Search found 384 matches

by esta
Sat Mar 19, 2011 9:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 3 month passed
Replies: 3
Views: 1883

i think you need to realize when you do something physical, your body is reacting with pain and stiffness. if you are slowly moving forward, 2 steps, then 1 back, or maybe 2 back some days, but still forward, however slow...its the time to give in with rest and peace of mind that this is your proces...
by esta
Sat Mar 19, 2011 9:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Erika`s procedure in Poland
Replies: 493
Views: 101973

hi erika goody :D i sure hope it works. if you can, work your way down to 1/4 tsp.s 3x day. i need a heaping tsp 3x day, you may need more or less. i just went to my naturopath and whinned about the cost. i did get a less pure form from a health food store, and i have to take more, but it works too!...
by esta
Fri Mar 18, 2011 1:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: edss not a good marker for ccsvi research studies
Replies: 25
Views: 4810

in poland, where i received a stent, 2nd time round, i completed a much better form, which they use, and my improvements were substancial. the EDSS score never changed here. i just have one thing to say and it has to do with my outlook on life -a wonderful sense of hope, and optomism for my future. ...
by esta
Fri Mar 18, 2011 1:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Erika`s procedure in Poland
Replies: 493
Views: 101973

yeah erika, i'm sooooooo happy :D ...i take 3 grams 1 1/2 scoops (SHOULD BE INSIDE,OTHERWISE 1/2 teaspoon) 2x a day/ someties i need more, i just take another scoop. for you i'd start with 3x a day. you'll notice a difference within an hour, i did. good luck...just take as much as you need to calm y...
by esta
Sun Mar 06, 2011 8:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Erika`s procedure in Poland
Replies: 493
Views: 101973

bloosom, you are very kind, i seemed to start all this, i'll get out of this site erica. its better this way...sorry erica, your right, no one knows, but don'r leave, please continue...
by esta
Thu Mar 03, 2011 4:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Erika`s procedure in Poland
Replies: 493
Views: 101973

erica the idea is horrid, but get a roomate...its the only way... PM me with your address, and tell me a package wouldn't be stolen. i know my girlfriend here on disability is in the same financial distress. It seems like we get alot of money, but everything is really expensive too. do take care, er...
by esta
Thu Mar 03, 2011 11:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Erika`s procedure in Poland
Replies: 493
Views: 101973

hi Erica
i've been having panic attacks and anxiety, went to a naturopath and he got me on l-glycine, which anyone can buy. do some rearch, its an amino acid, and amazing...way better than any drug...powder is cheaper, way cheaper, please try it. good luck!!!!!!!!
by esta
Sat Feb 26, 2011 1:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Osoyoos Times
Replies: 2
Views: 1307

Osoyoos is in the Okanagan in BC Canada. I wonder what the total number of procdures have been done from here? 10? and no follow-up doc...yeah...(that was sarcasm). I had to go to False Creek clinic and pay for it. yes it was great, buuttttt 'in the valley' would be nice. Any clues?
by esta
Sat Feb 26, 2011 1:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: vibration platforms
Replies: 6
Views: 1663

1eye i have a powerplate, use it everyday. since my procedures i got stronger, and 'they' say 10 minutes is an hour in the gym. checkout the research they've done - powerplate.com its not specifically on CCSVI obviously, but it works on strengthening muscles without too much work on your part. this ...
by esta
Fri Feb 18, 2011 10:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Second Procedure Question
Replies: 11
Views: 2077

winnipeggirl, whereare you going for your 2nd procedure? my 2nd proc wasn't as good as the 1st, but i developed a thickening of my blood inside my stent. you may just get re-angio'd wih a bigger baloon and get tremendous, lasting results. its always better not having blood refuxing to your brain no ...
by esta
Fri Feb 11, 2011 11:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CANADA: IF COMPLICATIONS...
Replies: 7
Views: 2035

FALSE CREEK in vancouver bc is fabulous for follow-up...
by esta
Fri Feb 11, 2011 11:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 123778

cheez, i just read thru 9 pages CECEE, and you haven't got the procedure yet!!!!!!!!!!!!!!!! just good wishes for you my dear, dr sclefani is the best from all i've read, sooooooo who could worry? i'm on pins and needles for page 10...you're like our erica/slovacia in north america, i love reading a...
by esta
Tue Feb 08, 2011 1:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Tipping point
Replies: 7
Views: 1805

my tipping point - after watching W5 on that fateful sunday in november, and going on tims and realizing, if i don't get my name on a list to get treated i will only get worse. so i went to poland in may and again in august. having ms for over 35 yrs and ppms for over 10, i can do no more for now wi...
by esta
Mon Jan 31, 2011 3:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Treatment for intimal hyperplasia in a stent
Replies: 2
Views: 1787

hi there i have that problem after my stent placement in august. i was told, after a follow-up ultra-sound, at the false creek, vancouver clinic and hearing from dr. simka in poland that staying on plavex and aspirin will not change it, but to leave it alone for now, as its not refluxing even though...
by esta
Sat Jan 29, 2011 10:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: last chance - secret project
Replies: 10
Views: 2255

i'm more than curious...but didn't receive anything pm wise. its only because its yoy cece, otherwise i'd be very suspicious...not liking the idea of having secrets...