Search found 73 matches

by broomdancer
Mon Oct 11, 2010 5:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Would you do it again?
Replies: 35
Views: 7777

Speaking for my husband, yesss... in a heartbeat. Going tomorrow for another doppler to see if he has inpart re-stenosed and then will go from there.
Diana
by broomdancer
Fri Sep 03, 2010 4:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Plavix and alcohol
Replies: 4
Views: 2192

Following my husband & 5 other patients treated the same day, in Katowice, were told not to drink alcohol for 30 days. He was on injected blood thinners for 7 days. Diana
by broomdancer
Fri Aug 20, 2010 5:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Liberated PPMS'ers, please post your experiences here!
Replies: 59
Views: 15582

Hi everyone: My husband was dx'd ppms in 04. His left side was most effected with spasms, drop foot and tingling in fingers and arm. No brain fog and fatique only in the past year and burning sensation with a purple hue to the soles of his feet. Could only move his neck 90 degrees and it was discolo...
by broomdancer
Sun Aug 15, 2010 10:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: PPMS - Symptoms only on left side
Replies: 5
Views: 3465

Hello: My husband was DX'd in 04 with PP. His left side has always been affected drop foot, burning and discoloured sole, spasms, 2 fingers tingling and left arm occasionaly. The right leg would give him problems like groin pull and he believes it was because it was used more to support his leftside...
by broomdancer
Sat Jul 17, 2010 5:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: a modest proposal
Replies: 16
Views: 3804

This would be a wonderful if it could happen A great idea. Check marked!
by broomdancer
Mon Jun 21, 2010 7:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Has anyone been liberated that is a primary progressive MSer
Replies: 22
Views: 4885

Bohemianbill: During our treatment period there were 2 patients out of 6 that were more disabled than Laurie. If Laurie prefers her chair by all means take it. I asked for assisted care for my husband and we were treated like royalty from the arrival at the airport until our return home. No lineups,...
by broomdancer
Mon Jun 21, 2010 12:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Has anyone been liberated that is a primary progressive MSer
Replies: 22
Views: 4885

Hi Tims: My husband has PPMS dx'ed in 04. Uses a cane full time and a scooter locally. Never on any MS drugs except for baclofen and Botox which he highly recommends for tightness of the legs and spascity. Just returned from Poland last night. 6 MS patients were treated June 15th and 2 with severe d...
by broomdancer
Thu Jun 10, 2010 2:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Media Coverage on CCSVI!!!!!!!!!
Replies: 283
Views: 67738

Hi Tims:
An article in the June7th Macleans magazine (volume123*number21)is well done. Titled - Chasing hope: A controversial MS treatment is hard to find. Author - Anne Kingston
Take care
Diana
by broomdancer
Tue Jun 01, 2010 11:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Zamboni & Dr. Simka to testify Canadian Parl. commit
Replies: 4
Views: 2021

My husband's treatment is scheduled for that day also. Maybe we will get to meet, Mila.
Diana
by broomdancer
Sat May 29, 2010 4:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Some Polish Phrases
Replies: 13
Views: 3039

Mila:
Thank you for the corrections. Sometimes I can't read my own writing.
Take care
Diana
by broomdancer
Fri May 28, 2010 5:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Some Polish Phrases
Replies: 13
Views: 3039

A few more words & phrases: car==autem by car==sumochodem by train==pieniedzy eye==oko hand==rece mouth==usta nose==nos limb==koncyna computer==komputer finger==palec water==woda sleep--sypiasz beer==piwo Can I have the bill, please==rachunek, prosze? I'm looking for...Szukam I don't understand==Nie...
by broomdancer
Fri May 28, 2010 4:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cost of CCSVI testing and procedure
Replies: 18
Views: 7461

My friend and I were quoted 21k for scans and treatment, 8k for professional fees and about $250. for consultation in New Hampshire.
Cheers Diana
by broomdancer
Fri May 28, 2010 3:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Zeureka and others in Katowice 26 May
Replies: 35
Views: 7343

Wonderful news Zureka! For those of us yet to be liberated, it gives us hope and excitement for the future. Please keep us posted.
Take are Diana
by broomdancer
Thu May 27, 2010 1:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Help needed! Date for Poland June 22nd, Which airline....
Replies: 11
Views: 2234

Hi: We are flying from Toronto 06:20 pm and arriving in Frankfurt at 08:05am. Fly from Frankfurt at 11:20am and arrive at Katowice 01:15pm. Total cost for 2, $2,900 cad. Lufthansa airlines.
Kind regards,
Diana
by broomdancer
Thu May 27, 2010 12:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Canada: Who/What/Where
Replies: 116
Views: 32942

Hi Newfie-girl: My husband had a Doppler done at Port Perry Imaging and they found everything to be normal Jan 25th. They had only performed on less than a handfull of people at the time. They did perform the test in two positions (sitting and supine). However, we made another appointment for May 7t...

Go to advanced search