Search found 412 matches

by fogdweller
Mon Jun 20, 2011 10:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ANNALS of Neurology, Letter to the Editor, Avruscio G., MD
Replies: 13
Views: 3750

So the relative difference 2% to 16% is high for this type of slow chronic disease at the onset. At the onset absolute values do not really matter. At the late stages about 90% have CCSVI. So CCSVI seems to be directly correlated with MS from the onset to the end. Actually, this would suggest that ...
by fogdweller
Wed Jun 15, 2011 10:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Keep the faith, my friends!
Replies: 19
Views: 3220

I agree 1eye, but therein lies the rub. The docs continue to advise taking the DMD's and will continue to do so until there is scientific evidence for a change in standard of practice. The insurance cos will not believe that going back to work is anything other than an ordinary remission. Without sc...
by fogdweller
Tue Jun 14, 2011 2:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Keep the faith, my friends!
Replies: 19
Views: 3220

It's deliberately, sadistically slow when it depends on the neurologists and the MS Societies and the so-called disease-modifying drug sellers for support. None is likely forthcoming, if there is the microscopic chance that the research will reveal the truth about "MS", anything new about CCSVI, or...
by fogdweller
Tue Jun 14, 2011 9:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Keep the faith, my friends!
Replies: 19
Views: 3220

Yes, scientific scepticism is good all the way around, but even with some regression toward the mean in correlation between CCSVI and MS, it is pretty clear there is something there. Some of us were hopeful that this was in fact a rather difinitive cause, which a 1:1 correlation would have suggested...
by fogdweller
Tue Jun 14, 2011 8:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Keep the faith, my friends!
Replies: 19
Views: 3220

Thank-you for the post, Lucky. It was a bit of encouragement I needed. I am one of the frustrated ones. Joined in Dec. 09 and was in line for treatment at Stanford when they pulled the plug. Finally got treated in So Cal, but the benefits lasted only a couple days, and when I finally got follow-up c...
by fogdweller
Thu Jun 02, 2011 9:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NEW: Angioplasty study presented at European Neuro Society
Replies: 9
Views: 2137

Re: NEW: Angioplasty study presented at European Neuro Soci

link By advanced pyramidal involvement an improvement of disability score is not expected. The amelioration of fatigue plays an important role in defeating daily obstacles in MS patients. Even in advanced disability, quality of life could be well preserved. It seems that the endovascular treatment ...
by fogdweller
Fri May 20, 2011 3:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Medicare
Replies: 37
Views: 5423

Re: If you have been denied coverage from medicare (US)...

... You must first exhaust all of your appeals with Medicare, including possibly going before an administrative law judge. Be advised you will need to have your ducks in a row. It is common now for Medicare admins/experts to attend these hearings in order to fight your appeal. I have read where it ...
by fogdweller
Fri May 20, 2011 2:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Medicare
Replies: 37
Views: 5423

Cece wrote:If a patient has a past history of MS but gets undiagnosed (or rediagnosed with something else like Lyme that better explains the symptoms), that past history of MS would still trigger denials?
Who knows? How many would fit that description.
by fogdweller
Fri May 20, 2011 2:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Medicare
Replies: 37
Views: 5423

Re: What did it ever do for you?

Do not use the word multiple , do not use the word sclerosis , especially do not use them together, and avoid the initials ' MS ' altogether, like the plague. What did it ever do for you? Instruct all the people involved in your health care that you would like them to do the same and that you will ...
by fogdweller
Thu May 19, 2011 11:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NEW: Flow quantification by Dr. Haacke
Replies: 10
Views: 2474

I am trying to think what effect it would have to have these extreme swings. It sounds like, by speeding up the flow, the flow does all get out? Remenber that the stress on the walls of the vessel purportedly agraveate or cause the BBB leakage. If reverse flow can do this, I suppose undue rapid flo...
by fogdweller
Wed May 18, 2011 12:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Idea ... lets ignore MS and focus on circulation
Replies: 21
Views: 3434

fogdweller, that study was looking at the brachial artery. I will definitely have to read the whole article. There was bracial artery dilation (?not sure what that was about?) but " Venous blood was analyzed for C-reactive protein (CRP), lipid hydroperoxides (LH), the ferric reducing ability of pla...
by fogdweller
Wed May 18, 2011 10:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Scientific study that vascular insufficiency not inolved?
Replies: 5
Views: 1496

Re: Scientific study that vascular insufficiency not inolved

In reality the study was done to determine if people with MS have an higher chance to develop cardiovascular disease which is purely an arterial disease. So the study shows that people with MS do not have an higher predisposition to cardiovascular disease than the general population. This has nothi...
by fogdweller
Wed May 18, 2011 8:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Idea ... lets ignore MS and focus on circulation
Replies: 21
Views: 3434

:) increased blood transit time is beneficial :) I know you meant decreased. With science, does it matter if your audience is the FDA or a peer-reviewed journal? Opps. Yeah, decreased. I hadn't thought it through enough, you really don't need the FDA. In fact, I am not sure the FDA would get involv...
by fogdweller
Tue May 17, 2011 1:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Idea ... lets ignore MS and focus on circulation
Replies: 21
Views: 3434

Walking speed and others are the ones that will stretch it out to five years. Shorter term fixes will give us shorter term goals to reach. Exactly my point! One "end point" could be sustained flow in the jugulars. Period. Or maybew better would be blood transit time through the brain. This is easil...