Search found 412 matches

by fogdweller
Thu Jan 07, 2010 10:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NMSS Donations to CCSVI
Replies: 6
Views: 2046

Rose2, we must be reading different e-mail messages. I for one am glad that they are willing to take and hold money for research i this area even though they do not yet have an approved project. Here are some of the things in the message that seem very supportive of the CCSVI RESEARCH. "We are hopef...
by fogdweller
Sat Jan 02, 2010 1:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Brainstorm new research ideas!
Replies: 1
Views: 2440

Brainstorm new research ideas!

One of the really exciting things about an out-of-the box theory like CCSVI is that it creates whole new ways of approaching the search for solutions. It feels like we have been stuck in a blind alley in the maze of MS research for the past 35 years, ever since we directed all our thinking to immuni...
by fogdweller
Fri Jan 01, 2010 9:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CBS News
Replies: 27
Views: 7789

There is one thing that news companies hate worse than getting scooped, and that is putting a big story out there and being wrong. Even after Fox news, as hard as it may be to believe, credibility is still important. With all the new studies being done, and all the new information, they will soon kn...
by fogdweller
Wed Dec 16, 2009 1:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Stent manufacturers
Replies: 38
Views: 5560

Boy we are sure at an exciting point in this process!! We need to know what causes the stenosis. If it is a congenital malformation, would it just return if opened by angioplasty unless it is propped open by a stent? Would some stenoses be amenable to just angioplasty? If a stent disolved after time...
by fogdweller
Sun Dec 13, 2009 10:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Stent manufacturers
Replies: 38
Views: 5560

We need t interest business in stents!!

Ironically, I have been working in the industry side of angioplasty and stents for the last 20 years. This is the first time this has intersected my disease. I feel like maybe I can do something to help. I think the first thing we need to do is really get industry interested in developing stents for...
by fogdweller
Sat Dec 12, 2009 12:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Convergence of new thinking about MS!!
Replies: 6
Views: 1926

Convergence of new thinking about MS!!

Elswhere in this forum there is an article from Australia that is getting alot of reading, and which is VERY interesting in light of CCSVI. http://www.thisisms.com/article63.html It says essentially that MS may not be an auto-immune disease after all, but is a result of oligodendrocytes dying for so...
by fogdweller
Thu Dec 10, 2009 5:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A plea for patience
Replies: 7
Views: 2142

A plea for patience

I am very, very excited about this new information and wonderful hope. And I too was in the process of getting in to see Dr Dake for evaluation and possible stenting. I was very disappointed when the plug was pulled on that possibility. I am 57, have had PPMS for 35 years, and knew that new drugs to...