Search found 218 matches

by ClaireParry
Mon Jul 12, 2010 2:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: UK Turf War on CCSVI - Daily Telegraph 12 Jul p23
Replies: 33
Views: 6078

Thats really great Mark. A full and concise piece. Its disgusting that we have to 'worry' for want of a better word about the way our Neuros may react to us voicing our opinions.
by ClaireParry
Sat Jul 10, 2010 11:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: UK Turf War on CCSVI - Daily Telegraph 12 Jul p23
Replies: 33
Views: 6078

Well done Mark - shall be looking out for it.

Claire
by ClaireParry
Sat Jul 10, 2010 10:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My Poland Experience
Replies: 24
Views: 5023

Hi Everyone, Its been a while but I've been in a bad way and until I felt positive about things didn't think it was a good idea to post. I think I must have restenosed within a day or two of the operation and I had a relapse almost in recoil?? However, the relapse has finally settled but has left me...
by ClaireParry
Sun May 02, 2010 7:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Crescent School Sessions: excellent video presentations
Replies: 10
Views: 2205

Peoples bodies are markedly different when it comes to coping with physiological issues in the body.

What affects one person, won't affect another.

I think it's perfectly feasible that for some people, their body will cope with CCSVI for years, maybe for ever if they are lucky!!
by ClaireParry
Thu Apr 29, 2010 12:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Once is never enough
Replies: 32
Views: 4668

Argh!! It's driving me mad! I've never suffered with nerve pain before and now I know what it feels like. It's agony. After the procedure the most notable changes were better fatigue, improved spasticity, far less breathing issues and improved drop foot. I keep hoping that as this relapse improves t...
by ClaireParry
Thu Apr 29, 2010 11:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Once is never enough
Replies: 32
Views: 4668

Hi LR, I'm going to arrange another visit. I had ballooning and at the same time had a relapse. The improvements were really there and if I didn't really believe that I wouldn't go back. I don't understand how drop foot, breathing issues etc can improve through placebo alone?? Hope you get there soo...
by ClaireParry
Sat Apr 24, 2010 11:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Advil Cold and Sinus. Your opinion
Replies: 5
Views: 1683

I have no idea but if it's available in the UK, I shall give it a go and report back!!!

Ahhh, it's Nurofen (ibuprofen). No, never sorts my symptoms out.
by ClaireParry
Sat Apr 24, 2010 3:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: First time seeing neuro since treatment
Replies: 23
Views: 3967

And walking away in killer heels!!!!!! Ahhh, those were the days LOL

Sounds like a good day. Well Done x
by ClaireParry
Fri Apr 23, 2010 6:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: LIVABIRD's Poland Adventure
Replies: 130
Views: 20049

Those little things mean the world when you haven't been able to do them for a while.

Good on Liva!!

Claire
by ClaireParry
Thu Apr 22, 2010 10:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My Poland Experience
Replies: 24
Views: 5023

Hi Everyone, Thought I should give you an update. I'm still in relapse at the moment, feel really quite bad and so I'm not sure if I'm still liberated or not?? Quite confused actually. Thats why I've been a bit quiet. Wanted to be in a better frame of mind before posting. Things are getting better s...
by ClaireParry
Tue Apr 20, 2010 12:51 am
Forum: General Discussion
Topic: Gabapentin/Lyrica or anything else
Replies: 9
Views: 1930

Thanks for all your replies. Jimmylegs - I'll have a look at my Vitamin regime. I would prefer to stay medicine free if I can, but sometimes it's so bad I feel like I need something to rectify it now. As it stands, things are easing so I didn't ask for any medication at all and thought I'd just ride...
by ClaireParry
Tue Apr 20, 2010 12:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MRV Negative
Replies: 12
Views: 1770

How frustrating Algis. Still, I get the feeling you will keep pushing for some answers that are worth something to you!! Good for you.
by ClaireParry
Tue Apr 20, 2010 12:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: LIVABIRD's Poland Adventure
Replies: 130
Views: 20049

I'm unbelieveably impressed!! Good on yopu both, well done.
by ClaireParry
Sun Apr 18, 2010 3:44 am
Forum: General Discussion
Topic: Gabapentin/Lyrica or anything else
Replies: 9
Views: 1930

I've just started taking D3. Whats a megadose? I'm happy to try that. I'd read from Dr Embrys site that 8000iu was the best dose???
by ClaireParry
Sun Apr 18, 2010 2:11 am
Forum: General Discussion
Topic: Gabapentin/Lyrica or anything else
Replies: 9
Views: 1930

Gabapentin/Lyrica or anything else

Hi Everyone,

What do you use for neuropathic pain? Seeing GP Tues and would like some help to know whats best to ask for.....

Thanks

Claire