Search found 862 matches

by sbr487
Sun Nov 07, 2010 7:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Conference feedback
Replies: 14
Views: 2971

this pdf is close to 40 MB :x
by sbr487
Sat Nov 06, 2010 10:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Local SIR
Replies: 0
Views: 1346

Local SIR

Folks, The SIR of US and Canada have generally endorsed the importance of exploring CCSVI. But I think the SIR bodies in other countries might not be aware of this development. Please try to take the message of recently released SIR position to your local SIR body. This can help build opinion on CCS...
by sbr487
Sat Nov 06, 2010 10:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Barb Farrell update
Replies: 110
Views: 29679

Re: Incredible

THIS SHOULD BE DOCUMENTED IN GREAT DETAIL All my love to Barb and family. Thrilled to hear such miraculous news! Could you please write a more descriptive story of Bar's medical hardship's and improvements. I'd like to share this with my favorite Congressman here in the USA to help further document...
by sbr487
Sat Nov 06, 2010 9:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Translated article: MULTIPLE SCLEROSIS: ZAMBONI, AISM TRIAL
Replies: 41
Views: 6184

Re: Translated article: MULTIPLE SCLEROSIS: ZAMBONI, AISM TR

What can be done? Perhaps a letter writing campaign to draw attention to the flaws in this trial? Dr Zamboni already published a paper showing that CCSVI Doppler is not reproducible without hands on training. In a way its better that Dr. Z is not a part of this trial that probably has the end resul...
by sbr487
Fri Nov 05, 2010 10:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Barb Farrell update
Replies: 110
Views: 29679

Re: Incredible

THIS SHOULD BE DOCUMENTED IN GREAT DETAIL Could you please write a more descriptive story of Bar's medical hardship's and improvements. I'd like to share this with my favorite Congressman here in the USA to help further document CCSVI and it's story. I promise he is the most couragous and heartfelt...
by sbr487
Fri Nov 05, 2010 9:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI&MS Conference, Copenhagen, Nov.3, '10, prof. Simka
Replies: 7
Views: 1759

He said that the first trigger of MS is NOT CCSVI (1.20min). His hypothesis is that there is another (unknown) factor that acts together with CCSVI to trigger MS. I found this later point the most important of his talk. What is that 'something else' that is acting with CCSVI to trigger MS? In a way...
by sbr487
Fri Nov 05, 2010 7:07 am
Forum: General Discussion
Topic: what to avoid
Replies: 0
Views: 1278

what to avoid

Folks, most of MSers seem to suffer abdominal issues including GERD. I seem to have frequent abdominal issues, some of which include - upper abdominal discomfort mild stomach ache after eating bloating I go through a bout of this problem once (lasting 1-2 weeks) every 2-3 months I am currently takin...
by sbr487
Thu Nov 04, 2010 9:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How Gentle CCSVI Rebels will Win the MS Liberation War...7
Replies: 2
Views: 1184

How Gentle CCSVI Rebels will Win the MS Liberation War...7

http://www.healthcentral.com/multiple-s ... 1/rebels/6

This is one of the best views I have seen first seen at locator site. Worth reporting here I believe ...
by sbr487
Thu Nov 04, 2010 6:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Poll: have 2000+ pwMS been de-stenosed?
Replies: 45
Views: 8322

Mark, when you started this thread, I wasn't very comfortable but its good to note that some interesting information is coming out (like treatment in Taiwan, Argentina, Chile) ... I did not know most of these cases ...
by sbr487
Thu Nov 04, 2010 12:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1701660

Dr. S, The positional statement of SIR came out sometime back. It was then endorsed by the Canadian SIR. How exactly is the SIR hierarchy organized? Does the statement issued by SIR mean that in general there is a consencus around the world on this? Does this need to be carried to local SIR's? Just ...
by sbr487
Wed Nov 03, 2010 7:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Zamboni/Stuve Debate Abstracts
Replies: 6
Views: 1763

1) How does a fixed anatomical defect result in a relapsing-remitting disease course in most patients? The immune activity kicks in based on the threshold level of what it perceives as a foreign agent. Build up of dead cells is gradual until immune system starts working. In fact, the same question ...
by sbr487
Tue Nov 02, 2010 7:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: making CCSVI charitable contributions
Replies: 29
Views: 33187

Greetings, There are various ways to raise funds. I suggest for charities to approach big donors rather than small ones. It is easier to convince one person to give $100k or $1M rather than collecting small amounts. I also tried to raise funds through a competition, however, people are not much int...
by sbr487
Mon Nov 01, 2010 10:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 554073

Dr. Chuck Woodfield and Dr. Haake have now been in communication and Dr. Haake asked how he could help Dr. Woodfield with his research. Dr. Woodfield is currently in the process of trying to establish research facilities similar to Dr. Haake so this is perfect timing. Among other things, he is curr...
by sbr487
Mon Nov 01, 2010 9:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: making CCSVI charitable contributions
Replies: 29
Views: 33187

Never mind. Alliance page has info on this ...