Search found 110 matches

by sunlounger
Sun Jun 27, 2010 3:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Second Trips to Poland
Replies: 13
Views: 2285

Hi livabird, I think its a 3 months follow up if you have just ballooning and 6 months for stents ? They should make it more clearer :? My azygous vein might of been over looked both times I have been treated in Poland, The reason I think this is because it was decided that my azygous was fine just ...
by sunlounger
Wed Jun 02, 2010 2:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: worsening symptoms after angioplasty Poland
Replies: 4
Views: 2973

Thanks Zuereka

she became worse days after procedure :(
maybe theres not a problem with that vein,it needs Dr Simka to check.

this treatment is not straight foward
by sunlounger
Wed Jun 02, 2010 9:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: worsening symptoms after angioplasty Poland
Replies: 4
Views: 2973

worsening symptoms after angioplasty Poland

Hi all, I’m upset to report that my polish friends mum who had balloon angioplasty for the 2nd time nearly a month ago has had some very bad worsening symptoms :( From what I understand she now has extreme stiffness and weakness which is making walking impossible before she could walk with support (...
by sunlounger
Wed May 26, 2010 11:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My second trip to Poland
Replies: 48
Views: 10921

Hi Brynn,

Glad to hear everything went well I think the Dr doing the procedure is Dr Marek Kazibudzki,
I hope those improvements come back soon :D

Please keep us posted
by sunlounger
Sat May 22, 2010 2:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: sunlounger 2nd procedure in Poland
Replies: 32
Views: 6961

I was liberated almost 4 weeks ago and instead of getting better I am slowly degrading... I also have new symptoms, some started the day after the procedure; numbness in my left arm (stent in left jug) but the worst is my Jello brain;( I am not dizzy. It is more like if my brain moves and hits my s...
by sunlounger
Fri May 21, 2010 7:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: sunlounger 2nd procedure in Poland
Replies: 32
Views: 6961

Hi Sunlounger, Is it possible that your IJV's are being flattened by your neck muscles? Did you have an MRV - this may show such things. Best wishes! Hi Mutley, Yes I had a MRV but can't see any evidence that my IJV's are being flattened by neck musles, But will check through the images maybe i've ...
by sunlounger
Fri May 21, 2010 6:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: sunlounger 2nd procedure in Poland
Replies: 32
Views: 6961

Hi costumenastional and mila, Yes I had a MRV in Jan which showed a clear stenosis on my left jugular, I,m sorry to hear both of you have mild new symptoms post op maybe it could be a good thing but more of a worry if you had zero symptoms before. I thought Dr Sclafani had said something about why t...
by sunlounger
Fri May 21, 2010 3:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: sunlounger 2nd procedure in Poland
Replies: 32
Views: 6961

Hi all, Well it's been 2 weeks today since my last treatment in Poland and I was hoping to be able to say that I have felt some improvements, But this unfortunately hasn't happened for me, so I am just taking everyday as it comes and hope to update my tracking again soon if I notice any changes good...
by sunlounger
Sun May 09, 2010 1:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: sunlounger 2nd procedure in Poland
Replies: 32
Views: 6961

Hi all, Iwona :D thanks for the offer to translate and for your help when I was there, I hope your mum is ok and will start seeing improvements soon, I have meet Esta, Mags and Markus77 at breakfast today its great there are so many of us here from TIMS, Ted I totally agree with making this list and...
by sunlounger
Sat May 08, 2010 6:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: sunlounger 2nd procedure in Poland
Replies: 32
Views: 6961

sunlounger 2nd procedure in Poland

Hi all, I originally came to Poland 13th Jan where I had balloon angioplasty on my left jugular, unfortunally I never had any improvements and when I returned in March for a check up I found that I had restenosis so yesterday 7th May I had a second procedure to try and correct this. Well things have...
by sunlounger
Tue May 04, 2010 2:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: esta and poland - finally my turn
Replies: 51
Views: 9796

all the best with MRV and eye exam :D
by sunlounger
Mon May 03, 2010 10:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Mags is off to Poland!!!!!!!!!!!
Replies: 69
Views: 12079

fingers crossed Mags :D
please keep us posted
by sunlounger
Sun May 02, 2010 6:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: tatoo
Replies: 4
Views: 1351

Hi Ven,

like Johnson says wait till after the scan,
there is a good possibility they won't give you the MRI,
not worth taking the risk of that :D

good luck
by sunlounger
Sun May 02, 2010 6:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: LIVABIRD's Poland Adventure
Replies: 130
Views: 21129

thanks for the update
hope the bladder infection clears up soon
it's great to hear all the improvements :D
by sunlounger
Sun May 02, 2010 6:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: esta and poland - finally my turn
Replies: 51
Views: 9796

Hi esta,

wishing you a safe journey
hope I will get a chance to meet you I arrive 6th
please keep us posted good luck :D

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