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by Robnl
Wed Dec 02, 2009 12:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New Zamboni Article Now Up
Replies: 38
Views: 6426

Don't think that this is the new document, the abstract is the same as in older doc's....

Rob
by Robnl
Sun Nov 22, 2009 10:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI- just the facts, ma'am
Replies: 114
Views: 95445

Radeck, What's not clear to me in your post: .... Recovery takes longer, they say 18 months on average before first signs are seen. The main difference between PPMS and RR/SPMS is that the azygos vein, draining the spine, is more dysfunctional in PPMS. This also explains why PPMSers progress faster ...
by Robnl
Thu Nov 19, 2009 1:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: side effects of stenting
Replies: 8
Views: 2186

I think neuro does not have anything to do with stents.
Erika[/quote]

And that's the problem with the neuro's in my opinion. If i do not understand something, i ask somebody who does understand it.
Why do the neuro's don't communicate with the vascular specialist in this case.

Rob
by Robnl
Sat Nov 14, 2009 5:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Relapses - when do they occur?
Replies: 9
Views: 1969

Hi,

Maybe, but it's really just a guess, is the flow when you are sleeping even slower than when you are in a vertical position. Maybe it's slow enough to 'push' your MS symptoms.

Rob
by Robnl
Fri Nov 13, 2009 6:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Erika`s procedure in Poland
Replies: 493
Views: 99285

Erika,

Try not to 'cross the line' too much :P
It will be very tempting to try new things, but remember to build it up carefully.

But it sounds great!! :D

I wish i already had the surgery....

regards,

Rob
by Robnl
Wed Nov 11, 2009 12:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Erika`s procedure in Poland
Replies: 493
Views: 99285

It's amazing Erika! Your posts ar4e making my confidence to go stronger! There are always doubts before doing things like this, but reading the improvements you and others experience....just make it easier rto go! I'm sure improvements will go on....MS has taken years to get you ill, so recovery wil...
by Robnl
Wed Nov 11, 2009 8:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Clexane injections (Heparin)
Replies: 10
Views: 3050

Well, my girlfriend is a nurse (kind of), she knows how to inject. So if my have my veins 'done' and i cannot do it myself, she will do it :D
Plan to go to Poland beginning 2010

Rob
by Robnl
Wed Nov 11, 2009 1:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Clexane injections (Heparin)
Replies: 10
Views: 3050

Erika,

For how long do you have to inject Clexane after the surgery, a week, a month?

Regards,

Rob