Search found 114 matches

by GiCi
Thu Nov 12, 2009 7:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I'm so glad
Replies: 23
Views: 4335

Loobie

I wish to join cheerleader: congratulations and please focus on the fact that MS is not a disease but a consequence of a congenital malformation of our neck veins: it can be fixed.
GiCi
by GiCi
Thu Nov 12, 2009 6:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: First liberation procedure in UK
Replies: 174
Views: 45916

catscan

I wish to reassure everybody regarding the risks of having a catscan. It is true that X-rays are involved, but the dose is minimal (most the the work is done by the computer) and the risk negligible. No need therefore to take fancy drugs for prophilaxis.
GiCi
by GiCi
Thu Nov 05, 2009 5:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: First liberation procedure in UK
Replies: 174
Views: 45916

sou

sou, Blaming the deposition of iron in the brain as responsible for the disability would be like blaming the loss of blood from a wound for the consequent death by exanguination. Of course at the end both cause the damage but what is the cause of the cause? CCSVI in the first example, a knife in the...
by GiCi
Wed Nov 04, 2009 8:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post CCSVI stenting - getting off meds safely and exercise
Replies: 9
Views: 2567

drugs and exercise

magoo, I am delighted to hear about your improvement after the procedure. I have experienced the same. I have never taken any medication because I do not believe one can treat something one does not know the cause of. For the last 8 years I have being taking anti-oxidants every day: two capsules of ...
by GiCi
Wed Nov 04, 2009 8:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: First liberation procedure in UK
Replies: 174
Views: 45916

CCSVI never to be universally treated?

cah, I take your point but I would not be as pessimistic as you seem to be. As soon as a minimum of two centres publish a well conducted study that demonstrates beyond doubts that the liberation procedure is followed by an improvement in the condition of MS well beyond the spontaneous fluctuation of...
by GiCi
Mon Nov 02, 2009 7:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Possible animal model for MS by inducing CCSVI ?
Replies: 6
Views: 2167

animal model

If we think that the defective drainage of venous blood from the brain is mainly due to congenital (present at birth) narrowing of the jugular and/or azygos veins, and that MS develops at least 30 years after birth, and can slowly progress for 30-40 years after its onset, the only effective animal m...
by GiCi
Mon Nov 02, 2009 7:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: First liberation procedure in UK
Replies: 174
Views: 45916

war

Sharon, In Italy we have free medical treatment for everybody (NHS), although a number of people buy medical insurance to jump the queue and in the hope to obtain a more personalized treatment. If a radiologist decides to treat a venous anomaly the NHS would not have anything to object, but if the n...
by GiCi
Sun Nov 01, 2009 6:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: First liberation procedure in UK
Replies: 174
Views: 45916

obstacles

If Zamboni himself is prevented to see new patients what hope do we have that his followers around the world will experience better treatment? The lobby of the neurologists has to be more powerful that we ever imagined and I sincerely hope that their war against CCSVI is dictated by clinical belief ...
by GiCi
Fri Oct 30, 2009 8:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 40-50k out of pocket??!!
Replies: 23
Views: 4256

fees

The kind of money you are mentioning in this topic sounds incredible to me. A private cardiac operation in my hospital, involving opening of the chest, the construction of several coronary by-passes or the repacement of a heart valve, or both together, including 8-10 days of stay, will cost around 1...
by GiCi
Thu Oct 29, 2009 7:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Need a workable, simple definition of CCSVI & stenting
Replies: 7
Views: 2670

simple definition

HappyPoet, I agree with you that reading what has now become a book on CCSVI can be a daunting task. Not many people have the required time and perhaps the required level of education for reading the mass of data and understanding it. Your point is well put: let's try to simplify things. Everybody i...
by GiCi
Wed Oct 28, 2009 7:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: First liberation procedure in UK
Replies: 174
Views: 45916

relocation

Thank you radeck for the nice proposal. Unfortunately I am too old to be able to contemplate a relocation and a change of practice.
GiCi
by GiCi
Tue Oct 27, 2009 6:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: First liberation procedure in UK
Replies: 174
Views: 45916

frustration

mrodhes40, In this country one can only practice the kind of surgery one has being appointed for by the hospital. I was appointed as consultant cardiac surgeon and I can therefore only do cardiac surgery, although I am a specialist in vascular surgery as well. A private clinic here would not allow m...
by GiCi
Mon Oct 26, 2009 12:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: First liberation procedure in UK
Replies: 174
Views: 45916

Getting a venogram

I had a chat with Dr Baker this morning and he stated very clearly to me that he and dr Collins are not prepared to treat MS patients at the present due to lack of a randomized study. Both are enthusiastic about Zamboni's idea and are looking in the possibility of setting up a trial in Belfast. I kn...
by GiCi
Sat Oct 24, 2009 6:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Marketing CCSVI
Replies: 75
Views: 13451

marketing

It is heart melting to read the enthusiasm with which the people posting on this topic are prepared to formulate ideas that could be helpful in promoting the concept of CCSVI. It is a touching example of the desire to help oneself and others. Although I praise the initiative I must express some doub...
by GiCi
Thu Oct 22, 2009 12:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: First liberation procedure in UK
Replies: 174
Views: 45916

site of stenosis

radeck,
The stenosis re-occurr at the same level they were before.
GiCi

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