Search found 301 matches

by leetz
Mon Nov 05, 2012 4:12 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Lethal MS following Tysabri withdrawal
Replies: 3
Views: 4224

Re: Lethal MS following Tysabri withdrawal

Hey every-one..I have been on Tysabri for 8 months now...I felt like I did not have another choice..ccsvi? did that...wheldon protocol? did that....avonex...did that...ldn? did that...campath?...did that too. The choice is up to the individual and requires a look at how good or badly you are doing. ...
by leetz
Mon Nov 05, 2012 4:02 pm
Forum: Introductions
Topic: recently diagnosed and scared out of my mind.
Replies: 5
Views: 1209

Re: recently diagnosed and scared out of my mind.

jimmylegs!!!! so good to hear your improving:)) Newbie...may God bless you, you are not alone. It is very scary. Keep on top of your research and trust your body at all times :)

Welcome:))

Leetz
by leetz
Mon Nov 05, 2012 3:57 pm
Forum: General Discussion
Topic: Voting..
Replies: 5
Views: 845

Re: Voting..

Sorry that you feel that way...but how is our health care not an issue or topic of interest? Thank you for YOUR thoughts...although it really didn't need to be taken so seriously and if it was so "well said" then maybe you should have said it yourself! Let's keep the grown in grown-up! Take Care, Le...
by leetz
Fri Oct 26, 2012 10:21 pm
Forum: General Discussion
Topic: Voting..
Replies: 5
Views: 845

Voting..

every-one remember health-care when you vote! a "voucher" system would leave those of us with MS with-out access to health care because of a pre-existing condition. Think about all of us and what we go through on the daily...do your research before you vote look at all news stations to get a full FA...
by leetz
Thu Apr 05, 2012 9:30 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Experiences with Tysabri
Replies: 66
Views: 61202

Re: Experiences with Tysabri

HELLO, everybody...been absent for awhile....just doing a check in to let you know whats been going on...okay did Wheldon protocol for like 8 months (this was promising, but while experimenting I got worse). I had only 2 lesions on my spinal-cord...didn't get MRI for about a year and change, then go...
by leetz
Fri Oct 14, 2011 12:18 pm
Forum: Low Dose Naltrexone
Topic: 7 days on ldn and feeling great!
Replies: 3
Views: 3077

Re: 7 days on ldn and feeling great!

look it up on your search engine...i believe there is an ldn website to answer your question...
by leetz
Sun Sep 18, 2011 12:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Daflon 500mg tracking thread
Replies: 176
Views: 24126

Re: Daflon 500mg tracking thread

Dog Shit??? I would, eat, drink, make a shake, bathe, sleep, and powder my nose with it if it would cure me...lol!
by leetz
Wed Aug 31, 2011 9:22 pm
Forum: Low Dose Naltrexone
Topic: Why did LDN make me so much worse?
Replies: 11
Views: 16650

:)

see antibiotic thread...Wheldon, Stratton protocol.....
by leetz
Wed Aug 31, 2011 9:20 pm
Forum: Low Dose Naltrexone
Topic: Why did LDN make me so much worse?
Replies: 11
Views: 16650

hi...

Agreed about infection...also remember the higher the dose of LDN the more spasticity one may have, thus making walking more difficult...I am staying at 1.5mg because of this problem (also on antibiotic protocol for infection) hope this helps! God Bless!
by leetz
Mon Aug 29, 2011 10:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Neuro Sense Poll
Replies: 14
Views: 1654

error.....

ERROR...UNREAL!
by leetz
Thu Aug 25, 2011 5:23 pm
Forum: Introductions
Topic: Hi, newly diagnosed in Sydney, Australia
Replies: 3
Views: 1060

hello...

:D hello...you are in the right place for an abundance of information...welcome to thisisms...
by leetz
Thu Aug 25, 2011 5:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: UV RADIATION
Replies: 10
Views: 1210

i must say...

i used to tan (artificially) about 3 times a week..pain and fatigue was there but NOT MUCH ELSE! when i stopped my debilitating symtoms crept right in...i think i am gonna start tanning again!
by leetz
Thu Aug 25, 2011 4:52 pm
Forum: General Discussion
Topic: .
Replies: 5
Views: 1317

hello...

I don't mean to post anything negative but just mine own experience with Campath...I am in the trial and refused the option to get a 3rd dose (doses given once a year)...i have had 3 recorded relapses in the past 2 years of treatment...although i must also say that the other 2 women that were with m...
by leetz
Sat Aug 20, 2011 6:17 pm
Forum: Ampyra
Topic: Fampyra, any other benefits
Replies: 3
Views: 7327

HI...

the 2x's daily recommendation increased pain and spasticity for me so now i take one pill a day...increases speed...for me i think that is all...
by leetz
Sat Aug 20, 2011 5:37 pm
Forum: Low Dose Naltrexone
Topic: LDN after CCSVI venoplasty?
Replies: 11
Views: 2944

:)

hello...i try to stay on the lower end of LDN...between 1.5mg and 2.5mg...anything higher gives major spasticity problems...presently i take 2.5 mg...think i am gonna go back down to 2mgs...

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