Search found 110 matches

by sunlounger
Mon Feb 08, 2010 9:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Back from Poland!
Replies: 22
Views: 5623

hi sharon,

thanks for the update
glad to hear to your improvements :D
i had big fatigue problems straight after my procedure which are only just getting better after 3 weeks.

I agree with keeping on the BBD its just not worth the risk going off it
hope you continue having improvements :D
by sunlounger
Mon Feb 08, 2010 3:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: annbbe - second day after procedure
Replies: 66
Views: 16049

hi annbbe,

sorry to hear about your fatigue :(

my fatique also got really bad straight after having the procedure.
it has taken 3 weeks for me to feel slightly better.

hope you feel better soon
by sunlounger
Sat Feb 06, 2010 1:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: annbbe - second day after procedure
Replies: 66
Views: 16049

hey, sunlounger, how are you? when are you going to have your next op? hi annbbe, I am still waiting to hear back from Dr Simka :? My M.S is the same maybe slightly worse .... I dont think the ballooning was enough to keep my stenosis open :( Hopefully I will get a chance to come back to Poland in ...
by sunlounger
Sat Feb 06, 2010 3:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Don't know what to do now about my trip to Poland!!
Replies: 21
Views: 3874

48-32-212-0133 and 48-32-212-0498
yes they are Dr Simka's office numbers :D
by sunlounger
Sat Feb 06, 2010 3:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: annbbe - second day after procedure
Replies: 66
Views: 16049

hi annbbe,

great to hear of your early improvements :D
sure there will be lots more !!

best wishes
by sunlounger
Fri Feb 05, 2010 4:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Poland part 2
Replies: 44
Views: 7466

hi wonky

wow thanks for sharing this :D
great news
by sunlounger
Thu Feb 04, 2010 1:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: annbbe - second day after procedure
Replies: 66
Views: 16049

Hi annbe,

good to hear it all went well
your left hand getting stronger is a great sign
i hope you wil get lots of further improvements :D

please keep us posted
by sunlounger
Tue Feb 02, 2010 11:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Urgent advise please, Money in advance
Replies: 44
Views: 6494

Hi alby,

There are 2 bank's a couple of mins walk from Qubus in the shopping arcade next door to hotel.
Yes they accept credit cards no problem.
I know they have increased the prices but to ask for the payment upfront ??
Well maybe this is correct but check first.

Good luck
by sunlounger
Mon Feb 01, 2010 8:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Sunlounger in Katowice 13th Jan
Replies: 69
Views: 14115

Early improvements after stenting are: Warm feet I can get up stairs better No more fatigue I can talk again I can drive again Increased cognition Thanks wonky so happy to hear your improvements :) Just hope I will get the chance to go back as things are getting so busy over there. I would be ok to...
by sunlounger
Mon Feb 01, 2010 6:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Sunlounger in Katowice 13th Jan
Replies: 69
Views: 14115

Hi all, I am still waiting to hear back from Dr Simka or Dr Ludyga regarding my balloon angiogram preformed on the 13th Jan. Viewing the CD of the venogram it seems the ballooning carried out was not enough to have been effective in keeping the stenosis open :( And I don't understand for this reason...
by sunlounger
Mon Feb 01, 2010 6:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Erika`s procedure in Poland
Replies: 493
Views: 100453

Hi Erika,

I am very happy to hear you doing so well after 3 month's :D
14 years of M.S behind you and 12 attacks wow :o
I hope you will have many further improvements
Thanks for being so honest with your updates

Looking forward to the spring :D
by sunlounger
Sat Jan 30, 2010 10:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: february the 2nd = annbbe has the procedure!
Replies: 10
Views: 1891

Hi annbbe
so pleased for you :D
be thinking about you next week
best wishes :D
by sunlounger
Sat Jan 30, 2010 7:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Poland part 2
Replies: 44
Views: 7466

Hi Wonky thats good to hear they where able to put a stent in there.
I hope your feeling those improvements again soon :D
by sunlounger
Sun Jan 24, 2010 7:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Poland part 2
Replies: 44
Views: 7466

Hi wonky
sorry to hear this :(
your surely get those improvements back :D

please keep us all posted
by sunlounger
Sun Jan 24, 2010 7:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr Simka (Poland)
Replies: 436
Views: 112977

I could not find any info on these stents on facebook :?

Does anyone have a link or know more details ? :)