Search found 47 matches

by Bear2
Wed Feb 03, 2010 6:04 am
Forum: Drug Pipeline
Topic: Acorda annouces pricing AMPYRA
Replies: 5
Views: 2469

Acorda annouces pricing AMPYRA

Formally called Fampridine-SR is now called AMPYRA and priced according to the ms drug method of $$$$.



http://phoenix.corporate-ir.net/phoenix ... highlight=



Jim
by Bear2
Sun Jan 24, 2010 2:13 pm
Forum: General Discussion
Topic: Acorda Gets FDA Marketing Approval For Ampyra (Fampridine)
Replies: 6
Views: 2382

Acorda has not priced this yet, they say by March. During many of their presentations at investor conf, they have indicated 5-10K but would dance around the answer when asked.

I exspect it to be some outrageous anount.

Jim
by Bear2
Sun Jan 24, 2010 2:03 pm
Forum: Introductions
Topic: hi
Replies: 1
Views: 1194

Welcome lubylu.

Jim
by Bear2
Wed Jan 20, 2010 4:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Personal story about liberation procedure.
Replies: 76
Views: 17257

Ewalala, Great news! I'm so happy to hear someone from the US got treated in Poland. I have only 1 question - How are you taking blood thinners? Mostly since you had stents in Poland and you will need to take blood thinners. Who is writing the scrip and doing the follow up care? There is such a prob...
by Bear2
Fri Jan 08, 2010 8:37 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: insurance costs
Replies: 3
Views: 1770

I'm sorry you are getting the run around. Maybe talking to your neuro or the tysabri person that signed you up for tysabri at your neuro office can help. I think they have different contacts.
by Bear2
Thu Jan 07, 2010 6:00 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: insurance costs
Replies: 3
Views: 1770

You should contact biogen idec as they have an assistance program for the drug. Low income people can get the drug for free but the infusion cost is not covered since that is the infusion center charge.

I pay about $300 total an infusion out of pocket, includes the drug.

Jim
by Bear2
Sun Dec 20, 2009 7:01 am
Forum: Introductions
Topic: Greetings from Chapel Hill
Replies: 4
Views: 1450

Judi,

I finally received "The Voices of MS". I had to order it as Borders only has it via mail order.

Your story was Very Good. I have read a few so far, tear jerkers as I am so emotional these days.

Jim
by Bear2
Mon Dec 14, 2009 4:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: No one will listen
Replies: 14
Views: 6012

Then again, you can't put the genie back in the bottle....


This reminds me of Ron White from the "Blue Collar Comedy tour"

:D

Jim
by Bear2
Wed Dec 09, 2009 5:39 am
Forum: Introductions
Topic: Greetings from Chapel Hill
Replies: 4
Views: 1450

Hi Judi, I looked up your essay in The Voices of MS. I need to get it at Borders, hopefully this weekend. I live in Pittsboro and am very excited about CCSVI. Hopefully, it will gain traction in US in spite of the phama/biotec and general nero resistance to this. It's not a $$$$ drug so it can't wor...
by Bear2
Mon Dec 07, 2009 6:26 am
Forum: General Discussion
Topic: Fampridine / Aminopyridine
Replies: 4
Views: 1804

I'm not really sure of when it started helping me. In fact, at first I thought it was not really working. Well, now I really feel it is helping me. I'm in NC and get it from Triangle Compounding. I am going to trying your place in CA. It probably won't be covered by any insurance because it is not a...
by Bear2
Sun Dec 06, 2009 7:09 am
Forum: General Discussion
Topic: Fampridine / Aminopyridine
Replies: 4
Views: 1804

Yes, I have been taking 20 mg per day, 10mg morning and 10mg evening for about 13months now. It helps with my walking, not a lot but every bit is good. Mine costs about $4 per day. Acorda should get the up/down vote from fda in late Jan. If approved, it will be called some other name. I started with...
by Bear2
Thu Dec 03, 2009 7:43 am
Forum: Drug Pipeline
Topic: Detrol LA....any comments?
Replies: 4
Views: 2262

I tried Detrol LA for a few months, did nothing so I stopped.

I then tried EnableX which worked great on the bladder but the constiptation was too much so I stopped that too.

Jim
by Bear2
Fri Nov 20, 2009 7:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian Documentary ????!!!!
Replies: 152
Views: 28898

Outstanding!!!
by Bear2
Tue Nov 10, 2009 7:13 pm
Forum: General Discussion
Topic: Examiner Bio New drug once used as bird poison shows promis
Replies: 3
Views: 1424

The newspaper is alittle slow, this has been thru phase 3 trial and awaiting the FDA decision, which should be this spring.

It is now called Ampriva. It was called fampridine SR but the company, Acorda, changed the name recently. acorda.com has all the info.

Jim
by Bear2
Fri Nov 06, 2009 3:08 pm
Forum: Rebif
Topic: Inflamed colon from Rebif?
Replies: 1
Views: 2329

Sorry to hear you are having all of these problems. I took Rebif for 7 months and the biggest problem was the flu sx but my bloodwork was always not good and re-checked after every month. There was something wrong every time. I finally switched to Tysabri. I took a vacation of 15 days from Rebif bef...

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