Search found 384 matches

by esta
Thu Aug 04, 2011 9:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 353
Views: 69497

tx so much mark having had a stent for a year and only hearing negatives, i feel so much better hearing this, believe me!! i have intimal hyperplasia, but still feel better. i'm going to dr arata in newport beach calif. next (3rd procedure), because i believe valves are the problem, and he will be d...
by esta
Wed Aug 03, 2011 2:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Endovascular Therapy for CCSVI Open Access Review Article
Replies: 8
Views: 1714

tx cece
i go cross-eyed as soon as it gets technical, you're a godsend :D :D
by esta
Wed Aug 03, 2011 9:56 am
Forum: Low Dose Naltrexone
Topic: Anyone get Bells Palsy after starting LDN?
Replies: 10
Views: 3170

hi mags i have taken LDN for 7 months now. i went from 1.5 to 4.5mg at 2 week intervals to start. went back to 3.5mg a month ago because i'd heard that was the max for women, but i'm now more spastic, and way weaker, so, tonight back to 4.5 mg. i have had no bad reactions ever. i was supossed to be ...
by esta
Sat Jul 23, 2011 9:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Plavix and aspirin vs coumadin post procedure ??
Replies: 15
Views: 3704

At the time, Aug/2010 with Dr. Simka we were advised, if we received a stent, to take Plavix and aspirin, for a year, then asprin for life, after the 7 day injections.. I still ended up with intimal hyperplasia anyways, after finding out after an ultrasound December 2010, at False Creek, in Vancouve...
by esta
Thu Jul 21, 2011 8:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2nd Annual CCSVI Symposium in NYC July 15-17
Replies: 158
Views: 23914

just chiming in to say how reminicent reading all your posts are, to the first time I was in Poland and meeting everyone in person there, finding out their tims name and who they were in person.

We've come a long way in one short year!
by esta
Thu Jul 21, 2011 7:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Mehta's clinical trial prelim. results announced-
Replies: 33
Views: 5052

I have had MS since I was 25, I'm 61 now, PPMS etc etc, and blah blah blaH. the EDSS scale never moved an iota, but my world changed exponentially after CCSVI treatment. I say, get a new scale that includes the many minute details of everyday life that can prove change. I am happy again, there's hop...
by esta
Tue Jul 19, 2011 9:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Second Annual CCSVI update Symposium
Replies: 52
Views: 10177

Dr. SNYDER, JUST WANT TO REITERATE A THOUSAND THANK YOU'S!!!!!!!!
not being anywhere near NY, this was a total gem to read.
plus, all of you who did go, and your input also was so informative, this has been an amazing read, from start,to finish. well, by no means finished...
by esta
Mon Jul 18, 2011 12:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Does CCSVI cause weight loss?
Replies: 4
Views: 1721

this could be off the wall, but just ck zinc deficiency sites...

a very long story, but for sure, ck with a naturopath, not an MD. if anything rings true...
by esta
Mon Jul 18, 2011 12:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ultrasound Basics For Dummies
Replies: 3
Views: 1336

i have no answers, but good on you with the valve flap :D :D :D
by esta
Fri Jul 15, 2011 10:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: flying after angio or stents
Replies: 5
Views: 1586

hi munckin, the plane is pressurized...no problem, and good luck...plus...its after the symposum, you'll get the best of the best... :D :D :D
by esta
Thu Jul 14, 2011 2:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Does tinnitus improve following CCSVI treatment?
Replies: 5
Views: 2140

i'm not sure ow to answer this.

1st time it totally disapeared
2nd time it was louder and higher pitched

3rd time i hope it all goes away!!!!
by esta
Thu Jul 14, 2011 12:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: OPINIONS DR ARATA & DR HEWITT
Replies: 99
Views: 12550

billmeik in my consultation with dr hewett this june, dr arata has a 2-10% restenosis rate for his valve procedure, but they have only been doing it for a year. i too, went to poland, twice, and when dr. hewett looked at my CD's, he said i should have had both jugs done because the valves didn't sho...
by esta
Thu Jul 14, 2011 11:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Heat Intolerance?
Replies: 46
Views: 6432

so could it be the less the flow, the less the variant in temp tolerance?
equates the degree of CCSVI, because its all about blood flow...

excluding internal temp with ice because then its more science/math stuff i just go crosseyed about, but, someone...
by esta
Wed Jul 13, 2011 10:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Heat Intolerance?
Replies: 46
Views: 6432

dear dr sclafani, you're ubiquitous - and so kind, but see a neuro, ha... sorry, not on my things to do list...

yes it must be CCSVI, because I tolerated heat like nothing after my 1st procedure. i believe its the body's thermometer, so its in the brain - pinal gland or pituitary or or ...
by esta
Wed Jul 13, 2011 7:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Heat Intolerance?
Replies: 46
Views: 6432

good Grief DC, that's a main symptom of MS! after the procedure it goes away most of the time, but, its probably one of the first to return when restenosing too. many helpful tricks. mine was tanning once a week, not long, all winter, and my summer heat tolerance was better. next year? i'm going in ...