Search found 398 matches

by fiddler
Sat May 07, 2011 12:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Innocent until proven guilty or...
Replies: 9
Views: 1356

and...

And, for the record, I'm quite certain that my neuro has never been in touch with Osama bin Laden.
by fiddler
Sat May 07, 2011 12:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Innocent until proven guilty or...
Replies: 9
Views: 1356

Paranoid

OK, 1eye, now you're starting to sound paranoid. Maybe you think you have reason to be, but I think that, if it exists, it should be much easier to find and expose clear evidence of kickbacks and bribes than about an international conspiracy to monitor what we say in a doctor's office. Let's keep ou...
by fiddler
Sat May 07, 2011 9:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Innocent until proven guilty or...
Replies: 9
Views: 1356

Innocent until proven guilty or...

I'm not much of one for conspiracy theories, but given the shenanigans proven to have been perpetrated by drug companies, MS Centers and neurologists in the US (see http://bit.ly/kBCrlj and http://on.fb.me/j3wzqX and http://on.fb.me/k3aLXi ), is it unreasonable to ask MS Societies, Clinics and neuro...
by fiddler
Thu May 05, 2011 8:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Fiddler - first anniversary
Replies: 15
Views: 3423

Lasts

Oh, and here is an excerpt of a more subjective summary of what "liberation" has done for me that I included as a testimonial in the http://www.newhopeforms.ca website: I was diagnosed SPMS in 2004. By mid and late 2009 my symptoms were such that my life was filled with many "Probably the last time"...
by fiddler
Wed May 04, 2011 3:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Fiddler - first anniversary
Replies: 15
Views: 3423

Walk-aide

Yes, (not) Johnson, we got lucky with the volcano thing. By the way, I didn't mention that I got an electronic walk-aide ($6000, paid for by our HR dept) to help with my continuing toe-drop. It seems to help some. Now that the snow and ice is gone I should be able to give it a real test with some lo...
by fiddler
Wed May 04, 2011 2:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Fiddler - first anniversary
Replies: 15
Views: 3423

Thanks

Thanks, everyone and here's hoping there continues to be good news for all of us this year (as I raise my glass in a toast). Hmmmm... maybe it is the wine that's kept my blood flowing so well! :D
...Ted
by fiddler
Tue May 03, 2011 5:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Fiddler - first anniversary
Replies: 15
Views: 3423

Fiddler - first anniversary

My family and friends held a surprise "liberation anniversary" party for me a few days ago. Since TiMS is where I got most the information I used to make my decision to get "fixed", I want to update everyone here on my progress. Over this year I've seen the following changes: Fatigue: this has been ...
by fiddler
Thu Apr 28, 2011 8:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: If IBT does not work does that mean CCSVI treatment won't?
Replies: 21
Views: 5137

IBT: No Change

I started IBT four months before liberation and noticed no change at all. I have had good symptom relief in the 12 months since having the procedure done. So, for me, there has been no correlation between IBT and CCSVI treatment.
...Ted
by fiddler
Sun Apr 24, 2011 10:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Not all Neurologists opposed to CCSVI !!!
Replies: 13
Views: 2230

Cause of MS

Since nobody knows for certain what MS even really is, nobody knows what causes it. When I say, nobody, that includes neuros. CCSVI is a vascular problem. Saying that the lower jugular is "close to the brain" and so "we should heed the neuros" concerning problems in those veins is just plain wrong o...
by fiddler
Fri Apr 22, 2011 12:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How do you define CCSVI success?
Replies: 20
Views: 3391

Changes

Rose, this is a quick summary of what i remember about my changes (follow my blog starting early May, 2010 for details and greater accuracy): Fatigue: this has been my biggest change. About a week after returning from Poland I noticed that I wasn't as fatigued, that special MS fatigue I expect you k...
by fiddler
Fri Apr 22, 2011 10:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How do you define CCSVI success?
Replies: 20
Views: 3391

Time

Rosegirl, my first improvements didn't start for two weeks, then continued quite quickly over two months, at which time they MOSTLY plateaued (I say mostly because I have seen a few more "small" things since then). Your IR doesn't know what he/she is talking about. Take a look at the timeline graphs...
by fiddler
Thu Apr 14, 2011 5:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Mehta's research findings
Replies: 3
Views: 1647

Link

Cece, could you post the link, as well? Thanks.
...Ted
by fiddler
Thu Apr 14, 2011 7:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Study shoots hole in 'liberation' theory
Replies: 66
Views: 8552

Actually

Actually, I do see several big problems with the "demand" that clinics doing the procedure should do the data-gathering regarding efficacy of the procedure so that people can make decisions about the procedure: 1) They would automatically be considered to have a conflict of interest 2) Many people a...
by fiddler
Mon Apr 11, 2011 5:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 62445

Ccsvi-tracking

Dania, nobody has to belong to http://Www.ccsvi-tracking.com to see the results. All you have to do is click on the link. Some of the more detailed analysis requires you to be a member, but you don't have to be liberated or even have MS to join, as far as I can see. I'm glad for people whose symptom...
by fiddler
Mon Apr 11, 2011 2:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 62445

Look at the stats

The results are self-reported and perhaps skewed, but the best long-term (and getting longer) statistics on liberation treatment results are at http://www.ccsvi-tracking.com . Anecdotal stories are good for understanding the emotional impacts that improving or not improving after treatment have on p...