andrew, I am too week and too fatigued to post something.
I still sleep 11 cm inclined. I still have headaches and all my old problems.
My vision is too week to be able to read exactly what is written here. Sorry :-(
Erika
by ErikaSlovakia
Fri Nov 18, 2011 11:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Erika`s procedure in Poland
Replies: 493
Views: 102495

Re: Erika`s procedure in Poland

Wow, Jimmylegs, it works! :-) After about 6 weeks of 500 mg of Magnesium per day, 1000 mg of Calcium per day and 25 mg of Zinc with only 5000 IU of D3 my D3 levels are finally after 1,5 year going up. I started in March 2010 and my first results of D3 in my blood were only 7,09 ng/ml. Results from t...
by ErikaSlovakia
Fri Nov 18, 2011 6:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Live case from the VEF Conference which was held in Katowice
Replies: 3
Views: 749

Re: Live case from the VEF Conference which was held in Kato

One thing I regret is that he never mentioned his name and I do not recognise him! Can anyone help me out? He is from Euromedic. The doctor doing the procedure and commenting is Dr. Kazibudzki , he is actually vascular surgeon. The second doctor who is assisting him is Dr. Świerad who is an interve...
by ErikaSlovakia
Thu Nov 17, 2011 10:57 am
Forum: General Discussion
Topic: provigil for fatigue study showed no improvement in fatigue
Replies: 6
Views: 2259

Re: provigil for fatigue study showed no improvement in fati

I am not surprised. Provigil doesn´t help my fatigue.
I started to take it about 2 years ago. I keep trying sometimes but really - it does nothing for me :-(
Erika
by ErikaSlovakia
Thu Nov 17, 2011 1:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Another Important New BNAC CCSVI Study
Replies: 56
Views: 6724

Re: Another Important New BNAC CCSVI Study

good exchange of ideas and information . As you know , there has been a long held view that -trauma - has been long suspected as the trigger for MS. I suspect that X % of children born ..... suffer some form of neck trauma , in the birthing process. If you have ever witnessed forcep deliveries .......
by ErikaSlovakia
Thu Nov 03, 2011 12:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Erika`s procedure in Poland
Replies: 493
Views: 102495

Re: Erika`s procedure in Poland

2 years after my CCSVI procedure in Poland Nothing new. I am still getting worse. I had more energy only the first 33 days. My fatigue, cog-fog, sleepiness, balance, vision, dizziness, nausea, headaches and weakness are very big problems. I am still able to walk with one cane. Evenings are better t...
by ErikaSlovakia
Wed Nov 02, 2011 1:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1716656

Re: DrSclafani answers some questions

Thank you all for the information about migrating stent.
I think the patient will inform me in case of some changes.
Erika
by ErikaSlovakia
Tue Nov 01, 2011 12:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Montel's announcement
Replies: 228
Views: 39259

Re: Montel on Dr Oz Show

It is not liberation......but worth it http://www.doctoroz.com/videos/montels-own-procedure?mid=51 MarkW You know, regarding the word liberation. I understood it like liberation of the blood flow. I think it was even said or written somewhere in 2009. I think only some patients or maybe press chang...

Go to advanced search