Search found 47 matches

by Bear2
Wed Nov 24, 2010 5:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1842669

[quote="drsclafaniI would like to illustrate this with some images from some procedures using high pressure large diameter balloons. I think that this technique can pull the stuck valve off the wall and allow freer flow. let me illustrate with some images The images below show a variety of attempts ...
by Bear2
Fri Nov 19, 2010 9:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Egypt in December.
Replies: 20
Views: 3728

If it holds true that he's only seeing 2% restenosis rates, then that's another reason to go with Dr. Sinan. Do you happen to know what he uses for anticoagulants? I took: Clexane 60 unit 2x per day for 7 days Plavix 75mg 1 per day for 14 days Aspirin 81mg 1 per day for 1 year You were seen with Dr...
by Bear2
Fri Nov 19, 2010 8:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Egypt in December.
Replies: 20
Views: 3728

Cece wrote:If it holds true that he's only seeing 2% restenosis rates, then that's another reason to go with Dr. Sinan.

Do you happen to know what he uses for anticoagulants?
I took:

Clexane 60 unit 2x per day for 7 days
Plavix 75mg 1 per day for 14 days
Aspirin 81mg 1 per day for 1 year
by Bear2
Sun Nov 14, 2010 3:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Egypt in December.
Replies: 20
Views: 3728

It was 7000 US in September, go to Facebook page for Egypt.

http://www.facebook.com/group.php?gid=1 ... 732&v=wall
by Bear2
Mon Aug 16, 2010 5:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chelation Therapy
Replies: 9
Views: 2501

I did the Clelation therapy by way of suppositories a couple years ago. I tested my blood before and after. My heavy metal load was not real high. After the course the blood test showed some reduction in mercury, but it was not very high to start with. It made no change in my symptoms. I did the blo...
by Bear2
Mon Jul 19, 2010 4:59 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Tysabri and Depression
Replies: 7
Views: 3827

Hi Drury, I have been on Tysabi for 15 infusions and no dark thoughts. It has been so much better than Rebif which really put me into the dark thoughts. Those 3 shots a week plus feeling like crap really made ending it all a good possibility. After I stopped Rebif and started Tysabri, all the dark t...
by Bear2
Mon Jun 14, 2010 3:00 pm
Forum: General Discussion
Topic: Dosage of compounded 4-AP?
Replies: 2
Views: 1841

I take 10mg 2x per day for a total of 20mg per day. This is what was prescribed as a higher dose increases chance of seizures. I have been taking this for about 1 year and it does help with my walking. I take it at 8am and again around 3-4pm. I am trying to start Ampyra to see if the longer release ...
by Bear2
Fri May 28, 2010 2:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AMEDS Poland?
Replies: 70
Views: 16727

Everything was by email

Their email had July 28th for date. I asked for later date in Sept but no reply. It has only been 4 hours since I sent the reply.

No $$ were ever asked for or sent.

Jim
by Bear2
Fri May 28, 2010 1:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AMEDS Poland?
Replies: 70
Views: 16727

I was offered July 28th. I had sent first email on Feb 21st.

I asked them to change it to Sept.

Jim
by Bear2
Thu May 27, 2010 7:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I'm back from BNAC and I have CCSVI !!!
Replies: 75
Views: 12220

A venogram costs about 10,000 in US.
by Bear2
Thu May 27, 2010 4:38 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: The cost of your Tysabri infusion?
Replies: 22
Views: 34764

My infusion cost $3100 after insurance adjusts the amounts billed. I pay 10% of that 3100. The original marked-up charge for the drug is $4500 by the infusion center. Thats 13 infusions per year X 3100 = $40,000 per year. ShootingStar - Bio Gen has a patient assistance program were you could get dru...
by Bear2
Wed May 05, 2010 9:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1842669

i am skeptical about bifurcation narrowings. the lesion is often lower and the narrowing above may be physiological. what is your classification. PPMS may not respond in the same way as RRMS[/quote] I am SPMS and have lesions on spine and brain. The spine ones seem to be causing most physical proble...
by Bear2
Tue May 04, 2010 11:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1842669

Dr. Sclafani, First off, you are doing such a wonderful thing, educating everyone. Hope you get to be a plummer again soon. I had a venogram in Jan 2010. It showed normal azygos and right ijv. The left had a mild stenois at the carotid bifurcation. Venoplasty of the left was performed. The end resul...
by Bear2
Sun Feb 14, 2010 1:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Conflicts of Interest
Replies: 35
Views: 7990

"The multiple sclerosis (MS) market has total global revenues of over $6bn in 2008. Those revenues will exceed $9bn during the second half of next decade, our new study shows. Lora hit the hammer on the nail. The present use of DMDs is the biggest resistance to anything that will interfere with the ...
by Bear2
Thu Feb 04, 2010 5:55 pm
Forum: Drug Pipeline
Topic: Acorda annouces pricing AMPYRA
Replies: 5
Views: 2469

I don't think so.

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