Search found 70 matches

by ScutFarkus
Tue Feb 09, 2010 10:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Double Blind Shmind
Replies: 6
Views: 2426

It would be interesting, but not conclusive

There are a lot of difficulties with doing a study the way you suggest, many of which would prevent it from being either conclusive or definitive. One practical problem is that just getting the medical records for a large number of people scattered across the globe would be a huge undertaking, and n...
by ScutFarkus
Thu Feb 04, 2010 3:51 pm
Forum: General Discussion
Topic: Stanford vs UCSF?
Replies: 2
Views: 2411

I picked UCSF

I know this is a relatively old thread, but since I went through the same decision process last summer, and others may search for this topic again, I figure it's worth replying. I chose UCSF, even though Stanford is much closer to my home and work (Stanford is a 30-minute drive, versus about an hour...
by ScutFarkus
Tue Jan 19, 2010 3:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ashton Embry's new article -"CCSVI-Some More Thoughts&q
Replies: 34
Views: 7430

Early results next month from the Buffalo study

Mark W from the Univ of Buffalo website The new study will involve 1,600 adults and 100 children. The cohort will be comprised of 1,100 patients who were diagnosed with possible or definite MS, 300 age-and-sex matched normal controls, and 300 patients with other autoimmune and neurodegenerative dis...
by ScutFarkus
Tue Jan 19, 2010 11:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ashton Embry's new article -"CCSVI-Some More Thoughts&q
Replies: 34
Views: 7430

Dr. Embry seems like a sincere guy, but...

To clarify some things about my post: I know who Dr. Embry is, of course. I actually exchanged a couple emails with him last year, when I was trying to get an update on the status of clinical trials for his diet. His website describes an ongoing study with the note that "it is hoped that results wil...
by ScutFarkus
Mon Jan 18, 2010 4:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ashton Embry's new article -"CCSVI-Some More Thoughts&q
Replies: 34
Views: 7430

Re: End of Critique

Mose wrote: Please do go on. Sorry I have more interesting things to do. My job is just making people think about facts and speculation................... I agree with Mark that this is a really poor, counter-productive article. I encourage people not to use this in your efforts to convince your ne...
by ScutFarkus
Mon Dec 21, 2009 7:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Burden of Proof...a rant
Replies: 22
Views: 3926

Re: Burden of Proof...a rant

The existing CARB treatments have undergone extensive long-term testing to "prove" that they reduce disease progression (in RRMS, at least), and that they are safe for long-term use. How do they know that its not just the nature of RRMS at work? I have a hard time hanging a hat on a stated high 30s...
by ScutFarkus
Mon Dec 21, 2009 6:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Burden of Proof...a rant
Replies: 22
Views: 3926

I just want to add, I do like to argue/debate so I hope nobody takes offense to anything I say. In a few months I believe this will all be a mute point as things take hold and more and more doctors are willing to treat a new disorder called CCSVI.......the next step down for my wife would probably ...
by ScutFarkus
Mon Dec 21, 2009 2:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Burden of Proof...a rant
Replies: 22
Views: 3926

scutfarkus, I have made a donation to the Buffalo study. Have you ? Good on you. And yes, I have donated as well, but it seems you're missing my point. The point I was trying to make was that the lack of widely available CCSVI treatments today isn't evidence of a double standard compared to CARB dr...
by ScutFarkus
Mon Dec 21, 2009 2:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Burden of Proof...a rant
Replies: 22
Views: 3926

Re: Burden of Proof...a rant

Just curios what you all think about the burden of proof issue the CCSVI proponents are having to go through. Of course everyone wants as much proof as possible, but at what level do you say "OK, we have enough to start offering treatment?" Is is a double standard to require a high burden of proof ...
by ScutFarkus
Sun Dec 13, 2009 11:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Stent manufacturers
Replies: 38
Views: 5692

Re: Market forces?

If the stents come from the same manufacturers, then why would sell them to the clinic in Poland for 1/5 or 1/10 of the price. If it's not the same manufacturers, is the quality of the European ones lower... or is it that in Europe they don't worry so much about liability? I suspect the actual manu...
by ScutFarkus
Wed Dec 09, 2009 1:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Finding cures is not even remotely a consideration by pharma
Replies: 26
Views: 5040

Flattery will get you nowhere

@ScutFarkus: Educated; maybe. Naive; certainly. This thorough, well-reasoned and logically sound point-by-point rebuttal to my arguments has shown me the error of my ways. :lol: Clearly I misunderestimated your side of the story... Why wage a war on pharma? What do patients with MS gain from it ? W...
by ScutFarkus
Tue Dec 08, 2009 4:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Finding cures is not even remotely a consideration by pharma
Replies: 26
Views: 5040

Bloomberg didn't say the crazy stuff

The title of this thread you started is "finding cures is not even remotely a consideration by pharamceutical executives." You even quote that statement again in your post. That quote is from the conspiracy-minded vactruth site, not from the Bloomberg article. i am certain without even having to ask...
by ScutFarkus
Tue Dec 08, 2009 3:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bad News --All Dake surgeries canceled even w/ appt.
Replies: 137
Views: 23157

The injury caused by the blocked veins could probably be the same, whether you want to call it MS or something else. I also do not agree that someone without MS having the same blockages would not need treatment. I believe that something would be going wrong neurologically. The key word there being...
by ScutFarkus
Tue Dec 08, 2009 1:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bad News --All Dake surgeries canceled even w/ appt.
Replies: 137
Views: 23157

That's not a consensus opinion

Scut, My husband's doctor who wrote the prescription for imaging to determine if he had CCSVI said that, whether it's related to MS or not, if someone has that condition, it should be corrected in order prevent neurological difficulties. Did your husband's doctor clarify whether his statement was h...
by ScutFarkus
Tue Dec 08, 2009 12:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Finding cures is not even remotely a consideration by pharma
Replies: 26
Views: 5040

Irony, anyone?

Wow, citing information from a vaccine denial website? Those guys wrote the book on crazy. Well, at least a chapter. It's a big book. I find it extremely ironic that the same people who are upset that we're being denied experimental surgical intervention for an unproven cause of MS (in case it's not...