Search found 398 matches

by fiddler
Mon Mar 21, 2011 9:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Last year's word
Replies: 20
Views: 3422

CCSVI-Tracking.com

Compared to any other site (including this one), http://www.ccsvi-tracking.com has by far the best aggregated data (presented as user-defined aggregate and time-line graphs) on the impacts of "CCSVI treatments for patients experiencing multiple sclerosis symptoms" - or liberation treatments, for sho...
by fiddler
Thu Mar 03, 2011 10:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: freezing cold feet
Replies: 21
Views: 6547

Cold feet

Cece, I didn't get any improvement in these symptoms, as far as I can tell. It's a little hard to be sure, since this varies from one day (or hour) to the next, and sometimes my left foot actually feels too hot, but I still have a cold left foot fairly often, and about once a week its so cold I have...
by fiddler
Thu Feb 24, 2011 2:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Please verify your CCSVI testing facility
Replies: 72
Views: 12720

CCSVI Certification

Who is "certifying" sonographers with respect to CCSVI?
...Ted
by fiddler
Wed Feb 23, 2011 12:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post-liberation CCSVI testing in Bangor, Maine
Replies: 5
Views: 2347

More info

Thanks, Dr. Sclafani. I did get some more information from someone else that suggests that even a venogram may not be adequate, that if there are "indicators" of azygous problems, then it should be ballooned: Chris has done a good job of answering your questions, Ted. It sounds to me like the azygos...
by fiddler
Wed Feb 23, 2011 7:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post-liberation CCSVI testing in Bangor, Maine
Replies: 5
Views: 2347

Post-liberation CCSVI testing in Bangor, Maine

Here's an opportunity for people (perhaps especially for Atlantic Canadians) who have been liberated and need follow-up testing of their veins: From: Willis, Chris [mailto:cwillis@emh.org] Sent: February 23, 2011 10:43 AM Subject: CCVI testing Good morning Mr. Robak. I just listened to your message ...
by fiddler
Sun Feb 20, 2011 3:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI-Tracking.Com
Replies: 31
Views: 8530

Great site

Good work! A great site with lots of good information.
...Ted
by fiddler
Fri Feb 18, 2011 9:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Loobie update - 18 months out
Replies: 25
Views: 5269

Update

Thanks for that, Lew. I'm just over 9 months since liberation and, given that I'm SP, have seen results much better than expected, especially wrt fatigue, but my mobility and strength are better and (so far) continue to improve very slowly after the first two months when there was the initial sharp ...
by fiddler
Wed Feb 16, 2011 9:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI not associated with HLA DRB1*1501 status?
Replies: 41
Views: 6764

Thanks

Thanks, I hadn't seen that before. Still, it does seem to go against some other results that say that CCSVI is congenital, and a lot of evidence that fixing CCSVI alleviates many MS symptoms. I suppose that could be some kind of vicious circle working.
...Ted
by fiddler
Wed Feb 16, 2011 8:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI not associated with HLA DRB1*1501 status?
Replies: 41
Views: 6764

Causes

dreddk, I can see the logic of CCSVI possibly being a cause of many MS symptoms and perhaps a primary cause of the MS "syndrome" itself, but what would be the explanation for MS causing CCSVI? Perhaps I missed some recent discussion about that since I'm not often on here anymore. Early on, just afte...
by fiddler
Wed Feb 16, 2011 3:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI not associated with HLA DRB1*1501 status?
Replies: 41
Views: 6764

Misleading

Hmmm... seems to me that misleading would be if the title says "not associated..." if what they really mean is that there was no certainty of association from a statistical perspective. "No certainty of" is NOT "not". Ergo, the title was misleading.
...Ted
by fiddler
Tue Feb 15, 2011 1:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI not associated with HLA DRB1*1501 status?
Replies: 41
Views: 6764

Students who don't work

Yes, I've heard that excuse for not doing homework before... pretty sad, really.
by fiddler
Tue Feb 15, 2011 12:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI not associated with HLA DRB1*1501 status?
Replies: 41
Views: 6764

Numbers

Scorpion, the numbers provided in the paper contradict its title. The correlation of HLA DRB 1501 status with CCSVI is almost 5 times as high as for normals (40.7% versus 8.4%). Therefore the title is COMPLETELY misleading and cheerleader is right. If you are going to be a skeptic, great, but then a...
by fiddler
Sun Feb 13, 2011 2:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: circulation (moved from tracking)
Replies: 12
Views: 2977

CCSVI found

Yes, people who do the CCSVI testing and treatment seem to be consistently finding over 90% of MSers with venous drainage problems. Lower percentages are usually only found by people who don't know what they're looking for. Unfortunately, just reading up on it is not good enough, apparently. Testing...
by fiddler
Sat Feb 12, 2011 8:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: circulation (moved from tracking)
Replies: 12
Views: 2977

Improvements

Besides fatigue, my balance, strength and mobility have markedly improved (as noted by me, my physiotherapist and my neurologist). My hands have never been a big problem, but my feet are often too cold, but also sometimes too hot. Since it was always an on-again/off-again thing, it's really hard to ...
by fiddler
Sat Feb 12, 2011 12:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: circulation (moved from tracking)
Replies: 12
Views: 2977

The numbers

The meaning of the numbers on the vertical depends on what is being measured. For example, for EDSS it is taken right off the EDSS scale. For other things they are where either the best or worst are set at 10. So good QOL goes up, good EDSS goes down.
...Ted