Search found 412 matches

by fogdweller
Wed Mar 23, 2011 3:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Neurologists' Responses to CCSVI By Julie Stachowiak, Ph.D.
Replies: 12
Views: 2770

Back on topic...what did YOUR neurologist say? Mine surprised me. I had recently moved and therefore needed to find a new one in the area. the first one I went to was a disaster. First he said he had nevber head of CCSI, and then when I told him that the originator of the theory was Italian (gasp, a...
by fogdweller
Wed Mar 23, 2011 9:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1602100

Re: ccsvi

I have been thinking of how to reduce this thrombosis rate. part of the strategy should be to reduce the injury to the vein wall. from IVUS i have noted that the vein wall is not narrowed at all. The valve elements INSIDE the vein are malformed and this malformation leads to stenosis because the va...
by fogdweller
Tue Mar 22, 2011 11:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New doctors, new research, new ideas
Replies: 11
Views: 2763

Yes, that's the same Bruce Trapp, a researcher who changed the paradigm in 1998 regarding axonal damage before myelin degredation in MS...when all the researchers were claiming MS was a disease of the myelin--- Very interesting. I need to do some more background reading. I have been maintaining tha...
by fogdweller
Mon Mar 21, 2011 8:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 118586

A friend asked by pm how to get started with Dr. Sclafani. Here's their website with the registration form at the bottom and the email to send it in: www.americanaccesscare.com/ccsvi.html The Del Mar Vein Clinic is part of his network, is that the one you're thinking of? Thanks, Cece. As always, yo...
by fogdweller
Sat Mar 19, 2011 3:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 118586

A bit off topic, but how can one contact Dr. Sclafani's office for possible appontment?

Does anyone know if he has opened his branch in the San Diego area?
by fogdweller
Wed Mar 16, 2011 1:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 118586

All good news, great to hear, and well deserved, of all people.

Let us know about thrombosis follow up.
by fogdweller
Tue Mar 15, 2011 7:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: International Society for Neurovascular Disease (March 2011)
Replies: 87
Views: 17647

Dr Thanaporn's mouse model is still under development. The mice developed gait disturbances after 6 weeks of blocking their jugular veins, however the severity was significant but not disabling. The next step is trying to compare it or incorporate it to EAE. The funny part will be the testing of im...
by fogdweller
Wed Feb 23, 2011 9:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Interesting theory - ties some things together
Replies: 7
Views: 2245

Fantastic!! Thanks for the post. This further reinforces my contention that MS is not primarily an autoimmune disease, and that the inflamation is a natural "clean-up" activity, not the initial cause of the disease. This also explains a couple of other things ; why immune suppressing drugs don't slo...
by fogdweller
Fri Jan 28, 2011 11:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Restenosis rate?
Replies: 7
Views: 2083

I believe Dr. Sinan mentioned 2% restenosis at the July symposium. Dr. Arata was telling his patients 0% restenosis this fall but then bumped it up to 1%. These numbers would be fantastic and I find them exciting but unsupported. Hopefully the data is coming. :) edited to add, here is the video of ...
by fogdweller
Thu Jan 27, 2011 5:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Treatment in Newport beach, California??
Replies: 10
Views: 3889

Re: CCSVI Treatment in Newport beach, California??

MA wrote:There is a center "Pacific Interventional" offering this, has anyone been there? how was your experience ther?
Check your pm
by fogdweller
Thu Jan 27, 2011 5:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 118586

All the best to you!! We are all hoping for you. Don't be nervous, you are in great hands !!!
by fogdweller
Thu Jan 27, 2011 11:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1602100

Re: grafting to replace a long, thin jugular?

yes it could be done. the problem is the durability of those stents. I have some questions about stents in veins. Is there any history of stents collapsing/cracking/squezzing patially shut in veins? Is a series of short stents back-to-back sometimes used instead of a long stent? Hi fogdweller, I po...
by fogdweller
Wed Jan 26, 2011 9:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1602100

Re: grafting to replace a long, thin jugular?

Hi Dr S, Is it feasible to replace a long, thin IJV that has a long, thin (8x80!!) stent? I see articles on bovine replacements.. has this work progressed to be useful to humans? yes it could be done. the problem is the durability of those stents. I have some questions about stents in veins. Is the...
by fogdweller
Sun Jan 23, 2011 9:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: PI still did not supply me with codes for insurance!
Replies: 11
Views: 2773

Dr. Arata, thank-you, and please check your PM