Search found 207 matches

by annad
Thu Jan 07, 2010 8:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hi all, Leetz asked me to post her MRV Pics
Replies: 48
Views: 8544

Has there been a stenosis diagnosis on leetz?
by annad
Wed Jan 06, 2010 5:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hi! Anna wanted to share her "negative" MRV Pics
Replies: 24
Views: 5988

Thanks for the welcome Mutley! Yes, there's lots of information here. . . overwhelming. However, the frustration arises when no one will test or treat you. We have mounting proof of all this and still, we must wait for the system to kick in and get some relief from this disease that locks us into ou...
by annad
Tue Jan 05, 2010 7:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian Front Lines
Replies: 50
Views: 11590

Keep up the 'fight'! Shiraz, was this just a 'regular' ultrasound machine they used? I thought Dr. Zamboni had a specific one made just to scan for this.
Good luck!!
by annad
Tue Jan 05, 2010 7:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Rose Follow Up @ Stanford
Replies: 45
Views: 8297

That's great Rose! and to all of you post-stenters! We all want to get where you are!! Rose. . .furniture shopping, dinner and grocery shopping would take me a month to do! You go!!
have a wonderful day!!!
:)
love happy faces!!
by annad
Tue Jan 05, 2010 6:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hi! Anna wanted to share her "negative" MRV Pics
Replies: 24
Views: 5988

ccsvi

Hi to all, Mutley asked: What else can you tell us about Anna? How long has she had MS and how is she? What would you like to know? lol I'm new to this site and ccsvi so I don't feel comfortable enough commenting on my newly posted 'glam shots'. I am certainly not stopping here because I got one res...
by annad
Thu Dec 31, 2009 12:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian responses?
Replies: 12
Views: 2281

Re: cnd responses

Ditto Tipsy. . (hope you don't mind I've shortened your name!)

I'm usually the quiet one reading but once in a while, I get out there.

We will all have a better new year!
yay!
by annad
Thu Dec 31, 2009 12:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian responses?
Replies: 12
Views: 2281

false negative

Thanks tispy. . .
I'll search.
Happy New Year!
by annad
Thu Dec 31, 2009 10:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian responses?
Replies: 12
Views: 2281

re: cnd responses

I haven't tried but I don't know how to. Mechanicallyinclined, if you want to share how you went about doing this, I'd be interested in reading about it and if my limited energy etc. allow me to, I'd definitely look into it. I'm in Waterloo, Ontario. My GP wrote up a referral for me and I went over ...
by annad
Sat Dec 12, 2009 5:39 pm
Forum: General Discussion
Topic: MS HUG !!!!
Replies: 12
Views: 3058

re: ms hug

Yes, I've had it. It can come and go just like all other ms symptoms. I've had it for an hour but also up to 5 days! Those were not good 5 days :( best wishes!
by annad
Tue Dec 01, 2009 5:58 am
Forum: Introductions
Topic: MRV Testing in Canada
Replies: 33
Views: 6557

MRV/OHIP

I hope I posted this where it's suppose to be posted. . . My neighbour had an MRI done a few years ago in Buffalo and hers was covered by OHIP. Not sure if it was because she couldn't get in here and it was urgent or what the case was but I guess it doesn't hurt to try. The worst they could say is, ...
by annad
Thu Nov 26, 2009 6:43 am
Forum: Introductions
Topic: MRV Testing in Canada
Replies: 33
Views: 6557

MRV Testing in Canada

Has anyone in Canada been able to get through anywhere to get MRV testing? I've heard 'no' everywhere I've asked so far. Not giving up. I'm willing to go to our neighbours over the border and pay to get one done. Ideas? Suggestions?
hope you're all having a nice day!
best wishes!
by annad
Wed Nov 25, 2009 3:57 pm
Forum: Introductions
Topic: Hello
Replies: 3
Views: 1299

Hello

Hello from Waterloo, Ontario! Trying to figure out this site.

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